RE: Goreans with Disabilities- Support, Advice, Info, Venting & More!

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 6/22/2009 12:15:18 PM

snappykappy

Posts: 552
Joined: 3/5/2005
Status: offline

tyvm mitzie

lots of goodies on the link in ur reply

i have sarcoidosis it does not have me
i will kick its ass
i refuse to lose
thomas michael kappler

(in reply to Mitzie)

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Post #: 1141

RE: Goreans with Disabilities- Support, Advice, Info, V... - 6/22/2009 12:30:39 PM

Maahsatti

Posts: 2579
Joined: 8/5/2006
Status: offline

Hi twink,

All very good accomplishments indeed. However, via our phone chat last night, I know exactly what it took for you to achieve the things you have and it was thru ignoring 98% of the pain you were *still* enduring, just so you could make everyone else happy, thus doing what you have always done...make everyone but yourself happy at the cost of your own health.

Guess what, I full expect that you follow thru today with your Doctors and to get yourself *happy* and pain free and we both know that includes, unfortunately the continuation of your pain meds ALONG with the program.

No more grinning and baring, no more saying it works, I feel better, when it does not work and you do not feel better.

The program as you know and as we discussed is meant for patients who are not so far gone...like they did with you, if you had this program back when this first came over you, it would have worked, but not several yrs later down the line. Now you need both in place in order for you to completely succeed and be as close to pain free as possible. Lets face it, we both know that you will never be 100% pain free, but thats ok twink, at this point being at a 3 or 4% pain level for patients like you...and ..me...is a lot like being pain free...lol

You know you always have my support, both online and off, but you are the only one who can get you there and the only way you can is to be 100% honest and not by telling others what they want to hear to make them happy.

You are a selfless woman twinks, even to a harmful degree...harmfull to yourself and thats gonna stop, is'nt chicky?!!

*smiles*

Much care sweetness,
Mistress Babs

_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to Hiskajirah)

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Post #: 1142

RE: Goreans with Disabilities- Support, Advice, Info, V... - 6/23/2009 6:01:27 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
Status: offline

Greetings Mistress

You are right, it took a tremendous amount of ...guts and determination to reach this point. It's been so very hard. Yes it is true that had this program come along for her many years back it would have had the chance to work so much better. Yes you are right in that she was determined to make everyone else happy. In some ways, she still is. It is very true that it is meant to get people back on their feet (and back on track with their previous lives) faster by early intervention. She is the oldest person by 3 years (not age) in the program from date of injury. Meaning some have injuries or illnesses as much as 6 years, some as little as 1 (it will work for them) and she is heading on 9 years. There was only 2 people in her group with CRPS out of 14, now there are 3. People are always rotating out and always rotating in.

She supposes she is selfless to a harmful degree, you would be right again.. She did meet with her entire team of doctors at the same time and come up with a plan and alternatives when needed.

Thank you for your support Mistress

Sincerely,
~twinkle

quote:

ORIGINAL: Maahsatti

Hi twink,

All very good accomplishments indeed. However, via our phone chat last night, I know exactly what it took for you to achieve the things you have and it was thru ignoring 98% of the pain you were *still* enduring, just so you could make everyone else happy, thus doing what you have always done...make everyone but yourself happy at the cost of your own health.

Guess what, I full expect that you follow thru today with your Doctors and to get yourself *happy* and pain free and we both know that includes, unfortunately the continuation of your pain meds ALONG with the program.

No more grinning and baring, no more saying it works, I feel better, when it does not work and you do not feel better.

The program as you know and as we discussed is meant for patients who are not so far gone...like they did with you, if you had this program back when this first came over you, it would have worked, but not several yrs later down the line. Now you need both in place in order for you to completely succeed and be as close to pain free as possible. Lets face it, we both know that you will never be 100% pain free, but thats ok twink, at this point being at a 3 or 4% pain level for patients like you...and ..me...is a lot like being pain free...lol

You know you always have my support, both online and off, but you are the only one who can get you there and the only way you can is to be 100% honest and not by telling others what they want to hear to make them happy.

You are a selfless woman twinks, even to a harmful degree...harmfull to yourself and thats gonna stop, is'nt chicky?!!

