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RE: Goreans with Disabilities- Support, Advice, Info, Venting & More!


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RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 8:07:07 AM   
amelliagrace


Posts: 1792
Joined: 8/4/2007
Status: offline
quote:

ORIGINAL: DavidsGem

Camille what a great idea, on the good days prepare food and easy things for the next day. I am going to ask permission to do this. On good days preparing a few extra things would be so much easier on the guilt of the bad days of not making his meals and having things done for him.
 
  


In General -
The slow cooker and pressure cooker and the microwave, verily they are your friends.  A few minutes to get something started that you can then ignore for hours, or something that preps and cooks in 15-20 minutes is the way to go for those with chronic issues.  Save the other things for the exceptionally good days.
 
Another thing to keep in mind is that already having boiled, chopped chicken in the freezer to use in 100 other quickie things makes life easier, while still allowing for home cooked meals.  Chicken pot pie.  Chicken and dumplings.  Chicken and dressing casserole.  White chile.  Chicken soup.  Chicken salad.  And all of them over the course of a week or two, from the same stockpot full of chicken.  Cheat and use boneless breasts and thighs if possible.
 
Cook a ham - even if there are only two or three of you in the household.  The same with a large roast.  Having a meat ingredient for a meal already cooked, cut, and frozen in appropriate sized packages can be a big boon on those rough days......and weeks.
 
There is no law that states one must stand at the sink or counter to peel potatos.  Peeling them in a pan, in your lap, while reading the propped up text book isn't lazy.  It is prudent, and efficient.  Laundry is ever present in our lives.  Do it all the time.....but spaced out.  Socks and towels can be folded anytime, while sitting talking or watching TV.  The things that require hanging may require a little more planning.  Doing smaller loads, more frequently, to reduce standing time while hanging them or putting them away may be helpful.  The opposite is also true - a couple huge loads, one morning, and one evening, on a good day.  Whatever works for you.
 
There is absolutely nothing wrong with looking at a room and saying, "OK, I can manage three 5 minute bursts of heavy activity in there today.  What shall I target?'  I promise you, that if you go all out those 5 minutes, three times during the day, concentrating on the parts of the room that disturbing you most, needing it most, are the "biggies", that the results will be positive.  You will feel better about the chore, and about yourself.  Five minutes a few times in a day is usually far easier to recover from than 30 minutes or an hour once a day.  And it is astounding what you can do in five minutes of uninterupted, concerted effort - especially with pre-planning.
 
Gem -
About that bone spur:
A few chiropractors, and a a few less podiatrists, are now using ultrasound therapy to reduce bone spurs.  I personally know an individual who has had it done, with awsome results.  It might be worth your time to do some research on it. 
 
Regards-
Grace

(in reply to DavidsGem)
Profile   Post #: 141
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 9:49:52 AM   
shykitty1


Posts: 30
Joined: 4/20/2008
Status: offline
Greetings all,

This thread totally hits home with me.  i have Fibromyalgia, and Bipolar and both seem to scare people.  I don't know why it is, but sometimes people try to think of me as my disability, instead of me beside my disability.  It gets very disheartening sometimes.

Thank you,
confuzzled kajira not knowing herself no more
kitten

(in reply to Hiskajirah)
Profile   Post #: 142
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 11:40:03 AM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Grace,

You're amazing. I loved all your practical suggestions. I'm such a goal oriented person. And a perfectionist. I see a goal and I think, "I can't do that." But the message in my head isn't exactly right. It isn't that I can't do that, it is more like I can't do that the way I've done it in the past. So instead of learning a new way, I've just sort of shut down, and that's not helpful mentally or physically. I really appreciate your very literal suggestions for ways to get things accomplished in smaller stages. Maybe in my little OCD sort of manner, I can break chores down in my head or on paper, and discuss them with Himself, and see what his thoughts are regarding leaving things partially done. Sometimes a baskete of socks will irritate him, but maybe if I had a set goal, he'd understand it wasn't a job left incomplete (a big no no for military type guys ya'll) but a job in progress. That's a really neat way to look at it for me, and to help me communicate with him. Sometimes, he gets frustrated with tasks, and instead of letting me leave a half folded basket of laundry, he says, "Just let me do the laundry." Because in his book it's my way or the highway, and his way doesn't leave room for longer pauses between sections of tasks. It has to have time, for me, to get things done though, or I really can't start them as I know they won't fit in his little packets. Thank you thank you!

