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RE: Goreans with Disabilities- Support, Advice, Info, Venting & More!

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 3:48:45 PM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Hello everyone,

I've had a true adventure today. It was both frightening and exciting. I met with a Psychologist and a Physical Therapist who co-host a Coping/Pain Management program that I was recommended to try. After about 2 1/2 hours of questions and physical tests, they made a decision to put me into the program officially, starting on Monday. The greatest setback was my blood pressure. I had been somewhat okay when I arrived. As the hours progressed, the ability to handle the pain itself was more challenging, and the process of questions and tests got frustrating, shooting my blood pressure up well above healthy. It was 169/102 with pulse of 102. She said that was actually higher than was legally allowed for exercise programs, which in itself expressed what I could and could not hope to accomplish through their program. My age was the balancing factor, and at 39, I have some range of motion and ability that others might not have, and also a critical thinking skill related to body awareness that allowed her to give me the choice to join the program even with the blood pressure issue. So yay. And hell. I'm terrified.

I'm also exhausted and poked and wiggled to a point of ugh. LOL I came home and scrunched into pj's and back into bed. I'm all for setting goals, and reaching new levels of ability to deal with pain and long term health processes. The two women who met with me were well educated and listened well. I had been fearing their lack of understanding of how long term some of my physical issues had been going, and how the fibro-myalgia was secondary to kidney disease, and if I could accomplish this program with their insight into my actual health (vs. the enthusiastic doctor's minor insight to overall health) then I would go for it. I'm going for it.

I'll let everyone knows how it goes, but the idea is 2 hours of learning ways to move safely, ways to exercise some muscles and build a cardio plan that keeps the parts of the body healthy that can remain healthy, and other physical challenges, then 1 hour of conferencing with a large group, sharing ideas, diets, ways to work around critical needs in life, then 1 hour with a psychologist leading group therapy more focused on the mental drain that chronic pain brings. 4 hours a day, 4 days a week for 4 weeks, starting Monday. Ugh!

Until then, I plan on sleeping, sleeping, and some more sleeping, if I can sleep. I should store up, right?
K

_____________________________

In all things, to thine own self be true.

(in reply to MontrealPhoenix)
Profile   Post #: 61
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 4:05:24 PM   
Maahsatti


Posts: 2543
Joined: 8/5/2006
Status: online
It was just confirmed for me as well the other day, that I have Fibro myalgia

dangit...lol

Maahsatti


_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to Karynn)
Profile   Post #: 62
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 4:40:48 PM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Maahsatti,

It's a pain - in the neck - and a pain - in the knees - and ... such a pain! LOL

I hope you find some resources in your area that are supportive and helpful. It's taken me about 2 1/2 years to run the gamut of doctor merry-go-rounds.

K

_____________________________

In all things, to thine own self be true.

(in reply to Maahsatti)
Profile   Post #: 63
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 4:43:05 PM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
Greetings Maahsatti,
Greetings Karynn,
 
Maahsatti, i'm so sorry to hear that, is there anything they can do for you?
 
Karynn, that's great to hear! Did they tell you whether you will/might be able to lower your pain meds? That would be fantastic. Best of luck to you.
 
hugs and well wishes to you both,
 
Phoenix

_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to Maahsatti)
Profile   Post #: 64
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 5:16:21 PM   
Hiskajirah


Posts: 841
Joined: 1/9/2008
Status: offline
FR

Mistress Karynn
You are welcome for the link to the movies site. I just love it. Sometimes theres Japanese subtitles, but I can look beyond that for a good movie.

Mistress Maah
I was diagnosed with Fibromyalgia before I was diagnosed with RSD/CRPS. No wonder you've been hurting so bad. Lyrica is what I took twice. Once when it was first approved by the FDA and again after I got my stim. I've heard it works wonders for people that have Fibromyalgia alone, but it didn't for me. My muscles hurt so badly that I couldn't move and I won't mention the weight gain from it that made weight bearing even worse.
 
