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PCOS? - 7/26/2007 4:38:30 PM

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My doctor told me I might have polycystic ovary syndrome. She said that it sometimes goes hand in hand with some of my other health problems. I am just wondering if I should ask for the tests they have or not. I would like to think she would take the initiative but maybe I need to be the one to do that. Also, if anyone knows much about pcos, I would love to hear more about it. Thanks.

edited to add: please don't get too upset with me on this one, this time the doc told me this.

< Message edited by zindyslave -- 7/26/2007 4:39:16 PM >

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RE: PCOS? - 7/26/2007 6:51:04 PM

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I have ended up learning more than I wanted to about PCOS. A previous submissive of mine had it and my current slave does as well. From what I can gather, it is hereditary and there seems to be two sides of it. I call them the good side and the bad side, even though they both technically suck. bad side: very frequent or constant menstruation and weight gain. The previous subbie had it this way and she nearly bled to death, orange size cysts on her ovaries and then a minor stroke from overprescription of birth control to stop the bleeding. good side: no menstruation, reproductive system pretty much shut down. Mood swings (not bipolar levels) and body hair growth, commonly on chest and back. If you need more info or clarification on anything, let me know, and yes take lots of tests, full bloodwork, everything. PCOS is like fibromyalgia, it is easily missed by most doctors so now that you found one that recognizes it, verify!

(in reply to zindyslave)

RE: PCOS? - 7/26/2007 7:24:12 PM

sleazybutterfly

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quote:

ORIGINAL: shadevarr

I have ended up learning more than I wanted to about PCOS. A previous submissive of mine had it and my current slave does as well. From what I can gather, it is hereditary and there seems to be two sides of it. I call them the good side and the bad side, even though they both technically suck. bad side: very frequent or constant menstruation and weight gain. The previous subbie had it this way and she nearly bled to death, orange size cysts on her ovaries and then a minor stroke from overprescription of birth control to stop the bleeding. good side: no menstruation, reproductive system pretty much shut down. Mood swings (not bipolar levels) and body hair growth, commonly on chest and back.This is the good side how exactly?? If you need more info or clarification on anything, let me know, and yes take lots of tests, full bloodwork, everything. PCOS is like fibromyalgia, it is easily missed by most doctors so now that you found one that recognizes it, verify!

I have PCOS, it's not the end of the world. You do need to ask for tests to confirm that is what is causing your problems. While for some not having a period is a blessing, it's not so when you are trying to have a baby (like we are). It can cause you a lot of problems in that area. It can also cause mood swings, even borderline bipolar. It just gives you way too much testosterone, and that can cause the body hair, or even thinning hair on your head. It can also cause cysts, but those aren't as hard to remove now as they used to be (I had surgery once). It does have something to do with weight, but I have noticed that most people I know that have it are overweight. I am not sure which came first, the chicken or the egg. So many that lose weight will also lose some of the symptoms of the PCOS.

There are pills that can help, so for sure look into anything you can.

Good luck.

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RE: PCOS? - 7/26/2007 9:56:35 PM

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Well, I have insulin resistance which can come along with polycystic ovary syndrome, I have had problem getting pregnant, I am over weight. They put me on metformin (glucophage) for my insulin resistance which they also treat PCOS with and it is helping me lose a bunch of weight. I have bi-polar so I don't need anymore mood swings...but that does explain my bitchiness lately....lol...also I have never really had regular mentrual cycles...until I started the metformin, and this month it is extremely heavy...actually to the point of scaring me, but the doc didn't seem to worried about it. So, I guess I will be calling the doc tommorow and making an appointment for next week, to talk about the possiblity of PCOS. I don't know if I have too much testosterone (sp?) or not, since I don't really have excess hair anywhere I do have some thicker hair than should be on a woman...in places. So maybe that is why....I just love my doctor because she has found health problems that could have been diagnosed a long time ago and all the other doctors either missed it or didn't give a crap. So, I know I definately have a good doctor. Thanks for the info....just needing some guidance, and I might even need support in the future...but at least these things are answering questions for me.

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RE: PCOS? - 7/26/2007 9:59:50 PM

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Check out the site soulcysters.com the first time I went on there and saw others with all of the same symptoms it made me cry.
I took glucophage for a while but I found that it was giving me bags under my eyes and making me feel ill so instead I just shifted my diet to almost zero sugar. The tests aren't so bad, its just a blood test where they look at your hormone levels. Its actually a good thing to be diagnosed, suddenly things will seem to make alot more sense!