*smiles*

Much care sweetness,
Mistress Babs

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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Post #: 1143

RE: Goreans with Disabilities- Support, Advice, Info, V... - 6/24/2009 12:10:18 AM

Zevar

Posts: 786
Status: offline

Greetings twinkle~

I wanted to post this Japanese proverb for what it is worth as you continue on your pathway to healing.

Fall seven times, stand up eight.
Japanese proverb

I wish you health, strength and Healing,
~ Zevar ~

_____________________________

Beagán agus a rá go maith.
Gaelic saying

Broken Irish is better than clever English.
Irish proverb

House of Livingston
A Gaelic Irish gentleman master
Finte na hÉireann

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Post #: 1144

RE: Goreans with Disabilities- Support, Advice, Info, V... - 6/24/2009 8:22:30 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
Status: offline

Greetings each of you

Sometimes we say things we do not mean and sometimes we say things we do mean and sometimes those things happen simultaneously. She has no excuses for a post she made recently, only reasons.

Alcoholics have a 12 steps program, those dying have a 5 step one, and others have something else to do and accomplish within their own lives.. What you saw was not her nature, but those were her feelings, on the inside. A long time in trying to make everyone happy, never thinking of herself. We're taught to let go of all emotion that might hinder us. Stop us from moving forward. While some may not understand now, and others never... some without a doubt will.... that post was a cleansing. It means that things that was going on in her mind that she was not allowed or able to express will no longer stop her body from healing. The mind is a powerful thing. The law of attraction. What we think about is what we get, what we feel negative and positive reflects ourselves and the world around us.. She did what had to be done. She can't beg forgiveness, or expect you to let her off the hook, it doesn't work that way. What works is that she is free of those emotions.

We all come to cross roads in our lives, slaves or free. And when she is done with this assignment there will be even more freedom. She isn't finished yet. You know like contacting those bullies from grade school that hurt you somehow? (no this didn't happen to her, but it is a good example) . When she has accomplished the rest of it, there will be no dwelling, no sadness, only love, gratitude, appreciation, happiness, joy. When your mind and body only feels good things.... you will feel good things. All good.

She promises you... you will. Over and over again.

Life will be so much more worth it. You will have so much to look forward to and embrace in a positive manner. No blaming, only reward.

Always remember that your words and your thoughts influence one another and you in the end create your own destiny in the universe. We are all energy. And the lack of.

Always be as well as you can be,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 6/24/2009 9:27:49 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Thank you Master

She is grateful for your post.

Sincerely,
~twinkle

quote:

ORIGINAL: Zevar

Greetings twinkle~

I wanted to post this Japanese proverb for what it is worth as you continue on your pathway to healing.

Fall seven times, stand up eight.
Japanese proverb

I wish you health, strength and Healing,
~ Zevar ~

(in reply to Zevar)

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Post #: 1146

RE: Goreans with Disabilities- Support, Advice, Info, V... - 7/2/2009 11:04:36 AM

Totalmaster4you

Posts: 1359
Joined: 6/19/2006
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Tal twinkle,

I'm glad to hear of your progress and look forward to seeing you dance sometime in the near future.

Always rooting for you,
T

_____________________________

Sometime ago I decided it was time to change my nic. However I didn't wish to disconnect from my original profile. Since then I've signed Touch your mind (TYM or Tym). Opinions in my posts should be taken as my opinion and my opinion only.

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 7/2/2009 5:57:26 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Greetings Master T, each of you

Just a bit of good news. She previously mentioned that her RoM has increased. It is now equal to her left, right on mark. Her standing on each foot solo has increased and is now 32 seconds left (better foot) and 20 seconds (right). She has increased her walking from 7 minutes without stopping to 10.30 on the treadmill. Granted, she had something to hold on to there, but also increased it without the treadmill. She graduates either next Friday or the week after (depending on make up days and holidays involved). She will begin taking Suboxone on the 13th. While it is the first in 30 years to get people off opiates, narcotics etc, and similar to Methadone, it can also relieve pain by blocking the pain receptors in the brain.