Greetings all
We still haven't gotten the keys to our new home, though our realitor now has them, we are waiting on the Title Co.  Yesterday we spent most of the evening picking out paint colors, purchasing the paint and other supplies and was hoping we could have gotten it painted today. Now my Master returns to work tomorrow from his 3 days off and goes out of town for 2 days this weekend, so even if we get the keys tomorrow, won't be able to get anything done. I'm starting to accept using my wheelchair when we're out for long like that, but I still use it with my head down. Maybe that isn't acceptance after all.

Wishing you all the very best.
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

(in reply to MontrealPhoenix)
Profile   Post #: 65
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 7:08:45 PM   
Totalmaster4you


Posts: 1359
Joined: 6/19/2006
Status: offline
~FR~
Tal all,

Karyn congrats, keep positive. Remember that it is possible to defeat the success of a program by negative thinking. You have to believe you will be successful..
Babs I don't normally coddle or even cuddle anymore, but for you I'll make an exception anytime.
phoenix I'm sorry to hear that you've added to your pain. Maybe you could try icing the new hurts. If you can use frozen peas as a cold pack. It's lighter than ice, will conform to the body part and won't get wet.
Twinkle you shouldn't feel any shame in using a wheelchair. It's a tool just like your medication or laptop. The meds help with the pain and other things and the laptop allows you to stay in touch with friends and family. The wheelchair will return some of your ability to be active, shop for a present, go to the mall, etc. which to me is the definition of a tool. Look up with your head held high as long as your Master says he pleased.

I wish you all well,
Touchyourmind

_____________________________

Sometime ago I decided it was time to change my nic. However I didn't wish to disconnect from my original profile. Since then I've signed Touch your mind (TYM or Tym). Opinions in my posts should be taken as my opinion and my opinion only.

(in reply to Hiskajirah)
Profile   Post #: 66
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 7:35:41 PM   
Maahsatti


Posts: 2543
Joined: 8/5/2006
Status: online
Karyn, Congrats and thank you.

Phoenix, Thank you to you as well, for your kind thoughts and concerns.
Tym was write about the frozen bag of peas and Im sorry to hear these little accidents add so much more to your already existing pain.

twinkle, never ever lower your head in shame for something like that.again Tym is right, it is a tool. I did not like having to use a cain at first, but it has helped and thats all that matters, and when I can I am darn well going to get one of those hover round chairs.

Tym, Im not a cuddly type of person either...lol...but right back at you, I will give you a hug or cuddle any time...I know the pain you endure we share much of the same ailments and believe me, just having you to talk with and as support has been incredably helpful. I actually have an unbelieveable support system with all my friends, new friends and old friends...I do not think I would have been able to keep it together as long as I have if it was not for my older friends..and they know who they are, here.

I strongly believe, that God does not give us more then we can handle..I know it feels like he does..a lot..but he knows how strong we really are and he knows the people in our lives will lend us even more strength.
twinkle, this thread alone has been an incredable source of support for so many and I feel will continue to be so, for many more.
You are a beautiful soul and I love you to pieces.

Maah


_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to Totalmaster4you)
Profile   Post #: 67
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/15/2008 8:41:08 PM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Tal Phoenix,

The goal is to reduce the stress and tension and increase mobility. She said even if we got me to a point where I was only in bed 60% of the day rather than 90%, it would be improvement. I was pleased that she wasn't trying to blow smoke. My younger son went with me, and stayed in during the second half of the eval, and came away with me to help us navigate home. While we were going home he said something that I thought was perceptive and encouraging. "You know how sometimes you go to a doctor or dentist and you think that part of what they do is sell you something so they get their money and meet the bottom line? This lady wasn't like that. She seemed genuinely interested in helping you get healthy." I was in agreement but it was nice to hear it from his mouth.