K

_____________________________

In all things, to thine own self be true.

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Profile   Post #: 143
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 2:16:24 PM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
Greetings grace,
 
You are an awesome lady you know that. I'm such an "all or nothing" kind of person that it had never occurred to me that tasks could be accomplished in small bursts of time. I've taken to doing my food shopping a little at a time according to what i need most, using a relatively small tote bag. I buy whatever fits in there anything else waits. That way i don't weigh myself down too much.
 
The pre-cooking on the good days is something i have dopted. Making huge batches of stuff that can be frozen in portions is something i've been doing for years and it has been a huge help since my pain started getting so bad.
 
BTW today has been an exceptionally good day. I have only needed my pain meds once, Tylenol and Celebrex have been enough. I put it down to the fact that on Saturday i'm having supper with my former Master, with whom i parted on very good terms and who i absolutely adore.
 
be as well as you can be.
 
phoenix

edited to add: As far as laudry goes, i have to schlep laudry down to the laundry room so what i've taken to doing is tying my laudry basket to one of those flat metal carts and toeing it downstairs so that i don't have to carry it. Greatly recommended for those of you who live in apartment buildings.

< Message edited by MontrealPhoenix -- 4/24/2008 2:19:24 PM >


_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to amelliagrace)
Profile   Post #: 144
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 4:14:42 PM   
Karynn


Posts: 773
Joined: 6/8/2007
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Phoenix,

I thought something you said clicked to me too. I hope it is okay to pull your words out in paraphrase. You said something like, "I'm feeling better because I have something I enjoy to look forward to this weekend." I really think that's a key ingredient in health and pain management I've been overlooking and something they've stressed all week at this clinic, and then something we had to PUT IN WRITING today at "Weekend wrap" which is the group time every Thursday. Since it runs M-Th, they have us set goals for the weekend, and part of the lesson included setting up something we wanted to do or were looking forward to trying. I then saw your note and said, "Aha!" because it clicked that it was a practical example of what they said. Thank you for your ongoing participation here. You always say important things I hear.

K

_____________________________

In all things, to thine own self be true.

(in reply to MontrealPhoenix)
Profile   Post #: 145
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 6:54:48 PM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
Greetings Karynn,
 
Thank you so much for your kind words. It's interesting but both of the good days i've had were after something good happened. The first was after spending a great evening with my niece and the second after an email from my former Master confirming Saturday. So i think it's part having something good to look forward to and partly something good happening.
 
One of the first things physio guy did was set a goal for me to reach: to be able to walk home from work every day, something i really enjoy. So there again there's something to look forward to. I really believe that one's attitude has as much if not more to do with feeling better as the physical stuff we do to help what ails us.
 
be as well as you can be,
 
phoenix

_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to Karynn)
Profile   Post #: 146
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 7:59:30 PM   
Hiskajirah


Posts: 929
Joined: 1/9/2008
Status: offline
FR

Greetings Mistress? Grace
Thank you for the post on the pre preperation of foods. While I have done this in the past, I need to start doing this again. Your reminder to me was needed and for that I'm grateful.

Greetings gem and camille
Thank you both also.

Greetings Pheonix
I'm glad you have something to look forward to as diversions do often relieve pain. Good luck! And I wish you the most tranquil and wonderful time.






Our new furniture will be delivered either tomorrow or Saturday, so I'll need to be moving the inflatable camping mattress, my little breakfast/serving tray which I place my laptop on and all the other little things I've accumulated on this bed (tons of pillows) out and into our room. I don't think I will be able to access internet in there. So if I don't see you for a few days, our new phone and dsl and cable will be on by next Tuesday. Maybe some could help post new questions people similar to the way I did the "coping strategies one" beginning in bold so people know it's a new question. I would appreciate it. I don't consider this my thread,, it's equally all of ours. smiles

I'm hoping that I can find a place in my room (already tried, but not back towards the window) that will let me access the wireless, but if not, will see everyone in a few days after saturday. I could always come back into my sons room for maybe a half hour at a time, but don't want to take his new room over, not once his bed is delivered and he's already made new friends.

I'm beginning to feel like a drug addict (perhaps I have been) because I must count my pain pills twice a day just to make sure I  have enough to last me to my next appointment at the pain clinic on Monday. And if it takes a day to fill a new kind, oxycontin, possibly........... I will be so um screwed during the wait. But will find a way to manage.

xoxo
Please be as well as you can be,
Sincerely,
~twinkle

Pain is universal... But so is hope!