She was willing to do this for herself as well as for a Clinical Trial. She knows that med has been mentioned on this board before and soon she'll know for herself.

We are staying home for the 4th and we are happy to do so. BBQing, playing in the kiddie pool, fireworks in the evening etc.

Happy Independence Day!!!

Sincerely,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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Post #: 1148

RE: Goreans with Disabilities- Support, Advice, Info, V... - 7/2/2009 7:00:28 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Saying it now so she doesn't forget or simply not say so..
A few people have been here along the entire way...

Master,
Master Orion,
Master D and his girl tazzy,
Mistress Maah
Louve00
Craig....

Compass
MDJ
Steven S.

And others

Sends hugs to each of you...
Thank you

~twinkle

Edited to be more clear... D is for Dinnardin. (ya'll new that right?) ~smiles
S is for... wouldn't ya like to know? ~laughs

< Message edited by Hiskajirah -- 7/2/2009 7:12:03 PM >

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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Post #: 1149

RE: Goreans with Disabilities- Support, Advice, Info, V... - 7/3/2009 2:44:27 PM

snappykappy

Posts: 552
Joined: 3/5/2005
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congrats on ur successes along ur way and many more to come that u have no idea how good they will be

i have sarcoidosis it does not have me
i will kick its ass
i refuse to lose
thomas michael kappler

(in reply to Hiskajirah)

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Post #: 1150

RE: Goreans with Disabilities- Support, Advice, Info, V... - 7/4/2009 11:35:59 AM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Thank you Master Thomas

Wishing you a pain eased weekend.

Sincerely,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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Post #: 1151

RE: Goreans with Disabilities- Support, Advice, Info, V... - 7/16/2009 11:43:40 AM

butterfly46107

Posts: 1
Joined: 7/13/2009
Status: offline

If you have a disability, depression, illness or even a fear or anxiety relating to the Gorean lifestyle, do you hide it from your peers? If so why, please? And if not why, please?

Greetings Masters, Mistresses
Greetings kajirae, kajirus

I'd like to know how I'm supposed to tell people that I'm interested in learning from them or want them to be my Master. I have depression and illnesses, but it doesn't stop me from still wanting to be a slave and learning all I can about the lifestyle. I'm just scared of what people will think of me, I'm all about trying to make people happy, and I guess if they know the "true" me I guess you would call it that. But, I don't want them to judge me, just accept it and be supportive with me going through this stuff I have. But, sometimes, I'm sick of the judgemental people, then I don't care if they know, I'll just tell them straight up about my issues or problems, I don't like to call it a disease or illness sounds too extreme in my opinion. I'll tell anyone that would like to know, but I don't really want to share with everyone in a local topic/reply, so if you would like to know, email me on collarme, and I'll tell you. I just ask that you don't judge from other people that you might know with what I have, and say something like, "oh, I've seen this girl or guy do this, you do that don't you?" I just want other people that I'm friends with and other Masters that I'm interested in to know, so if I do something wrong, they will know maybe why I did that.
Thank you, and I wish you all well.
butterfly46107

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/18/2009 9:39:09 PM

snappykappy

Posts: 552
Joined: 3/5/2005
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this is something i usually put into my emails which i send to those about my being on the list for a double lung transplant and going through an evaluation for the go ahead to make sure there are no complications by the transplant team

it is about breathing and was written by someone who had a double lung transplant

i am on liquid oxygen 24/7 and the hi lite of my week is when they resupply the liquid oxygen

i also just cannot get it through my head and into my brain why anyone wants to try breath play or mummification or submersion under water

just the thought freaks me out that they are dealing with a life and death situation

the following was written by an individual who had a
doublelung transplant and was asked what it was like to take
that first big deep breath and not be on oxygen

I guess that breathing, when it is its most natural,
is an unconscious, undirected activity. I've heard,
however, that once you've been denied oxygen, that
breathing is no longer ever unconscious, but that you
forever feel that faint pang of oxygen deprivation,
real or imagined, and that you breathe for oxygen,
rather than as a simple automatic action.