Tym,
You've been such a help already, listening to me talk about stuffs and medicine and frustrations and fears. Thank you. You're right. The first and biggest goal is to accept that I'm joining this program to make an improvement. ANY improvement is valued. Negative attitude will take away from any positive steps they can help me take. I'm far more encouraged and openmindedly willing to try my best with the program after this meeting today. It seemed flexible to fix each person at whatever level they were at (not canned for everyone at one time) and something that had goals but the goals were based on the individual, not some charts or doctor's note.

twinkle,
I've gained a good bit of weight on Lyrica as well. I haven't been able to tell if it is just the sedentary portion of life, no metabolism stimuli at all, or the meds, or both. I'm hopeful that with some movement the next four weeks, I'll be able to solve that riddle and work with options to broaden the possibility of health and wellness in all areas, including weight. My fibro-myalgia is tertiary to two other major elements. The first pain has always been kidney disease and a weak and solitary right kidney. My secondary pain is neuralgia, a severed nerve in my groin area that puts bearing weight on that leg painful, and creates a sort of protectiveness to my entire right region between breastbone and pelvis as a result. Only after kidney disease and repetitive infection coupled with that protective nature to nurse and keep the area that hurt protected did I end up developing the fibro-myalgia. I tensed up and harmed the rest of my body while I was trying to cope with the greater issues. I look forward to some new coping techniques and ideas to help loosen up some of that, and maybe at least reverse the hold the fibro has had on me.

Maah,
Once they diagnose it, it's in your permanent file and it makes going to the ER for pain a much easier deal. I got so frustrated, to a point of tears on more than a few occassions when I had to go to ER for pain and they treated me like a potential criminal drug addict there for my fix. I had to convince them that I wasn't crazy, was in pain, and was getting more ill by the moment while they waited and drilled me. Now it is in my charts and I don't have to go that route. I hope the same is true for you. The doctor I see in Charlotte is one of the leading specialists for fibromyalgia research in the nation. His name is Dr. Glen McCain, and you might consider Googling him and/or telling your Primary care phy about him and his studies and research. It might help.

I will catch up the details as we plod along with all these new paths to try. I still find myself fearful, but after doctors and doctors and more doctors, invasive procedures, hospitals and pain, I'm not the biggest candidate for open mindedness when it comes to being a guinea pig. I guess that's only normal.

I wish ya'll well,
K

_____________________________

In all things, to thine own self be true.

(in reply to Maahsatti)
Profile   Post #: 68
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 4:00:59 AM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
Greetings Karynn,
 
You know reading this, i noticed that you sound different in some way. Then it hit me, you sound HOPEFUL. That in itself is great, and i agree, any improvement is good improvement. I understand about the weight gain, i've gained 10 pounds in the time i've not been able to walk home from work, alarming but not surprising.
 
Greetings Touch and Maahsatti,
 
I'll try the bag of peas idea, though i'm reluctant because cold makes the pain so much worse. I start physio today, hopefully that will help, i'm too afraid to contemplate what i'll do if it doesn't. Meantime, i'm going to call my doctor's office and see whether there is something i can take that'll allow me to function better as the Dilaudid spaces me out too much to be able to do my job effectively.
 
Greetings twinkle,
 
Again, i can't thank you enough for starting this thread, i think bringing us all together has done us a world of good. Professionals can sympathise, but only people going through the same thing can truly understand.
 
I'm off to work, have a great day everyone,
 
be well,
 
Phoenix

edited to add:  Karynn, i hear ya about the doctors and time spent being diagnosed. It took over 15 years and the right doctor and the right test to diagnose the torn tendon, one doctor even said " Oh xxxxxx there's nothing there" when i pointed to where the pain is. I just shut up about it for years afterwards.

< Message edited by MontrealPhoenix -- 4/16/2008 4:05:42 AM >


_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to Karynn)
Profile   Post #: 69
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 5:22:06 AM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Hello everyone - everyone who's got a pain and not sure how to talk to a doctor or if it is serious enough to talk to a doctor and may be reading this thread - I thought I'd pause and write some encouraging and helpful thoughts to help you decide if you fit into this group. I've noticed a few people asking, 'If I feel this or that, am I allowed to post here?'

