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endometriosis and BDSM - 1/6/2008 12:11:55 PM   
ghitaPVH


Posts: 1363
Joined: 11/14/2007
Status: offline 		Anyone had any experiance dealing with this? And the pain?

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RE: endometriosis and BDSM - 1/6/2008 12:28:03 PM   
calicowgirl


Posts: 98
Joined: 9/5/2006
Status: offline 		Hello ghitaPVH,

I had my first surgery to diagnose and treat endometriosis in 1996 and have had several more since then although luckily enough the last couple have found no active endo and only adhesions which were causing all the problems. The constant pain/discomfort can steal your enrgy and love for life. I know I came to a point where I was just so sick and tired of being sick and tired that I would cry. At the time though I was married vanilla so other than to commiserate with you, I have no words of wisdom for participating in BDSM activities while dealing with all the crap endo may put in your path.

Best of luck to you.

cali

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RE: endometriosis and BDSM - 1/6/2008 2:18:28 PM   
GoddessTeaze


Posts: 1125
Joined: 10/14/2006
From: The Netherlands
Status: offline
quote:

ORIGINAL: ghitaPVH

Anyone had any experiance dealing with this? And the pain?
Yes I do,

I always had very painfull periods, and then all offa sudden My tummy started acking, and they didn't knew what it was, they looked inside Me, and they found endometrioses. I was put on anti inflamation medications, I don't know the word in English. Those caused allot of problems with My  main artery. So I quit taking those, then another option was to take birthcontrol, and kept on taking them for 6 months, to hope that the endometrioses would die out in My whole belly, well that didn't work, the hormones drove Me nuts, and one of the docs adviced me to go on antidepressives to be able to go through the time of My period then. I told him to stuff it. and I quit taking birthcontrol, which gave a Very Heavy reaction really. And now I don't take anything, just painkillers as I always did when I'm on My period.
I don't know how it bothers you, but it really bothers Me during that time of the month, gotto love being a female ehhh?

If You want anymore info,
feel free to contact Me.
Goodluck

GoddezzT`


< Message edited by GoddessTeaze -- 1/6/2008 2:19:51 PM >

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RE: endometriosis and BDSM - 1/7/2008 8:48:01 AM   
phoenixinchains


Posts: 2534
Joined: 4/5/2007
From: i live here
Status: offline 		oh yes i have. my first surgury was at age 16 (2000) and my most recent was last week, tissue was removed and  the doc got a two gram cyst out my ovary. as a period goes, medicene won't help the pain after so long... hot baths do help things along. try gas-x, this might sound weird but, if you take the pressure off your girly parts it takes some of the pain away. try not to do anything inverted the week before and during your period,,, advice from those gynos commited to the retro-grade theory. hope this can help- phoenix

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RE: endometriosis and BDSM - 1/7/2008 11:15:07 AM   
nohalo


Posts: 437
Status: offline 		Gita,

I had it.  I ended up having a hysterectomy because it was so acute.

For pain, I used naproxen...then as it progressed, it was electric heating pads and vicoden.  Stretching exercises sometimes alleviated the pain, too.

Sorry I don't have more positive thoughts on this.  It was a horrific problem for me for 20+ years. 

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RE: endometriosis and BDSM - 1/7/2008 11:33:53 AM   
Gwynvyd


Posts: 4949
Status: offline 		It is just ickie isnt it? I have it too along with my uterus is frowning instead of smiling as my obgynie told me.. it is upside down and twisted. Makes my moon times oh so much fun.

I find massaging heating pads work well, along with warm baths. Try to get your honey bun to massage your pelvic region where your uterus is lightly with warmed massage oils.
Chamomile tea also tends to help the cramping.

Here is a snipette of an article I found to help us all out.