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

(in reply to MontrealPhoenix)
Profile   Post #: 147
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 8:32:46 PM   
Karynn


Posts: 773
Joined: 6/8/2007
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twinkle,

I don't know if this message is going to arrive on time to get to you before your change in furniture etc, but I'd like to please please ask you consider NOT doing any of the physical moving yourself. If you're counting pain meds, no matter how perfect you want to set the room, or rearrange things, or get it just right, it's not worth the cost it will take to make it happen. In my neighborhood there are always youngsters out and about on bikes and in their driveways shooting hoops. I know some of them by name. They come over to play in the yard at times when the whole world is here for football season. I've had one help with my lawn. My children hate the lawn and I don't want teens doing a messy terrible I hate you job on something I love when another child will appreciate 10 dollars to help me with a project. Maybe you have options like that in your neighborhood or friends, or family. I hope you do. I really want you to be happily settled, and I know that many of us would be thinking, "Set this goal, this goal, this goal, done by Sunday..." Blah! I don't want you to tweak something more intensely then would normally tweak because of this unusual weekend you have planned. I will be whispering softly words of comfort and prayer for you, so that the days pass miraculously and your meds last as you need them to last.

My best,
K

_____________________________

In all things, to thine own self be true.

(in reply to Hiskajirah)
Profile   Post #: 148
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/24/2008 8:55:12 PM   
Hiskajirah


Posts: 929
Joined: 1/9/2008
Status: offline
Greetings Mistress

Thank you. You're right, I really need to take it slow and pace my physical time. I do have an 11 year old son who has made a few new friends from his own age to 14. One actually has already offered to help with the new furnature arrival. My Master will be home the next 5 days after he ends his shift in the morning and will be doing all the heavy stuff, it seems lately, I'm not sure if it's the weird change in weather bouncing from the 80's to the 60's and back and forth or if it's the inflatable bed or the fact I've been sittting in a semi indian style everytime I'm writing online. My butt hurts so much and I think I've tilted my lead/wire some that's wrapped around my spine, I'm getting some additional discomfort, but it's uncomfortable leaning on my right butt cheek as is since there's metal hardware in there. I just call it a box lol because that's what it feels like and is similar to the size of an average cell phone.

I'm stressing also that because we are on the county split and are not longer with ATT and during our last temp move prior to coming here, I lost several websites that that log in and password was the isp dsl account and had to rebuild my crpsadvisory one all over. It was previously rsdadvisory and rsdadvisor.coms which still work but are forwards from the domain control panel. I don't have the energy to back my site up, I took me so much time and effort to get it back up as is and is even better now.

I'm leaving the phone on in the other house for a few more days, so I can figure out what I'm going to do and so I'll still be able to access the sm bus server. I'm kinda losing my mind over it all. Maybe I can find someone I can trust that is familiar with the servers (Yahoo Bus) to do it for me and I'll give them my info. Am even considering that to get it backed up. I'm just lacking motivation and the mindset because it's causing me depression and at the moment nearly lacking my allotment of Lortabs, I dunno..... Mistress... I'm just not making myself do what I "have" to do. I just want to sleep.

I know happiness will come when it sets in that this is our home. Right now it's like we're camping in it. Since on Master is moving things from the other home. We have about 6 more days paid there, possibly until the 7th but my daughter who is on the lease there will have to call the Landlord and see since we did pay for 30 days. At most I think they would only prorate us any extra days. I already purchased brandnew window blinds for most of the windows over there and just want it clean when everyone is out of there.

I've been laying in my sons new room, sometimes up in indian style, left leg in, right sprawled out, just to communicate with others. I'm just not having decent pain days and I couldn't get into my Pain Managers office early.

Thank you for your advice and I will take your advice.

Respectfully,
~twinkle

Pain is universal... But so is hope!