Almost everyone's natural instinct when dealing with pain is self-preservation. Many will do it on their own for many years before ever mentioning an issue to a doctor. Men (and women) may avoid speaking up about pain because they were raised in a generation where the father, the coach, the uncle, the professor, all said, "Stop complaining, tough it out and get back into life." They were also raised in a time where men (primarily) were told to handle pain with an expressionless disposition that allowed no one to know they were in pain. Women have a different pyschological approach to pain and perhaps submissive women have even more unique ways of dealing with it. In general, women hide pain so that they're not seen as a burden to their loved ones. They don't want to worry their children. They don't want to alarm friends at work. They don't want to air dirty laundry. And in the submissive's case, any event in their life that impedes their direct and immediate ability to provide service goes under the table and hidden from view in exchange for pushing through the pain to meet the goals and expectations of their ownership or their sense of what a slave "should do."

If you've experienced pain that lasts longer in duration than a few days, it's something worth noticing. If you're experiencing new pain that's more intense than what used to exist in the same location, it's something worth noticing. Say you injured your knee, tore a tendon partially, and it healed. You were 18, the captain of the wrestling team, and you just dealt with it. At 18, your body was still quite able to regenerate cells quickly and you were feeling better in no time. Some years later, you go out in the yard with your 4 year old son to toss the ball, and just as you plant your foot, your knee slides and jars that old tendon tear. It's an area of your body that was weak then, but now you're 26, and you've retorn it. The ability to heal as quickly has changed. You're a different age. You're also not all about me. You have a 4 year old dependent on you being balanced. You're probably the stronger one, so you're lifting the 4 year old, carrying him around, and now with a torn tendon that's inflamed, each time you step and plant your foot, something in the back of your mind says, "I could fall if my knee popped now." My advice... don't wait till you've gone from I'm fine to I could fall. Somewhere in the middle of that is a logical time to at least see the family physician. Really.

True disability is defined as an event that interrupts life's normal patterns. Back to the injury idea. When you break your arm, your life pattern is interrupted but almost all breaks heal naturally within 6 - 8 weeks. Your target goal is to deal with the inconvenience those 6 - 8 weeks, then return to life. It's when something occurs in life that interrupts life's normal patterns for a long period. Some illnesses are rediagnosed after 6 mo - like depression for example - and treated as long term at that point. Post partum blues have a small expected window of time. If the depression lingers after that window, it then becomes a disability instead of post partum. A car accident can really mess up your legs. You might have to relearn the skills of walking, balance, climbing stairs, and so forth. The full recovery time for breaks in the legs go from 6 mo to a year. The full recovery time for pelvic breaks can last up to 3 years. If either of those recovery times come and go, and a patient is still unable to move back into a normal life pattern that existed for them prior to the accident, they will be moved from short term pain management techniques to long term or chronic pain management.

As someone already pointed out, disabilities come in all forms. There are congenital handicaps, meaning you're born with it. Some are born deaf. Others lose their hearing after a roadside bomb goes off in Iraq. Regardless of when the person loses hearing, once it is gone, it is a disability. Some people are born with no legs. Others have legs severed in work accidents. Either way, learning to cope with the loss of a leg is learning to cope with a disability. Handicaps affect every sense, every system in the body, and every perception in the mind. Identifying the source of a problem helps identify the disability and treat it. It's really important to be willing to discuss it with your physician in order to the the best treatment the soonest.