there are lots of research papers on pain and nutrients. Vitamin C is an antihistamine so it can dampen histamine release. Vitamin E can help with pain because that will also help with histamine release and it also works as an antioxidant that can stop cell damage at the membrane if you’ve got free radical damage damaging the cell membrane, which could be weakening the cell membrane so that the endometriosis can attach. And the B vitamins, especially B1, B6 and B12 when taken in combination, work as well as any analgesic when they are in the right level in the body.
Essential fatty acids, like omega-6 fatty acids from linseed oil and fish omega 3, evening primrose oil, borage oil, star flower oil front the six. What I find very interesting is that when people are eating a lot of processed foods they are taking in trans-fatty acids. That’s fats that have been hydrogenated and they’ve been changed in their shapes so they don’t lock into cells in the same way. Fats that are natural, the cis fatty acids have a horseshoe shape and lock into cell membranes and give them integrity. Whereas the trans fatty acids form just a kink shape and the cell membrane loses its integrity, Oils and magnesium are important at the cell membrane as they are seen from research to stop cancers attaching. So if you can change the balance to improve good cis oils and remove the bad trans oils from the diet it may be giving the cells more integrity. Also, if we think about this logically, all the hormones, so if you are using the correct oils and they’re being metabolized into prostaglandins series one and three, which are anti-inflammatory and you reduce the oils in dairy and meat which are pro-inflammatory, series two prostaglandins, you can possibly, or we see this happening, reduce pain levels.
The other interesting thing that I found is that there has to be some mechanism with wheat with endometriosis. Wheat has been genetically modified and there are two hormones out of two, the genome. There is also problems with gluten sensitivity, and more people are becoming gluten sensitive and I find that when I’ve taken wheat out of the diet, in 80% of the women with endometriosis, their pain subsides.”
Whole wheat, all wheat is a problem. Anything with wheat flour, like pastry cakes, pizza, pasta. Buckwheat isn’t wheat; that’s rhubarb family. That’s the same plant as rhubarb, so buckwheat isn’t wheat. That works in a different way. But there’s something different. I think there may be the hormones in the wheat or the phytic acid is locking up some of the minerals but certainly there seems to be some modality with wheat and endometriosis. It’s almost as though something within wheat is exacerbating the implant.

http://www.endometriosis.org/nutrition.html

A side note.. do NOT use evening primrose oil with endometriosis. It is Estrogen that causes the issues with us.. and evening primrose oil is a natural estrogen booster. If you are going through menopause take lots of the stuff.. otherwise for this... nope. I know it says in the article it is ok to take it.. but it makes no sense to me for a condiditon made worse with estrogen, to take something that boosts it's production.

I hope this helps.

Gwyn

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RE: endometriosis and BDSM - 1/7/2008 12:18:44 PM   
ghitaPVH


Posts: 1363
Joined: 11/14/2007
Status: offline 		Hi gwyn, thanks for the article...I think thats an odd note about evening primrose oil....mainly becasue I was just stuck on this massively restrictive diet barring anything that acts like or has estrogen in it (including a ban from alot of beauty and household products)...but evening primrose oil is on my ok list....ill have to look into it some more.

_____________________________

Don't expect anything of me and I promise I'll never disappoint you.

"The true man wants two things: danger and play. For that reason he wants woman, as the most dangerous plaything. --Nietzsche"

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RE: endometriosis and BDSM - 1/7/2008 10:04:03 PM   
phoenixinchains


Posts: 2534
Joined: 4/5/2007
From: i live here
Status: offline 		oh yeah, avoid soy like the plague. it's loaded with phyto-estrogen. soy bad. opt for the hormone free meat if you can afford it. and be on the look-out for soy. it's stuck in everything. some call soy "human chow" because it's a cheap sorce of protien. soy bad. hope this helps- phoenix

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RE: endometriosis and BDSM - 1/15/2008 6:32:52 AM   
twistedtight1


Posts: 24
Joined: 4/16/2005
Status: offline 		greetings and good morning...an off shoot of the endometriosis is a condition called Dysmenorrhea....and there is a group in yahoo with much information and helpful hints...it is [email protected]  the chat room can be found on the left menu when you visit the group page...they have a weekly chat on Wednesdays (next one Jan 16) from 8-10 pm..eastern time...great info site....walk in beauty..twist

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RE: endometriosis and BDSM - 1/15/2008 6:45:11 AM   
camille65


Posts: 5746
Joined: 7/11/2007
From: Austin Texas
Status: offline 		Ohgosh I have problems with adhesions too, but mine are not in that area. When my gallbladder decided to burst inside of me it ended up to be a long messy surgery and a horridly long recovery. The end result is that I have a lot of adhesions going from my sternum down to nearly my right hip.I rarely think of them but I'm always aware of them because they pull and they hurt a lot. I'm so very glad you mentioned the word 'adhesion' because I think I need to find some way to deal with or hopefully alleviate them, I had just forced it from my mind for a while.Heh so thank you for making me think of something I'd been blocking and now need to get around to fixing!