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RE: PCOS? - 7/26/2007 10:18:29 PM

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Well, her telling me it is possible that I have it, kinda makes things click. Ya know the irregular periods, why I haven't gotten pregnant, even tho part of my family is very very fertile.....the weight gain and having a hard time losing weight. What is really surprising me is that i haven't really changed my diet unless it is unintentional, and I am still losing weight. I am just trying to figure out what I will do if I do have it since it seems possible. Thanks for the site.

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RE: PCOS? - 7/26/2007 10:35:42 PM

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Love the new pic! Very nice!
:))
LH

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RE: PCOS? - 7/27/2007 3:56:37 AM

sleazybutterfly

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quote:

ORIGINAL: zindyslave

Well, I have insulin resistance which can come along with polycystic ovary syndrome, I have had problem getting pregnant, I am over weight. They put me on metformin (glucophage) for my insulin resistance which they also treat PCOS with and it is helping me lose a bunch of weight. I have bi-polar so I don't need anymore mood swings...but that does explain my bitchiness lately....lol...also I have never really had regular mentrual cycles...until I started the metformin, and this month it is extremely heavy...actually to the point of scaring me, but the doc didn't seem to worried about it. I had never had them either until I was put on something. The periods, especially the first few were very heavy and also had horrid cramps. They changed my meds and that did seem to help. I actually thought I would bleed to death, (they were that bad), but that has calmed down at this point. I am sure more meds are in store, like yours, I have a new Dr and they are checking for things my other one never even thought about.So, I guess I will be calling the doc tommorow and making an appointment for next week, to talk about the possiblity of PCOS. I don't know if I have too much testosterone (sp?) or not, since I don't really have excess hair anywhere I do have some thicker hair than should be on a woman...in places. So maybe that is why....I just love my doctor because she has found health problems that could have been diagnosed a long time ago and all the other doctors either missed it or didn't give a crap. So, I know I definately have a good doctor. Thanks for the info....just needing some guidance, and I might even need support in the future...but at least these things are answering questions for me.

I would say that is what is causing fertility problems for you though. We have been trying for months and nothing yet. It's my hope and prayer that getting on all of this fixed will allow for that to happen next year. Glad you have a good Dr...those aren't alway easy to come by these days.

I have bipolar also, I am curious to see how getting all of the PCOS treated though will actually do help with that. I have wondered since I found out what it does to the hormone system exactly how much of what I have is bipolar and how much has to do with this. You might find somewhat of the same thing as time goes on.

Best wishes.

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~Flutterby
~Curvylicious
Just when the caterpillar thought the world was over, she became a butterfly.
Life is not a popularity contest, it's better to be hated for what you believe, than loved for a lie.

(in reply to zindyslave)

RE: PCOS? - 7/27/2007 4:02:50 AM

sleazybutterfly

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quote:

ORIGINAL: curvyslavegirl

Check out the site soulcysters.com the first time I went on there and saw others with all of the same symptoms it made me cry.
I took glucophage for a while but I found that it was giving me bags under my eyes and making me feel ill so instead I just shifted my diet to almost zero sugar. The tests aren't so bad, its just a blood test where they look at your hormone levels. Its actually a good thing to be diagnosed, suddenly things will seem to make alot more sense!

Thank you so much for the link, I had never heard of that website before. I have already been reading it, it's nice to know I am not alone.

I keep seeing tests...I know needles will be involved...I just keep telling myself it will be worth it if that means I will someday get to hold our baby in my arms.

_____________________________

~Flutterby
~Curvylicious
Just when the caterpillar thought the world was over, she became a butterfly.
Life is not a popularity contest, it's better to be hated for what you believe, than loved for a lie.

(in reply to curvyslavegirl)

RE: PCOS? - 7/27/2007 9:01:37 AM

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Thank you LadyHeart

.
Sleazybutterfly, I have been on the metformin for a few months now and the first 2 months I didn't have a period at all, then last month I had one it wasn't actually heavy it was just longer than normal. but this time it is very heavy, I usually only have to use like two pads a day and I had to use 4 in one day.....so that scares me..obviously I think it would anyone. The metformin is also controlling my insulin resistance my Ac1 count before I started the meds were close to 6 now they are 4.5 which is great. I have been trying for 3 years to get pregnant and I finally gave up trying, if it happens it happens. I am going to the doctor next wednesday so hopefully by the end of next week I will have my answers to whether I have it or not. Well, I have noticed right now I am really crabby and it is like untreated bi-polar in the fact that I can just snap. I am on medicine for bi-polar so that isn't good, I don't want to be put on more meds for bi-polar if that isn't the problem, but thankfully I should know by the time I go to the psychatrist. I am just kinda unsure about how I am gonna feel if it turns out I do have it. I have been reading on that site also, thanks again.