Every moment you wait, gritting your teeth and bearing it, could be moments you take away from your life down the road. If you allow a minor spider bite to get infected, eventually you could lose your arm. If you allow a minor depression to consume your life, you could eventually lose your mind. Even if your chronic pain or disability isn't progressive, meaning if it isn't getting worse as time passes, ignoring it still brings about long term damage. Pain takes energy to manage. If you get a headache, it can ruin an entire day. Everyone's been there and done that. If you have chronic pain, it's not just one afternoon ruined. It can be days, weeks, months, and you're more and more and more frustrated. Your physical frustration will manifest in tight muscles, joints and tendons, overcompensating other parts of the body to preserve the area in pain and eventually cause damage to parts of your body that weren't initially involved. Your emotional frustration is perhaps even a bigger risk. That whole grin and bear it concept has an upside, for sure, but it also creates a bank of problems down the road. If you know you're overdrafted in your bank account, it isn't wise to keep writing checks. You don't have the means to make good on those checks. You might be able to grin and bear it, make others think you're fine, for a while. Eventually, the fact that you have no personal reserves stored up inside your mind shows up in odd ways. You might snap and scream at a child. You might let your boss know what you really think. It's like suddenly and surely, your overload blows all the circuits at once and you can't predict where you're going to let loose until it happens.

Everyone's threshhold is different. Some people endure far more discomfort before they're really in pain. Other people have fragile nervous systems and the slightest touch bruises skin and causes pain. Only you can know if your difficulty in life qualifies as a disability. No one here should try to assess someone else's disability and/or right to be here. Since disabilities are so personal, some may not even feel like trying to explain what their disability is, but still need to vent or discuss coping. At that point, all the rest of us can do is share from our own experience and hope those reading can glean useful tidbits from our openness. Even if five of us have exactly the same diagnosis, the likelihood that our bodies are experiencing that diagnosis exactly the same way is unreasonable. I've seen at least 4 people now express they have fibromyalgia for example. I don't think for a moment I know exactly how that person feels now since I ahve it too. I can commisserate with them in a more personal manner because I DO have it too. Mine isn't theirs, but mine is relative, and that comradery of knowing I'm not the only one suffering with it helps, and I hope in turn helps them too.

My heart is poured out to each of you as you share. I add you to my mental list for prayer and meditation, sending you the energy of angels or white energy while I share in your pain from a more literal personal understanding. I wish each of you well and a day with as little pain as possible.

My best,
K



_____________________________

In all things, to thine own self be true.

(in reply to MontrealPhoenix)
Profile   Post #: 70
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 7:10:50 AM   
selenaMD


Posts: 55
Joined: 6/1/2006
Status: offline
Greetings twinkle,

I can understand in some ways your feelings about being in a wheelchair.  My mom was a heart patient her entire life, and after experiencing a grade 5 heart attack, she needed to use a wheelchair as well as oxygen to get around.  I was about 14 at the time, and this one time we went to a county fair we always went to as a family.  When I was pushing her around, the people who saw her (for some reason I don't comprehend) seemed to think that being in a wheelchair equated to her having a subnormal mental capacity.  They tended to talk to me about her, as if she couldn't understand what they were saying or respond for herself.  For my mom, who was an extremely vital and intelligent woman in drove her to tears.  She got up to look at something at one of the stands, and I sat down in the chair (cause I had been pushing her around in it for hours and was a bit tired), immediately people who walked past me, started to give me those smiles you give to a small child who can't talk yet.  As I said, I am not sure why this is the way people's minds seem to work, but that day I really got to see that mentality in action.  Just try to remember that it is that person's shortcoming and lack of understanding, don't take ownership of it.  When I was 22 a large door fell on my leg destroying my knee by tearing my ACL, LCL, MCL and meniscus.  For 8 months I walked with crutches, and no one seemed to think twice about it, but once I "graduated" to a cane, I began to get those same looks I did that day at the fair in my mom's wheelchair.  Because I took ownership of their responses, I stopped using my cane and quite quickly reinjured myself.  Next time I graduated, I decided I didn't care what other people thought, I was going to use that cane, and use it with pride in my accomplishments.  As mentioned previously, it is only a tool, it doesn't define who you are.  If you need to use it, take pride in the fact that you are still going out into the wide wide world, doing things, enjoying things, as opposed to staying home, denying yourself of the pleasures in life you could be enjoying "if only".  It shows your strength, your willingness to continue to embrace life irregardless of any limitations placed on you with you illness.  For that, I tip my hat to you.  Know there are many others who give up those few remaining bastions of freedom, it speak of a strong person that you don't!

