RE: Goreans with Disabilities- Support, Advice, Info, V... - 1/24/2010 8:14:53 PM
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Cherylmazana
Posts: 1151
Joined: 10/4/2007 Status: offline
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My mother had MS, the progressive type, over the years she slowly grew more and more unable to do things for herself, she had exercises to do to keep herself flexible, but she rarely did them, she had breathing exercises to help her lungs keep capacity so the wheelchair position didn’t compromise them too much, but she would forget. So many things she should have done and so many things she didn’t do for various reasons. As she got worse it became easier for her to ask me to do things, and I did them because I couldn’t cope with the arguments and accusations when I forced her to do things herself, many times I stormed out saying I wouldn’t go back, and because she was my mother I always went back the next day, we would hug say we loved each other and then ignore the problem that caused the fight. Eventually she became a quadriplegic, who needed to be fed by a tube in her stomach, and part of the reason she deteriorated so much I suspect was because she wouldn’t do things that were difficult or pointless in her opinion etc. I still have friends with MS the ones who have stayed mainly mobile were the ones who forced themselves to be mobile, one woman I know has a flight of stairs up to her house from the road of over 60 steps she refuses to move to an easier house even though it would be no problem financially and her family have begged her to because going out every day and doing those steps has kept her mobile. Another woman I know with bad rheumatoid arthritis has kept the use of her hands by forcing herself every day to write even if she had to hold the pen with both hands pushed together. Another with bad polio sadly now diseased may have needed help wiping her own butt, but lord help you if you tried to do anything for her that she could do herself, she kept her independence to the very end when pneumonia finally killed her. I have seen it all from the outside, screamed with frustration and cried tears knowing that once again the easy option would be taken, but the easy option also takes, it takes mobility, it takes ability, and eventually it takes your independence leaving you a prisoner reliant on others. Cheryl
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