I don't know, though--right now, approximately 42
days after the transplant, it feels like a pretty
unconscious activity, to be honest about it. My
respiration is shallow, almost imperceptable, and
except for my more-rapid-than-normal resting heart
rate, everything seems "normal".

Or nominal, as I like to say. So it really doesn't
"feel" like anything. The thought of it, however,
when I allow myself to think about it--which I tend
to avoid, lest I jinx myself--is staggering.

Unbelievable.

Nearly incomprehensible.

So objectively, it's a miracle, but subjectively,
it's (probably properly) kind of a non-issue.

Does that make any sense? That's why it's hard to
answer the question.

I have to stop and ask myself, "Yeah, what DOES it
feel like to breathe again?", before I can respond,
"Well, it feels GREAT!" The problem is that words
can't possibly do it justice. Obviously, it feels a
whole lot better than it did when I couldn't breathe
AND eat, or breathe AND talk. It's just that language
demeans the experience, like a lot of things in this
world--and I have a degree in English, no less.

wishing u a omg-ridiculously-improbable-can't-f'n-
believe-it-actually-happened
super duper fantabulous awesome day
thomas michael
just a simple wish

i have sarcoidosis it does not have me
i will kick its ass
i refuse to lose

thomas michael kappler

(in reply to butterfly46107)

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/19/2009 6:20:47 AM

Mitzie

Posts: 688
Joined: 9/20/2006
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Thomas

Thank you for posting the above.

I cannot imagine what it is like to be on oxygen 24/7 and I do hope it will all change soon for you and you can once again breathe fresh air

do take care

Mitzie

_____________________________

"The free should not be slave, and the slave should not be free," he said. "I do not understand," she said. "Just as it is wrong for the properly free to be enslaved," he said, "so, too, it is wrong for the properly enslaved to be free."PoG

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/20/2009 11:15:42 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Greeting Master Thomas

This ones prayers are with you always. Thank you for sharing the above.

Sincerely,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/21/2009 1:24:06 AM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Greetings Master's
Greetings Mistresses
Greetings slaves

twinkle's left foot accelerator was authorized and installed on the van a couple of weeks ago. She has been taking driving lessons to learn how to use it properly. Her owner has been giving her these lessons. She has learned enough to be able to back out of the driveway and drive around the block and back to home so far. The device is bolted into the floor board while the actual pedal is able to be removed as necessary. It reverses the traditional driving experience. Instead of right foot gas to break.. it's left foot gas to break on an automatic.

Have received the authorization to switch from Morphine to Suboxone. Will take the last of her Morphine Sunday morning, be forced into withdrawls (am getting help with 2 other meds to do this) and on Tuesday will go back to pain management to do the actual induction. Will be there 2 hours. Will start with Subutex to make the transition to full Suboxone easier. While this is a med to get people off opiates, I'm a clinical trial for the relief of pain. It has been proven in many cases to block pain receptors in the brain. Am a guinea pig to learn from and that's okay. She's never signed her name so fast on the dotted line. Not even with the SCS.

She learned a lot from the FRP and applies all that she's learned every day of her life.

She knows she's boo boo'd with some posts in the past and is really sorry for those that come off a bit wrong. Can only hope that those who knew her 10 years ago, 5 years ago or even 2, learned her enough to know she is so much better that that. Just can't always tell, want to be sorry for it, but have to try hard not to be. Like anything else in life.. it's one day at a time. Will learn as she goes.

Am not sure if it will ever get any better, only want to participate and hope it offers enlightenment to someone, somewhere. If she can accomplish even that much, she did accomplish something. If she's accomplished nothing.. that's okay too, will keep trying.

Love ya all, even when it seems like she doesn't.

Sincerely,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/21/2009 3:47:03 PM

Maahsatti

Posts: 2579
Joined: 8/5/2006
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Hi twink,

You know my thoughts and prayers are always with you and it is my greatest wish that this new med helps you get your life back.

This week was not my greatest to say the least. It started on monday and by wed. I was in the hospital,...well they released a woman who pulled out her own IV and got up to get dressed while bleeding everywhere and with the damnd telemitry stuff still attached.,,,LOL
I could not stay awake, or remember things and was unable to hold a coherent conversation. I was completely rag time...yet they let me leave. I plan on reporting them for starters. I seen my own Doc today and while I am not completely back to normal I am MUCH better, he will be also looking into and helping me report them as well.