wishing you well,
selena{MD}
devoted property of Master Mark

(in reply to Karynn)
Profile   Post #: 71
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 10:27:37 AM   
Maahsatti


Posts: 2543
Joined: 8/5/2006
Status: online
Greetings selena,

So elequently said, lady, bravo!

serve and (be well)
Mistress Maahsatti


_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to selenaMD)
Profile   Post #: 72
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 10:42:30 AM   
Maahsatti


Posts: 2543
Joined: 8/5/2006
Status: online
quote:

n general, women hide pain so that they're not seen as a burden to their loved ones. They don't want to worry their children. They don't want to alarm friends at work. They don't want to air dirty laundry.


This struck me the most.
My mom has migraines, she has had them for as long as I can remember, they were so bad, she would walk into an ER, get numerous amounts of shots...morphiene, Dmerol, etc, and spend hours in a dark room they shoved her in...then she would leave the ER still in so much pain, she was crying inside hard, but could not bring the tears, because the pain was so intense it prevented them.
She would go to work half the time like that, she would not complain or let on...however, it was obvious to others, she was pale and had red blotches all over her face.
She still has them to this day, but thankfully, not as bad, although this past week or so, she has had a migraine and it just wont let up. still she does not complain and still she goes to work everyday.
I learned this from her as well. I did not like letting on when I was in pain..it has only been thru the past few yrs I have learned to open up and let people know what I am going thru. The friends I mentioned in my previous post are the reason for that. They helped me to understand, that sometimes, just being able to talk about it, can help.you dont feel so alone thru it all.
I still sometimes hide or try to hide whats going on because to me, it just gets redundant, I feel, why should my friends have to listen to me belly ache all the time.
They deserve a friend who can offer them an uplifting and bright friendship, with happy discussions, etc...but I have learned..friends are there for you thru the bad as well as the good and it is our own mind frame(those who are suffering) that often times pushes people away and secludes ourselves.
ot a good thing. We need all the support we can get, IMO, let friends and family do and say what they can, allow them to try and understand what it is you are going thru, they are all too happy to help, with their love and support.

I wish all well,
Maahsatti


_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to Karynn)
Profile   Post #: 73
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 2:46:45 PM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
quote:

ORIGINAL: selenaMD

Greetings twinkle,

I can understand in some ways your feelings about being in a wheelchair.  My mom was a heart patient her entire life, and after experiencing a grade 5 heart attack, she needed to use a wheelchair as well as oxygen to get around.  I was about 14 at the time, and this one time we went to a county fair we always went to as a family.  When I was pushing her around, the people who saw her (for some reason I don't comprehend) seemed to think that being in a wheelchair equated to her having a subnormal mental capacity.  They tended to talk to me about her, as if she couldn't understand what they were saying or respond for herself.  For my mom, who was an extremely vital and intelligent woman in drove her to tears.  She got up to look at something at one of the stands, and I sat down in the chair (cause I had been pushing her around in it for hours and was a bit tired), immediately people who walked past me, started to give me those smiles you give to a small child who can't talk yet.  As I said, I am not sure why this is the way people's minds seem to work, but that day I really got to see that mentality in action.  Just try to remember that it is that person's shortcoming and lack of understanding, don't take ownership of it.  When I was 22 a large door fell on my leg destroying my knee by tearing my ACL, LCL, MCL and meniscus.  For 8 months I walked with crutches, and no one seemed to think twice about it, but once I "graduated" to a cane, I began to get those same looks I did that day at the fair in my mom's wheelchair.  Because I took ownership of their responses, I stopped using my cane and quite quickly reinjured myself.  Next time I graduated, I decided I didn't care what other people thought, I was going to use that cane, and use it with pride in my accomplishments.  As mentioned previously, it is only a tool, it doesn't define who you are.  If you need to use it, take pride in the fact that you are still going out into the wide wide world, doing things, enjoying things, as opposed to staying home, denying yourself of the pleasures in life you could be enjoying "if only".  It shows your strength, your willingness to continue to embrace life irregardless of any limitations placed on you with you illness.  For that, I tip my hat to you.  Know there are many others who give up those few remaining bastions of freedom, it speak of a strong person that you don't!