_____________________________

"Do not try to force me to be what you want me to be! Accept me for what I want to be,&am!—one who knows she belongs at the feet of men!&desires to be at the feet of men!-their slave!!—their loving slave!” Witness
www.CRPSAdvisory.com

(in reply to Karynn)
Profile   Post #: 149
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/25/2008 12:34:37 AM   
Totalmaster4you


Posts: 1359
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Tal and Greetings to all who lurk, post or just read this thread,
 
As is usually the case thinking people all have the same information because of the time they've spent dealing with pain is a wrong assumption. Therefore I'd like to share some of the things taught in a pain management class. Firstly one needs to retrain themselves when it comes to any project. That means instead of working til the projects done you have to work in 15 to 30 minute bursts. One should rest twice as long as one worked or whatever equation works for you as an individual but start at resting twice as long as you work.  The next thing I'd like to suggest is bio-feedback. This has you sitting or laying in whatever position is most comfortable. One can think about the problem area and reducing the pain gradually. Mentally chanting the pain is 10% less over and over then 15% etc. Or you can have a non pain area surrounding the pain and cooling it off or calming the pain etc. When one actually does this in a session your area is wired and you can view the results afterwords and actually see the feedback and the pain drop down. So trust that this can work. If you have pain management doctor make sure that you base line medication compliments the breakthrough pain medicine. For example if your Oxycontin lasts 6 hours your breakthrough med say percoset or vicodin needs to act quickly and drop off quickly as the oxycontin is the long lasting pain killer. A better match might be the oxycontin lollipop as a better match. This is a pain specialist is supposed to know and help you with. If I've confused anyone with this post feel free to write me on cmail for more explanation.
 
I wish you well,
Touchyourmind

_____________________________

Sometime ago I decided it was time to change my nic. However I didn't wish to disconnect from my original profile. Since then I've signed Touch your mind (TYM or Tym). Opinions in my posts should be taken as my opinion and my opinion only.

(in reply to Hiskajirah)
Profile   Post #: 150
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 4:41:12 AM   
camille65


Posts: 5310
Joined: 7/11/2007
From: Austin Texas
Status: offline
The bit I quoted from you below worries me some. Having to go a day without oxy or morphine can be dangerous hon, you can hit physical withdrawl and trust me it is NOT a good place. Can you occasionally skip one dose and save a few up? Please please know that if you end up having to wait a day or more for new meds you will make things worse. I forced myself to hold back a dose every 4 days until I built up 5 days worth. Last year I had to wait a week for fentynal and I hit withdrawl, a friend (gods bless him) that I hardly know came over and literally held me while I convulsed. I did not know how dangerous it was and I do not want you to go through that. I'm going to CMail a thought to you, because this worries me so. 
quote:

ORIGINAL: Hiskajirah

I'm beginning to feel like a drug addict (perhaps I have been) because I must count my pain pills twice a day just to make sure I  have enough to last me to my next appointment at the pain clinic on Monday. And if it takes a day to fill a new kind, oxycontin, possibly........... I will be so um screwed during the wait. But will find a way to manage.

xoxo
Please be as well as you can be,
Sincerely,
~twinkle

Pain is universal... But so is hope!


_____________________________


~Love your life! (It is the only one you'll get).




(in reply to Hiskajirah)
Profile   Post #: 151
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 5:10:14 AM   
Karynn


Posts: 773
Joined: 6/8/2007
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Tal ya'll,

This weekend has already been harder for me then I would have thought. All week I had myself up and out of bed for those 4 hours and when I came home, my body and mind were still wound up from the seminar and information and likely metabolism kicked into gear so physically I was 'up' too. I know that some of that was adrenaline, pushing myself to make it there because I knew the benefits outweighed the costs. I wanted the results, and I need to know a lot of things I've learned already. If I miss one day, I may be excused from the program. If I miss two days, I will be excused from the program. It doesn't leave a large margine for error.

Yesterday was my first day 'off' and I woke with a reasonable sense of having had a good night's rest. It's not common, by the way, to wake feeling somewhat refreshed, so I enjoyed it and got up to get a few things done. I was successful, and about the time I used to get sleepy before last Monday (about 930 or 1000 a.m) I started getting sleepy. By 1030 I couldn't keep my eyes open. I finally yielded to the need to rest. I did so and was awake again at noon. That was fairly typical, and I wasn't beating myself up for it. I was just tired, I guessed, from the week catching up to me. Except then I was awake again about 3 1/2 hours and again hit a physical wall of exhaustion. Part of the way my pain manifests itself in my life is a chronic fatigue associated to it. Because I'm in pain even when I finally sleep, I don't sleep deeply enough so I'm not getting good REM sleep, thus still tired even when I've slept... so back to 4 p.m. yesterday. Again, unable to keep eyes open. At this point, I apologized to Himself. I felt badly because I was giving up time to be with him in favor of sleep. I always dislike that. Anyway, I didn't wake up again till 8 p.m. 4 more hours had gone by and bam. Finally I slept again last night, my normal 12 a.m. till about 5 a.m.

