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Hepatitis C - 9/1/2007 11:48:11 AM   
HarryVanWinkle


Posts: 1720
Joined: 5/8/2006
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In June of 1977, I was hospitalized for several days with an acute case of hepatitis.  At the time, it was diagnosed as type B and I was told that I could never again donate blood nor be an organ donor.  Seven or eight years ago, when I got on an HMO medical plan, I was told that I have Hepatitis Type C.
 
In my ignorance, I thought, “Isn’t that sweet.  I’ll be dead in five years or so.”  Needless to say, this soured my already somewhat sour view on life and helped to re-enforce my strong relationship with my old pal, Jack Daniels. (Although, I’ll confess to having frequently cheated on him with Johnny Walker, Mary Jane and a host of others, but Jack never minded.)
 
Three years ago, I got mortally tired of living in a bottle and hiding behind a computer.  I got out and joined the only real life community I’ve ever felt I could truly belong to, the BDSM community, in the form of Desert Dominion.  Eventually, this helped lead to the end of my relationship with Jack, Johnny and the rest.
 
From the beginning of my involvement in DD, I made no secret of the fact that I have Hepatitis C.  I believe that everybody with whom I have played has been aware of it.  And, I have assumed that all potential playmates have also known it.
 
We all know what the drill sergeants say about the word, ASSUME.
 
It has been brought to my attention (with a proverbial baseball bat) that I have not been as attentive about informing any potential new playmates of my infection as I should be.  This letter is my first step in rectifying that inattentiveness. 
 
As many of you know, a few months ago, I was hospitalized for a mild case of pancreatitis, caused by gallstones.  During that adventure, I learned that I have never had Hepatitis B, but have had type C for over thirty years.  Awhile before that, I had a liver biopsy, learned that I have Stage 2 (out of 4 stages) cirrhosis, and that my liver, despite a ten year, intense relationship with Jack and friends, plus the decades with Hepatitis C, is still functioning quite well and could very well last for another thirty years.  It wasn’t the automatic death sentence that I thought it was.
 
In this, however, I have been fortunate.  Hepatitis C is a nasty disease and treats many of its victims a lot worse than it has me.
 
Since joining this community, I have sought to be of service to it as much as I can.  It has occurred to me that one very good way for me, in particular, to be of service, is by making absolutely sure that everybody in it knows of my condition, by learning as much as I can about this disease and by striving to educate the community about it.
 
While I already know a lot about this disease, probably more than most people, I am nowhere near being an expert on the subject.  Yet.  In the coming months, I intend to work on that.
 
But, here are just a couple of the things I do know already.  One is that Hepatitis C is a blood borne disease; the surest way to get it is by contact with the blood of a carrier such as myself.  As many of you know, I’m very fond of blood sports, involving my own blood.  (I have lots of pictures to prove it.)  Fortunately, those with whom I have played these games have been both aware of my condition and very well educated in safety procedures.  In fact, they have served and continue to serve the community themselves by providing education on the subject.
 
Two is that, as I stated above, while I have had Hepatitis C for over thirty years, I’ve only known that I have it for seven or eight years.  Other than during the initial, acute stage, over three decades ago, I have had no symptoms.  And not everybody who catches it has an initial acute stage.  In other words, there are many people who have this disease and do not know it, very possibly some within our community.  There are also some people who know they have it and attempt to conceal the fact, for fear of ostracism. 
 
My point is that, when engaging in forms of play which could lead to transmission of this or any other blood borne disease, you should, for your safety, ALWAYS ASSUME (which will not make an ASS out of U or ME) that the person with whom you  are playing has Hepatitis C and/or AIDS and/or a host of other possible infections and ALWAYS exercise appropriate safety procedures.
 
 
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RE: Hepatitis C - 9/1/2007 1:44:14 PM   
MisPandora


Posts: 2911
Joined: 4/7/2004
From: Philadelphia, PA
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A resource for you Harry, might be the Healthy Hepper website: http://www.healthyhepper.com/

Hep C is treatable, but the treatments aren't very simple.  A course of Interferon (with or without Ribivarin)  injections is often used.  It's chemotherapy!!!!  Transplant is another option, but there is a critical shortage of organs out there, so really, only the acutely ill and likely to die within 7 days have a slim chance to be transplanted. 

Working in the field of organ transplant, HCV is the leading cause of adults requiring organ transplant.  There is no vaccine for it because of the multitudes of strains of the virus.  HCV is more virulent and more readily transmitted than HIV - it requires a small amount of blood to carry it and it's resillient even when outside of the host. That being said, HCV can be transmitted in any means that could move a miniscule amount of blood from one person to the other.  That includes toothbrushes, sharing razors, sharing straws from which you snort cocaine (transmission rates of up to 10% that way!), IV needles, promiscuous sex, tattooing or body piercing, blood transfusions and organs transplanted (though those rates are significantly lower since the 1990s when more advanced serologic testing was put into place) or long term dialysis (reduced rate since single use d-packs are being used.)  There is also the maternal to fetal transmission route, as well as healthcare workers and accidental needlesticks (from 2 to 10% a year.)  http://www.cdc.gov/ncidod/diseases/hepatitis/c/chronic.htm#8

The most horrifying statistic is this: Only 25% of persons testing positive for hep C had any idea that they might be positive.