wishing you well,
selena{MD}
devoted property of Master Mark

Greetings selena,
 
I want to thank you for this. I have a cane i should probably be using but haven't because i'm afraid people will treat me differently, less capable. As a result, by the end of the day at work i'm in far more pain than i need be.
 
Well, you and Maahsatti are right, anything that helps be it wheelchair or cane is just a tool that makes life easier.
 
Thank you both for getting through my stubborn little head. I will start using it beginning tomorrow.
 
well wishes,
 
Phoenix

_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to selenaMD)
Profile   Post #: 74
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 7:54:19 PM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Phoenix and twinkle and anyone else thinking of using a cane,

Just think, if you have one in a theme park, you can get head of the line privileges. That's being treated like royalty, isn't it? Maybe it isn't that they're staring at you because you look strange. Maybe they're admiring you because you look regal!

K

_____________________________

In all things, to thine own self be true.

(in reply to MontrealPhoenix)
Profile   Post #: 75
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 8:32:33 PM   
smilezz


Posts: 2132
Joined: 6/18/2004
Status: offline
=fast reply=

Hi everyone...

While i am not Gorean, and i see that this thread is stated as such....i hope y'all don't mind me just tossing this out here.

How does a person get to the point of acceptance with pain? I guess what I mean is....if one does not acknowledge it, no matter how much you hurt throughout the day, you just keep on going with the flow of life....how do you get past that? or would that be called denial?

I'm just curious....

Happy Wednesday!!

~smilezz~

_____________________________

=It's not my fault that when I was a baby I was dropped in a box of Glitter & I have been shinin' ever since=

�*:-.,_,.-:* � �*:-.,_,.-:* � �*:-.,_,.-:* � �*:-.,_,-:* �

(in reply to Karynn)
Profile   Post #: 76
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/16/2008 9:23:52 PM   
Totalmaster4you


Posts: 1359
Joined: 6/19/2006
Status: offline
Hi smilez,

Since your asking this question I'm guessing that you're wondering how people cope with chronic pain rather than  are suffering from it. (If I got this incorrect do let me know). As with most things people have parts that are similar or even identical but some portion will be unique for that person to cope with. So I'll only speak to what I deal with and you can expand or restrict what I say according to what you need for an answer. I have 3 individually identified pains. First is the ache. This covers large areas in my body and is constant. No ebb or flow. Best analogy would be a hum, you know it's there but it become part of the background of ones awareness. The second is spasms. This is like a bolt of electrical current traveling from the neck down the arm, to the elbow or fingers. It usually causes me to jump as if I'd gotten a shock. Other areas where I get them is low back down the buttock thru the groin stopping mid thigh or knee. These can be on one side or the other and every so often both at once. The third is what I call the sharp ache. That's where a specific spot almost burns with pain. Also there is discomfort from numbness and tingling usually in the hands and feet. The only one that someone can "cope" with is the first pain, the ache. One can use distraction or meditating to deal. The other two can't be ignored. You take the meds for breakthrough pain and try to distract oneself until it ebbs. Frequently chronic pain causes depression which is a separate discussion. I'm not sure that we really cope with this scenario but just try to survive until one has surgery, nerve block or some other new procedure that alleviates some or all of your pain. Hopefully I covered what you wished to know. If not let me know more specifically what you seek.