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RE: endometriosis and BDSM - 1/15/2008 8:40:13 PM   
fluffyswitch


Posts: 1108
Joined: 9/29/2007
From: Buffalo
Status: offline
quote:

ORIGINAL: Gwynvyd

It is just ickie isnt it? I have it too along with my uterus is frowning instead of smiling as my obgynie told me.. it is upside down and twisted. Makes my moon times oh so much fun.


it's nice to know i'm not the only one. i haven't actually been diagnosed yet but i was told at 16 that it was just a matter of time with my family background. it seems that all the women on my mom's side get every issue with their reproductive tract short of cancer. i'm starting to notice a lot of problems with pain and changes so once i figure out what my set work schedule for this semester will be i'm going to have to make an appointment and have things checked out again. and luckily for me, the one thing that can actually prevent it in my case (or at least seriously slow it down, a hormonal bc) is the one thing i can't take...

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RE: endometriosis and BDSM - 1/15/2008 9:00:47 PM   
snowandsub


Posts: 42
Joined: 1/10/2008
Status: offline 		i'm another one with it - stage 4 with adhesions and it sucks beyond reason. i've had the surgeries and all sorts and to be honest the best relief i have had is through acupuncture and deep massage and some heavy duty painkillers.

my suggestion is chart your cycle (google tcoyf - its the best) and learn your cycle - mark everything - i found my endo pain was worse from my left side - it used to cuase shoulder pains that crippled me (displaced pain is normal for endo due to the nerve damage). later i found out that my left ovary is attached to my bowel (which also has cuase bowel/ibs issues). my right side gave me intense back pain but that was becuase its attached to my womb and to my spine.

i also found that if i pre planned treatment the 36 hours before i was due to ovulate it helped the most ie had the biggest long term impact.

my pregnancies have been hell (7 with 1 live birth) and when pregnant i cannot have treatments sop right now living with it each day sucks.

as for as 'play' goes, my Dom (also hubby of many years) has learnt what sides hurt worse when so he knows what he can do without adding unnessicary pain ie no sideways/twisitng movements or jerking about when i am due to ovulate. we deal with it as best as possible but yes, it can effect play if I stop being aware of how my body works.


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RE: endometriosis and BDSM - 1/15/2008 10:35:28 PM   
PanthersMom


Posts: 2215
Joined: 11/26/2007
From: Cleveland Ohio
Status: offline 		i had my hysterectomy in july 2000.  the pain was so bad i told my obgyn if he didn't do something about it i was going to remove the damn thing myself.  i was in constant pain, not just during the period.  when they finally took the uterus and left ovary out they told me it was one of the worst cases they'd seen, it was all through my belly and totally destroyed the left ovary.  i too had seven pregnancies and one live birth.  it was awful.  i'm so glad it's over.

PM

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RE: endometriosis and BDSM - 1/16/2008 6:43:27 AM   
burningdesires47


Posts: 120
Joined: 2/22/2007
Status: offline 		I keep being told I have it, but I was forced to refuse surgery since the doctor who was going to do it was a lying misogynistic pig. Docs keep telling me the biggest treatment is hormonal BC.... already on it. Then they put me on Seasonale so I'd have less periods, still not sure whether that's working or not, it may be making things worse. Hell, my PT for the pelvic floor myalgia says she can feel lesions in there, I've got at least 6 around my abdomen, and two that flare up occasionally in my chest, one on my left lung and one on my chest wall (I don't remember what scan they did because I was drugged up a lot at the time due to pain and subsequent allergic reaction to the painkiller, but apparently those are visible)--a few years ago, they thought I had somehow developed a hole in my heart same as my grandma, because I was having so much chest pain and feeling like I was having heart attacks.

I was given a TENS unit which helps a LOT. Bonus point for it being a pervertable. As far as play goes, well, I'm having a lot of problems at the moment. Not terribly trusting of random play partners when I feel like crap but want to play, because they haven't had the time to learn my body, and I don't have a Dom at the moment. Much of what I'm into in regards to BDSM are activities with sexual energy, which incidentally is why they interest me, so when I'm feeling incredibly unsexy, play is understandably difficult. And even when it's not difficult for me to get in the mindset, I'm stuck with this fear that I will suffer more pain, or start hemorrhaging from my girly bits (happened once during a scene, I'd like to avoid a repeat).

6 confirmed pregnancies, 4 more suspected, and no live births. Which was apparently one of the deciding factors that lead to a clinical diagnosis of endo, but I'm still waiting for surgery.... kinda stalling on that because I can't handle the idea of it just yet.

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RE: endometriosis and BDSM - 6/16/2008 9:10:08 PM   
subinlife


Posts: 263
Joined: 5/20/2008
Status: offline 		Endo is hell. Had it for years, 5 pregnancies, 1 live birth. Had my hysterectomy at age 35. Was the best cure yet.

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