Now I'm on Saturday, day two of the tween days, between Thursday's last class for the week and Monday's first class for the week. I'm so upset with myself for sleeping yesterday. I thought I was making much better progress with the program. The very first day I'm not in it, I'm right back to sleeping and feeling tired even after sleeping. Today one of my goals is to get outside and work with plants. I want to freshen up my rose garden, weed out stuff that doesn't belong and fertilize for the new season. I have jillions of blooms on my climbing rose that has only bloomed once since we moved here in 2001. I didn't buy that one, by the way, but inherited it with the house. Every year that it hasn't bloomed, it has grown lush and tall and proud and defiantly green. It's neat to see literally hundreds of micro buds hanging there, just waiting for the right morning to wake. After I get my roses settled, I want to put in annuals, some in the front but most in the back where I can see them and enjoy them most. I used to worry that my plants and the football that the entire neighborhood used in my backyard would see calamity but those years are nearly passed and never once did those boys do any real damage.

Maybe once I get out of the house this morning (everyone is still sleeping here) I'll feel better about things. And maybe they'll tell me sometime next week that this Friday's reaction was normal and part of the program. I'm so hard on myself, determined to make the best of things, and expectational about plans for anything related to me. I am investing this much time in this program so I must get this much result out of it, or I'm wasting everyone's time. (That's the words I say to myself inside my head.)

I think this is the closest I've come to a rant in a long while and I appreciate the place here on this forum to share the rant with others who care and can understand. I know rationally that I'm not going to undo 3 or 4 years of chronic pain in 4 days, but it feels so simple when I have their PT staff right there holding my hand, or the psychologist right there answering my this this this. Well, it's Saturday, and I'm ready to see what I can make of the day. I hope that 50% of it is spent in some form of activity. Maybe that's a reasonable goal.

My best to all of you, and twinkle, I echo what camille has shared. If you really are that close to running out of meds, and before you do hit that literal brick wall she was warning against and I imagine you know about as well, maybe you can do some stop gap measures. Either plan ahead of time the best time to hit your ER and not have to wait for treatment to get a dosing of pills to fill the gap, or plan on talking to a nurse in your family physician's clinic - otherwise called GP I think - or whatever it takes, so that you're NOT measuring every breath you take so succinctly that it is actually holding you hostage in your own mind and body. That sort of stress isn't good for you now and it really really isn't good if you do get to a point where your meds are gone. camille's suggestion was a good one ** for anyone who's reading this. If you can measure out your pain meds in such a way that every so often you have a semi-good day and you think "I can do this with only one instead of two" do it. Save one of your empty pain pills bottles and put ER on it or some red stars or whatever it takes. Each time you're able to go with 1 instead of 2, put that extra one in the ER bottle. Then if you go on a trip, you have some stored up so you don't have to go to a foreign city's ER (and by saving the correct Rx bottle, you're allowed to travel with the meds in your possession too, very very important detail). Or if you find yourself unable to make an appointment the right week with the Phy, you can wait till the next Monday when the receptionist can fit you in, without panicking.

Ya'll are all in my thoughts as I get wiggling and blood flowing this morning. You're a part of my personal introspective time each day, with prayer and warm fuzzies sent over the miles. Thank you for being there, on the flip side, for me.

K

_____________________________

In all things, to thine own self be true.

(in reply to camille65)
Profile   Post #: 152
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 5:27:56 AM   
camille65


Posts: 5310
Joined: 7/11/2007
From: Austin Texas
Status: offline
Karynn I just had a thought while reading your post. Would it be possible to record your sessions so you can review them once the exhaustion/pain has passed a bit? I did that for physical therapy, I set a video cam up so I could watch how I needed to exercise properly. A huge problem for me is memory, remembering what I'm told be it by a doctor or PT person. I've been thinking too about the once a month cooking. OAMC, there are a ton of sites and blogs on this. http://www.recipezaar.com/recipes/oamc-freezer-make-ahead 
http://www.realfood4realpeople.com/oamc.html 
http://hardys.freeservers.com/links.htm The last link posted is the 'links' page from an OAMC site. Granted most of us here haven't a lot of energy but if you plan ahead or get a friend to help you can pull together a lot of meals that are just waiting for you. It can even be a fun shared thing with friends. Processed foods, frozen dinners and the like are not healthy for us. Staying away from chemicals and preservatives will truly make a difference in your body. Eating healthy things really does give you better fuel. Plus knowing you have meals ready will help lessen some of that 'I can't get things done' stress. Anything that gives me a jumpstart helps. It is so hard feeling like you are slacking on things even though one has no choice. For me it causes huge internal stress so I've been finding ways to avoid it. I know mentally that I'm not lazy or slacking but dang when I see laundry piled up or when I have to serve canned soup it sure feels like failure. Prioritize it all, understand the world won't end because there is a mountain of dirty socks.  This thread... has made me smile & made me cry.  