I wish you well,
Touchyourmind

_____________________________

Sometime ago I decided it was time to change my nic. However I didn't wish to disconnect from my original profile. Since then I've signed Touch your mind (TYM or Tym). Opinions in my posts should be taken as my opinion and my opinion only.

(in reply to smilezz)
Profile   Post #: 77
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/17/2008 6:26:47 AM   
smilezz


Posts: 2132
Joined: 6/18/2004
Status: offline
Good morning Sir...

Thank you for the information. It was indeed some of what I was trying to ask. I have to form a few more thoughts to ask some more.

Happy Thursday!

~smilezz~

_____________________________

=It's not my fault that when I was a baby I was dropped in a box of Glitter & I have been shinin' ever since=

�*:-.,_,.-:* � �*:-.,_,.-:* � �*:-.,_,.-:* � �*:-.,_,-:* �

(in reply to Totalmaster4you)
Profile   Post #: 78
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/17/2008 8:08:12 AM   
selenaMD


Posts: 55
Joined: 6/1/2006
Status: offline
Greetings Mistress Karynn,

Don't forget it often works at those insanely long lines at government offices too *winks and giggles*!  Though theme parks are a lot more fun then the copious amounts of paperwork you usually have to fill in once you reach the end of those insanely long lines.

Greetings Phoenix,

I'm glad that you have decided to begin using your cane.  One thing I did with mine was paint lots of fun things on it, made it quite bright and cheerful looking,  Though it did make it hard to find matching shoes *said with tongue firmly in cheek*.

Greetings smilezz,

When I injured my knee, they discovered that the injury had basically mangled my cartiledge, so even now, nearly 6 years after the injury I am still in constant pain from it.  The orthopedic surgeon gave me a standing order for pain medication.  Maybe I am stupid and stubborn, but I certainly don't take it on a daily basis.  Before I saw him, my thoughts always revolved around, "they can do surgery and fix this", so I didn't reach that state of acceptance.  More than a year after the injury when I finally got to see him (damn waiting lists) and he told me there was nothing they could do to fix it, I decided that I needed to accept the level of pain I was in as my new normal.  As Master Tym said, you come to an acceptance of that constant aching pain, I think you body sort of adapts to the new status quo.  But the flare ups where it feels like someone is trying to pump acid through your nerves you can't seem to ever really accept, at most I think you cope (with medication, with treatment, etc.).  I think it sort of goes back to the idea of using a tool when you need to, *accepting* that sometimes your will power isn't going to be a strong enough tool.  Seeing it not as a weakness, instead embracing the fact that you are willing to do what it takes to function normally (even if that normal might be different from what you see as the standard), as a powerful strength within you.  I think that there is a difference between acceptance and defeat.  Acceptance says: "yes this is a problem I have and this is what I am going to do about it", while defeat says: "yes this is a problem, and I can never do anything I like to do ever again".  I think many people confuse acceptance with defeat, be it because of their own ideas, the way they were raised, or they way society responds to certain things.  Don't fall into that trap, the only person that harms is you!  Denying the fact that your body is trying to tell you something is wrong is never a good idea.  We were made the way we are so that we could be aware when things aren't as they should be, and it is not something you should ever just slough off.  Many people have talked about pain management clinics, which are a great way to learn both acceptance and coping mechanisms.  You wouldn't tell a person with diabetes to just ignore the fact that they keep slipping into a diabetic coma, and injury and pain are the same thing.  Your body is saying "Hey, something is wrong here", listen to it! 

wishing all well,
selena{MD}
devoted property of Master Mark

(in reply to smilezz)
Profile   Post #: 79
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/17/2008 8:55:15 AM   
Maahsatti


Posts: 2543
Joined: 8/5/2006
Status: online
Ok Tym, get out of my body....and head...lol
Good post.

Babs


_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to Totalmaster4you)
Profile   Post #: 80
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