Give me a call to let me know how things work out for you hon.

Thomas,
Thank you for the email and the pics, they were great, as are you. You have always been a source of inspiration, not only to myself but to many others as well. You are also in my prayers and thoughts every night. Take good care dear man.

take care toots,
Mistress Maah

_____________________________

Gorean women, whether slave or Free,know, that their simple presence, brings joy to men,and I cannot think but that this pleases them.
Outlaw of Gor, pg 54

(in reply to Hiskajirah)

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/23/2009 12:19:11 AM

Hiskajirah

Posts: 929
Joined: 1/9/2008
Status: offline

Greetings Mistress

Am going to be fine. ~smiles. Will let you know sometime mid-week.

Hope you feel better soon.

Sincerely,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 8/29/2009 3:14:10 PM

Hiskajirah

Posts: 929
Joined: 1/9/2008
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Greetings Master's
Greetings Mistresses
Greetings girls

Greetings Mistress Maah

She is 7 days off Morphine and 5 days on Subutex. Monday she'll switch over to Suboxone. She has never had this much pain relief. There have even been brief moments of time, several times since Tuesday that she didn't feel any pain at all. Minutes and seconds that come and go. The average decrease is 3-4 points consistently. When the dose wears off it does come back hard and fast. It lasts much longer than anything else has ever taken also.

Here is some of what she's learned. Many ask why it's not more commonly prescribed if it manages pain so well. This is what she found out. For it to be prescribed as a detox the doctor has to have a special license and certification to be allowed to prescribe it. For chronic pain the same rule does not apply, but a doc/clinic previously was only allowed to have 25 patients using it. This has more recently been raised up to100. Many are on a waiting list to even get the opportunity. Then one has to go through the induction like she did where it is administered in the office the first day. 1mg is equal to 25mgs of Morphine.

It's been available in the U.S. since 2003.

To be used for pain management or detox (and if the person is already on a drug derived from opiates, like morphine or codeine, or are chemically related to opiates or opium like oxycodone, hydrocodone, methodone, heroin) one has to already be in mild to moderate withdrawals before beginning it.

She was 2 days into withdrawal when she started this Subutex. The symptoms were relieved quickly after induction.

Here's the not so good part so far. She has barely slept, she has little appetite, she's been very spacey, she gets nauseous. It's taken under the tongue where it has to dissolve completely there. Her tongue is sore from the size of the tablet rubbing on the vein under there. And it tastes horrible. The taste alone makes her gag. Suboxone itself is suppose to not be so bad, she does not know that for sure yet.

It's definitely not easy getting used to. (can't talk, drink, eat, nothing, while taking it. It can take 10 minutes to dissolve)

For pain it's a blessing.

Warm wishes,
~twinkle

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

(in reply to Hiskajirah)

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RE: Goreans with Disabilities- Support, Advice, Info, V... - 9/20/2009 4:07:48 PM

snappykappy

Posts: 552
Joined: 3/5/2005
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that is fantastic news twink with the progress u have made are making and will make in the future

just to let everyone know i am heading to madison wisconsin sept 21-25 for the evaluation for a double lung transplant

i have not been fully submitted on the list that is why i am going up just to check and see that there will be no complications

there are a few responses that i envision and some of them are as follows

we will send u home because we feel that u are not that bad off and will have u come back in a certain period of time to reevaluate u

we want to try other drugs on u and see what that will do but keep u here or even send me home and do them

or u are really bad off and u are staying and this will put u high up on the transplant list

so i will not be taking a laptop with me because my caretaker has one and she will be keeping individuals posted her at collar me

i also will not be able to check in on messages so just know that i will feel ur vibes through my senses

wishing u a omg-ridiculously-improbable-can't-f'n-
believe-it-actually-happened
super duper fantabulous awesome day
thomas michael
just a simple wish

i have sarcoidosis it does not have me
i will kick its ass
i refuse to lose

thomas michael kappler

(in reply to Hiskajirah)

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