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~Love your life! (It is the only one you'll get).




(in reply to Karynn)
Profile   Post #: 153
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 6:15:53 AM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
Greetings Karynn,
 
I just finished reading your post and what struck me is how you are your own worst enemy in all this.  Please don't beat yourself up over needing all that sleep, it's nothing more than your body getting the rest it needs in order to heal. Staying up in order to attend that seminar all week put a great strain on you, your body is simply trying to put things right, there is nothing wrong with that. Perhaps the benefits of the seminar are meant to be over the longterm not right away.
 
What worries me most is your plans to spend so much time in the garden. I hope you will take time to rest throughout so that you don't undo the good you've achieved and end up in bed for weeks. Remember what Touch said, it's important to rest twice as much as you work. You told twinkle not to do the hard stuff on her own and here you are pushing yourself to do more than you may be capable of. Please be careful not to do too much, it worries me that you are punishing yourself for sleeping so much yesterday.
 
be as well as you can be,
 
phoenix

_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to Karynn)
Profile   Post #: 154
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 7:04:09 AM   
simplyfyre


Posts: 54
Status: offline
Tal Ya'll

I came here looking for 'something' on dealing with ,well, it doesn't matter anymore.

I caught a quote within a quote...anyway

Please be careful of the oxy..........ecpecially if it taken with methadone.........

yeah your pain will no doubt be gone but for long term look into other avenues for pain management if at all possible.

spoken from someone who lived with a man's changes on these very meds............

be well
Fyre


_____________________________

I know of no language in which the truth may be spoken. The truth can be seen, and felt, and known, but I do not think it may be spoken. Each of us learns it, but none of us, I think, can tell another what it is. 8 145



(in reply to camille65)
Profile   Post #: 155
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 10:56:33 AM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Tal Phoenix,

Thank you for your kind words. Your note pointing out my very good advice to someone else applies to me - well that's just very good, and I'm appreciative. I often find that I'm the best at council to others but don't take my own advice.