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RE: PCOS? - 7/27/2007 11:47:36 AM

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i KNEW there was an insulin thing! (does a little dance) all the symptoms added up!

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RE: PCOS? - 7/27/2007 12:05:19 PM

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hey zindy,
i have it also. i would strongly suggest talking to your doc about birth control. it was a god send for me. it regulated my hormones and helps keep my periods regular. it also helps keep them normal. you arent running around all Charles Manson like. i know that i can tell the difference when i am not on mine.

my cousin had PCOS also. she ended up having to have everything taken out. i know that i am going to be pursuing having my tubes tied soon. pregency is just to much of an issue. my doc did tell me that fertility meds would assist in that department. they also mentioned that (and now please remember this has been nearly 10 years since i was diagnosed with it) that the birth control would help control and slow the formation of the cysts.

your GYN should be able to give you all of your options.

i hope all goes well for well

love and light
lee

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RE: PCOS? - 7/27/2007 1:27:18 PM

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Well, I don't have the resources to go to a gyno, so I am pursuing this with my family doc. I told her when she asked if I wanted to be on bc that I don't because it is my beleif that if I get pregnant that that is God's wish and I won't take anything to stop that from happening. I have been on bc before when I was living with my parents before I turned 18 and when I did I came off the bc. So, I won't be asking about bc, I do know that the metformin seems to be helping out with the regulation of my periods, so that helps. I do know that I first learned about the correlation between insulin resistance and PCOS on these boards...and that the metformin sometimes helps those with PCOS get pregnant. So, you all have been a great help to me. I am looking forward to hearing more from you all....I did read a thread on the site mentioned soulcysters.com....about excessive sweating....which they don't mention to be a symptom of PCOS but many of the women on those boards have that symptom. So, I am basically wondering what other not so common or not mentioned symptoms are out there that some may not even know is related to PCOS.

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RE: PCOS? - 7/27/2007 5:35:09 PM

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hey zindy,

i understand what you are saying about the BC. children are something that i never wanted so it was never really an issue for me. i finally found the site that i was looking for earlier.

http://www.pcosupport.org/

they have alot of information and resources here. you might find something helpful.

lee

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RE: PCOS? - 7/27/2007 6:34:09 PM

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Thank you, for the link, leakylee.

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RE: PCOS? - 7/27/2007 6:36:06 PM

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you are most welcome zindy and you have mail on the other side.

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RE: PCOS? - 8/1/2007 7:04:33 PM

curiousAngel40s

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I just want to add that for women who have PCOS, soy products can make things much worse. Typically, soy helps with various hormonal problems. BUT if you have PCOS, the body doesnt recognize soy as soy. From what I have read and experienced, the body cannot process it correctly. WHen I was using soy products, it greatly raised my hA1C, my daily blood glucose levels, triglerydes (sp), and it threw off my hormone levels even more. I dont understand the problem with soy, I just have experienced it.

Maybe on one of those sites they discuss the problem with soy if you have PCOS. It was on a site for PCOS that I discovered the soy issue.

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RE: PCOS? - 8/1/2007 9:23:23 PM

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Well, the doc told me she had done checked me for it awhile ago...why didn't she tell me this last time I was there...I don't know. She said that my hormone levels where normal, and all the other stuff they check. The only thing I have is insulin resistance. so there for I don't have it is what she said. every thing I asked her was brushed off as stress.....go figure!

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RE: PCOS? - 8/5/2007 4:42:42 AM

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Do not take NO for an amswer, today we must be responsible for managing our own health care---look for a specialist in PCOS and get a second opinion.

And rememer the person who graduates last in their medical school class is still called Dr.

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RE: PCOS? - 8/5/2007 4:52:10 AM

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My hormone levels aren't always way above normal, but I have PCOS. You need to get a second opinion, probably with an ultrasound to take a look at the ovaries. If you are trying to get pregnant you can have an ovarian drilling done and then to maximize your chances go on fertility meds.

I hope that you are feeling well.

Tricia

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