The following should be tested:
- people who received blood or blood products, (gamma globulin, plasma, HGH, etc.) before 1990
- transplant recipients
- those receiving dialysis
- all IV drug users
- all sexually promiscuous persons
- all persons with tattoos done in other than very reputable parlors
- all partners of positive patient
- needle stick injured persons from known contact case
- all persons with elevated liver function tests or hepatomegaly

For more info on HCV, read: http://www.epidemic.org/theFacts/hepatitisC/transmission/

_____________________________

Pandora
Ms World Leather 2004
Ms Philadelphia Leather 2004

"Simply put, if you want a real femdom to love you, give her reasons to love you." Gloria Brame

(in reply to HarryVanWinkle)
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RE: Hepatitis C - 9/1/2007 1:44:18 PM   
ownedgirlie


Posts: 9184
Joined: 2/5/2006
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I am sorry to hear of your struggles, and wish you the best.  And it is good to repeat warnings to others to be aware of such risks as AIDS and Hep.

I am wondering, however, if you have considered looking into clinical trial studies.  Hep C is no longer a ticket to the cemetary.  A very dear friend of mine completed a clinical trial for Hep C at the UC Davis Medical Center in Davis, California, and has recently been cleared of any evidence of Hepatitis in her body.  Truly a reason to celebrate.  Treatment was awful, and she was very sick for awhile, but is healthy now and flourishing.  I do not know which stage she was in when she began the treatment, but this may be something worth looking into for you, if you have not already done so.

(in reply to HarryVanWinkle)
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RE: Hepatitis C - 9/1/2007 6:11:58 PM   
acissej


Posts: 2370
Joined: 12/24/2005
From: New Jersey
Status: offline
My husband took interferon to treat his Hep C, and there's been no detectable viral load virus in his blood for over five years.  He was miserable while he was being treated for it, but the results were worth it.  I can't remember the specifics, but he took one kind of interferon for a while and it didn't work.  Then, he was switched to a different kind, and that had results.  We both regularly get checked, and I'm very careful not to come into contact with his blood, but so far, so good. 

If you want any details, Harry, message me on the other side.  Good luck to you.

(in reply to MisPandora)
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RE: Hepatitis C - 9/2/2007 12:15:24 PM   
spiral23


Posts: 1053
Joined: 1/10/2007
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The interferon/ribarviren has a high success rate i believe, though i cant back this up with statistics, i work in the field of drug and alcohol recovery and everyone i know who has been through the treatment and completed it are completely free off the virus..including me..five years with no problems.  The treatment isnt pleasant, lots of mood swings and physical discomfort, but beats the symptoms that i personally had as a sufferer. I would get complete energy collapses, rashes, brain fog, liver pain, low immunity to colds etc.

Diet can affect a Hep C sufferer, try to avoid fatty, sugery over processed foods and drink lots of water.
One thing that helped me cope with treatment was going to a holistic therapist, for craniul sacrel treatment or reiki, so if you believe in that, it might help.

and Harry, well done for getting sober...

< Message edited by spiral23 -- 9/2/2007 12:20:11 PM >

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RE: Hepatitis C - 9/3/2007 12:52:15 PM   
MistressSassy66


Posts: 1675
Joined: 11/5/2004
Status: offline
~FR~

Due to a Doctor overprescribing  Tylenol type products to treat different ailments.
I ended up in the hospital with raised liver enzymes.
Next thing I know everyone is wearing masks and talking about Hep C,scared the hell out
of Me,turns out I didnt have it,but My liver has been severly damaged and
for the rest of My life I have to have bloodwork every two months to monitor the enzymes.
I have to scrutinize every medication that I take to make sure it doesnt do more damage.

I do realize how lucky I am though and My Prayers go out to those who are
going through this illness.

_____________________________

Mistress Sassy

http://www.mistresssassy.com

In the Immortal Words of Bob....Fuck the dumb shit.

"I love you not only for what you are,But for what I am when I'm with you."- Opening line from a poem by Roy Croft

(in reply to spiral23)
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RE: Hepatitis C - 9/11/2007 7:57:07 PM   
icemaiden43


Posts: 10
Joined: 3/17/2007
Status: offline
Harry my heart goes out to you , well done  for beating the demon BOTTLE , as for having hep C extras hugs .I have noticed  from reading different forums , People are more caring and empathy to those that reside in the USA then Australia

As I came forward and said what harry has been threw I would be  wipped  by friends and so called BDSM communitys

Hugs

(in reply to MistressSassy66)
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RE: Hepatitis C - 9/12/2007 3:47:31 PM   
bottombob


Posts: 53
Joined: 3/7/2005
Status: offline
my bro lived 25 years taking interferon. unfortunately, he found out too late and his pancreas was destroyed he only had 18 % of his liver left before he went on the trials for the drug, so if it worked on him it should give you a longer life than he had. cause u caught it earlier

(in reply to icemaiden43)
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