Tal Camille,

I loved your words too and advice about once a month cooking. I agree that home cooked meals and prepared foods like home soup vs. canned, etc. are better for the body. Over the long term, I think if we can somehow strike a balance, its better than not trying at all. What I've begun doing is a multi-shop. I go to the store and I think first I need ingredients to make three meals from scratch. I generally get to 3 meals in 10 days, that I prepare from fresh meats and veggies, and very little processed or canned at all. I prefer to cook potatoes with skin on, boil then whip with a bit of whole milk and salt/butter to taste. Then I think, okay I need 3 meals that I can put together easily. That might include a meatloaf pre-cooked at the deli and some stir fry veggies. I still make them, but some of it comes from a can and/or someone else's cooking. Then I have a section of food shopping that is for Himself to cook. He'll put meat, starch, veggies and fruits on the table, but they have to be easily handled, not too complicated, and then he hollers down the stairs to me every five minutes about it. He learned to cook the basic necessities like canned soup and grilled cheese, but not much in the chef lane. Another thing he loves to make are things like pancakes and omelettes. So once in a while, instead of making dinner, he'll do breakfast for dinner. It makes everyone happy and minus the sausage/bacon, the food settles better than anything else on my stomach. Lastly, I purchase a few very easy foods or even prepackaged freezer dinners that the guys will make for themselves. Himself comes home from work exhausted, goes upstairs and warms up miso soup (his favorite foreign soup). I'll eat pudding or applesauce. Neither of those are really anywhere close to filling up a 17/16 year old pair of monsters. By shopping with layers, I prepare for every contingency and generally need to restock every 10-14 days. The only odd things come along are milk and bread, and any of us can grab those while doing other things.

~~~~~~

Gardening-

I woke this morning with the enthusiasm of fresh spring air just beckoning to me. I was far more excited though than energized. I could tell before I ever got out of bed at 6 that I was going to end up doing a bit less than I had hoped. By the time I read your note Phoenix, I had already shaved a lot off my list, just because I literally couldn't do it.

What I ended up doing was working on graphic arts for a few hours this morning while I watched Himself sleep. It was the first time in months he seemed comfortable enough to sleep in, and 10 a.m. came and went and he was still asleep. I don't think I've seen him sleep past 7 in a year or more, so that was a blessing of an odd and immeasureable kind. When he finally started stirring, the Yorkies and I all three were bouncing, bouncing, get up get up, let's goooo. So he got up, and we left.

My goal was supplies at Lowes, plants at Lowes, a nice light early lunch out, then home to plant and play in dirt. Well we didn't get to Lowes till 11 and well, so did the other 99% of the people in Charlotte. He HATES crowds, so we didn't do Lowes. I was slightly disappointed but more glad to have him out with me then out with a specific purpose so I took a deep breath and suggested we go by a mattress/bed store. He's been asking me to go with him to look at styles of king beds. We did that and for once, not a single vulture sales person pounced. That was a blessing. Put him in a better mood. We headed off to Showmars and got stalled because we passed a Chinese place on the left and ended up making a U-turn. He's been craving Chinese take out for weeks. I've not felt well enough to get out and explore to find a local restaurant. Well, it wasn't open yet! So we'd already made a U-turn and decided to explore behind it, to see what else was there, and we found a Home Depot with plants everywhere and not a planter in sight. Yay! So I got out of the car, took my little buggy off to hunt, and realized GOSH I'm really tuckered, so we droove the little buggy all the way to the back corner, picked out 6 tomatoes, 4 pepper plants, and 6 different herbs for my herb garden. No flowers. No new roses. No mulch. No new soil. Nothing for the ground. Nothing complicated. LOL It was a very very modified mini-shop. -deep breath- Then we found a very new, just opened 2 weeks ago, Indian foods shop, India as in near Pakistan, and I'd never had Indian food. Himself loves it, and told the fella to go easy on the spices for mine, and ordered for us. We had the entire place to ourselves, private dining. Our own waiter. He educated us about what we tried. We got a sampler, and I loved it.

Now, I'm home, plants are in the wheelbarrow, and I'm not even going to think about trying to put them in the ground today. The magic barrels and pots that I inherited from my mother will wait and bake in the sun one more day. I told you all about my magic pots sometime last summer. For those who don't know, my mother was an incredible gardener. When she was very sick, she had a motorized wheelchair and the spirit of the woman who'd always been so full of life. Daddy helped her modify gardening by putting pots at wheelchair level, she could use for tomatoes, flowers, cucumbers, whatever her green thumb desired. I inherited them. I am NOT a gardener. I grow wilted little sickly things. They eventually cease to resemble a plant. Except now... that I have her pots. I keep saying that she blows on them from heaven and smiles on them and cries on them, just as she always did here when she was with us, and her energy resides in the pots. I now have had 2 seasons of really beautiful flowers, tomatoes, herbs, peppers, and really anything I find that I love to try, quite happily grows in her pots. An amusing side note. We tried to get two smaller pots, for a couple of other uses, adding to my array of planters on the porch. They did not originate at her house. They did not work! I had a real chuckle at that, and continue to just use mother's pots. One exception is my roses. I loved them and grew them in Florida. They were not really happy or healthy for much of the spring/summer season there, but when I began planting roses here, they were heartier and happier. I think it is the heat difference. I love roses. I'll just get my monsters to do the weeding there and maybe do that in exchange for a new Wii controller. Everyone's happy and I don't overdo.

It's really difficult to slow down and change pace. It's difficult to have that sensation of knowing I could have done so much more in a day before being tired in the past. I want that same level of output but just-- well just not possible most times now. Acceptance came up a few pages ago from one of our participants and to me, it is something that takes negotiations even now. I think I've accepted limits, and then spring rolls round and I think, okay I have to accept this and this and this now.

I hope you all are enjoying your Saturday. I'm plum tuckered, and going to rest a while.

My best,
K



_____________________________

In all things, to thine own self be true.

(in reply to MontrealPhoenix)
Profile   Post #: 156
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 11:00:09 AM   
Karynn


Posts: 773
Joined: 6/8/2007
Status: offline
Tal Fyre,

I take it based on what you've said since your return to the boards (by the way welcome back!) that you have relocated and are not living with the one you mentioned here, the one dealing with the life changes and effects of medications. What you said struck a chord to me. Many of us so far have been speaking first hand, for our own pains and worries fears and changes. But there is a flip side, and that's the people who are our loved ones, or Goreans who come to the board who's owner or slave deal directly with pain and in that, they also have to deal with it. I think the people who are around me deal with so much more than I actually have to face, questions, fears, doubts, worries.

~~~~~~

twinkle-

Maybe when you are settled in with the move, you might consider adding a loop here or encouraging a sort of support network for those who have loved ones who fit into this category so those who were in a situation like Fyre described, or are currently, can discuss their worries and interact as well, in a way that encourages while maintaining that Gorean focus as well.

K

_____________________________

In all things, to thine own self be true.

(in reply to simplyfyre)
Profile   Post #: 157
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 11:35:38 AM   
MontrealPhoenix


Posts: 1526
Joined: 2/27/2008
Status: offline
Greetings Karynn,
 
I must say that i'm relieved that you didn't even try to do what you said you were going to do. I think the best thing to do is listen to what your body tells you, if it's saying "I'm too tired/in too much pain to do this" listen. By resting now you may well find you can do at least part of it another day, in fact you may find you can do more by not pushing yourself to do what you think you SHOULD be able to do. Because the reality is that you just CAN'T do what you once could. I do understand that acceptance comes hard and takes time.
 
I AM glad that you and your Master had a great time out and about. I sensed the smile on your face as you wrote about it and you sound happier than you have for a while now.
 
Apparently you are only meant to have healthy plants and flowers in those pots. It made me laugh to read about them and your inability to keep plants alive and healthy anywhere else. Personally i kill plants by looking at them and since i live in an apartment with a plant eating cat i don't even try any more.
 
I also understand it being easier for you to give advice than to take your own advice. I'm exactly the same way. The other day i gave a friend shit for not taking her meds. Later on i was putting off taking my own then realised i was being a hypocrit and took them. I'm so much better at taking care of others than i am at taking care of myself, i always have been. I suppose that's why i'm so comfortable with being a submissive/slave, i'm happiest in a relationship because then the focus is on taking care of my Master and not on me.
 
Take care of yourself, Karynn, there's only one you and you are precious.
 
be as well as you can,
 
phoenix

edited to add: as far as food prep goes, i'm lucky i live alone so there is only me to consider. On good days i prepare huge amounts of freezable healthy food so that i have something in the freezer for the bad days. I tend to shop a little at a time so there is nothing heavy to carry.

< Message edited by MontrealPhoenix -- 4/26/2008 11:38:08 AM >


_____________________________

"Only in a collar can a woman be truly free"
~Tribesmen of Gor ..pg 75

"He who ties a woman owns her"
~Guardsman Of Gor pg 267



(in reply to Karynn)
Profile   Post #: 158
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 4:47:01 PM   
smilezz


Posts: 2156
Joined: 6/18/2004
Status: offline
=fast reply=

I sit here and read and sometimes re-read what all of you have written. I don't know where your strength comes from, I don't know how you do it. I have always been and am still quite a strong woman, and I am no where near where y'all are in acceptance of dealing with.....stuff.

Y'all are an inspiration.....

thank you,

~smilezz~

_____________________________

=It's not my fault that when I was a baby I was dropped in a box of Glitter & I have been shinin' ever since=

�*:-.,_,.-:* � �*:-.,_,.-:* � �*:-.,_,.-:* � �*:-.,_,-:* �

(in reply to Karynn)
Profile   Post #: 159
RE: Goreans with Disabilities- Support, Advice, Info, V... - 4/26/2008 5:35:36 PM   
ryssa


Posts: 501
Joined: 8/20/2006
Status: offline
quote:

ORIGINAL: simplyfyre

Tal Ya'll

I came here looking for 'something' on dealing with ,well, it doesn't matter anymore.

I caught a quote within a quote...anyway

Please be careful of the oxy..........ecpecially if it taken with methadone.........

yeah your pain will no doubt be gone but for long term look into other avenues for pain management if at all possible.

spoken from someone who lived with a man's changes on these very meds............

be well
Fyre



For what it's worth, I just wanted to say that Fyre is right in saying "be careful"...my Uncle died in his sleep after taking methadone and other pain-killers.  He laid down one night, as usual, and never woke up..his heart stopped.

<edited for spelling>

< Message edited by ryssa -- 4/26/2008 5:57:17 PM >

(in reply to simplyfyre)
Profile   Post #: 160
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