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seizures and BDSM - 1/30/2008 6:28:06 PM

sweetsub1986

Posts: 41
Joined: 12/11/2007
From: Tennessee
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First off allow me to say I am sorry if this has been posted before but I couldn't find it. I have had seizures on and off most of my life. After about 3 years of no seizure symptoms at all I may have had a Petite Mal 2 days ago. My question to you kind folks is does anyone know of an general guidelines of how long I need to wait before engaging in S&M? Thanks so much!

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RE: seizures and BDSM - 1/30/2008 7:19:17 PM

FangsNfeet

Posts: 3758
Joined: 12/3/2004
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When you're able to start driving or bicycle riding again is when you'll be ready for some kinky fun.

Everyone is different and recovers differently. If you're walking and thinking clearly, then being in a scene shouldn't be a problem. You know your body better than I do. Let your gut tell you when you're ready again.

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RE: seizures and BDSM - 1/30/2008 7:35:23 PM

Phin

Posts: 1802
Joined: 2/26/2007
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I have a friend that has seizures, I will point her in the direction of this thread.

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RE: seizures and BDSM - 1/30/2008 7:40:38 PM

sweetsub1986

Posts: 41
Joined: 12/11/2007
From: Tennessee
Status: offline

I can't bicycle, drive or walk ever due to my other disablities lol.

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I have found myself, good friends(family of the heart rather than blood), and an amazing love.
Proudly Owned by Gizzo!!!!!!!!

(in reply to Phin)

Post #: 4

RE: seizures and BDSM - 1/30/2008 7:48:22 PM

FangsNfeet

Posts: 3758
Joined: 12/3/2004
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quote:

ORIGINAL: sweetsub1986

I can't bicycle, drive or walk ever due to my other disablities lol.

Just read your profile and was unaware of your other situations. The bottom line is that there is no set time as we are all different. It boils down to trusting your gut as to when you feel ready to start again. When you start doing everything normally the way you do on any given day, I'd take that as a good sign.

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RE: seizures and BDSM - 1/30/2008 7:59:38 PM

sweetsub1986

Posts: 41
Joined: 12/11/2007
From: Tennessee
Status: offline

oh yay and happiness my Owner had heard somewhere we'd have to not play for 6 months...that would have meant much unhappiness for us both.

_____________________________

I have found myself, good friends(family of the heart rather than blood), and an amazing love.
Proudly Owned by Gizzo!!!!!!!!

(in reply to FangsNfeet)

Post #: 6

RE: seizures and BDSM - 1/30/2008 9:41:59 PM

CalifChick

Posts: 10717
Joined: 10/28/2007
From: California
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Don't you think this is a question for your neurologist, internist, or whoever is managing your seizures that has a little bit of alphabet behind their name? Preferably MD, DO, etc. SERIOUSLY...

Cali

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(in reply to sweetsub1986)

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RE: seizures and BDSM - 1/30/2008 10:22:38 PM

adoracat

Posts: 1779
Joined: 2/16/2007
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quote:

ORIGINAL: sweetsub1986

oh yay and happiness my Owner had heard somewhere we'd have to not play for 6 months...that would have meant much unhappiness for us both.

to legally drive, you must have been seizure-free for six months.

i have had petit mal seizures and pseudo-seizure activity for some 15 years now. and its not ever stopped me....

i've had bad moments during play with my dominant, and he's always let *me* decide when i feel well enough to continue. sometimes its within the hour, sometimes i'm done for several days/weeks. it all depends on how i feel.

but i do agree, it sounds as though a talk with your doctor is in order.

kitten

(in reply to sweetsub1986)

Post #: 8

RE: seizures and BDSM - 1/30/2008 10:40:34 PM

CalifChick

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Joined: 10/28/2007
From: California
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She doesn't drive due to other physical issues, not the seizures.

Cali

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AKA "The Undisputed Goddess of Sarcasm", "Big Bad Cali" and "Yum Bum". Advisor to the Subbie Mafia, founding member of the W.A.C. and the Judgmental Bitches Brigade, member of the Clan of the Scarlet O'Hair-a's and Team Troll

(in reply to adoracat)

Post #: 9

RE: seizures and BDSM - 1/31/2008 4:29:59 AM

adoracat

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Joined: 2/16/2007
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quote:

ORIGINAL: CalifChick

She doesn't drive due to other physical issues, not the seizures.

Cali

i did understand that, Cali.

i was just saying what the legalities are.

for me, intimate activities are sometimes triggers for my pseudo-seizures (which is what the idiot neurologist called them...he was idiot for other reasons). any sort of overstimulation can be a problem. too many loud noises, too much activity around me, too much physical sensation, all of those can set me off.

and yeah, in the end its all about "do you feel well enough to play" coupled with "what does your physician tell you about the subject". my absence periods where i'm basically staring into space and rocking back and forth are upsetting to me, but not likely to hurt me. the times when i'm having what amounts to violent muscle spasms that hurt like hell, yeah, i'm not likely to want to do anything after that but to be held. or go to sleep. or sometimes both.

the consensus now is that i'm having extreme stimulus responses caused by MS, not actual sezures per se. six of one, half dozen of the other on the "how much does it upset me" scale.

kitten

(in reply to CalifChick)

Post #: 10

RE: seizures and BDSM - 1/31/2008 8:17:05 AM

MissSCD

Posts: 1185
Joined: 3/10/2007
Status: offline

You are kidding right? You honestly want to go into BDSM having seziures? You will be putting your self at risk as well as your Dom/me if something happens.
There is no guideline for this.

Regards, MissSCD

(in reply to FangsNfeet)

Post #: 11

RE: seizures and BDSM - 1/31/2008 8:29:28 AM

sweetsub1986

Posts: 41
Joined: 12/11/2007
From: Tennessee
Status: offline

No I am not kidding...I have had seizures on and off my whole life. I assure you I am not the only person who's into BDSM who has seizures...until the other day I hadn't had any in a few years so they have never been a cocern with play as it appeared they were a thing of the past. I know other seizure patients do BDSM but I can't seem to find out how long I should wait...I am aware of many other safety protocols for seizures if they should happen to occur during a scene. As to asking a doctor as one of you mentioned my neuroloist as never been very involved in helping me otherwise I very much doubt she'd be in this case.

_____________________________

I have found myself, good friends(family of the heart rather than blood), and an amazing love.
Proudly Owned by Gizzo!!!!!!!!

(in reply to MissSCD)

Post #: 12

RE: seizures and BDSM - 1/31/2008 10:08:37 AM

collaredncontent

Posts: 81
Joined: 1/21/2008
From: GA, USA.
Status: offline

quote:

ORIGINAL: sweetsub1986

No I am not kidding...I have had seizures on and off my whole life. I assure you I am not the only person who's into BDSM who has seizures...until the other day I hadn't had any in a few years so they have never been a cocern with play as it appeared they were a thing of the past. I know other seizure patients do BDSM but I can't seem to find out how long I should wait...I am aware of many other safety protocols for seizures if they should happen to occur during a scene. As to asking a doctor as one of you mentioned my neuroloist as never been very involved in helping me otherwise I very much doubt she'd be in this case.

Yep, I had childhood epilepsy but it never really did "go away". I know it could come back at any time but frankly I don't change my life around it since there's just no way to tell when and where it may strike. For a petite mal I wouldn't worry too much, I'd just stay away from anything that has been known to trigger a reaction. Certain smells and lights and heat did it to me. Certainly talk it over with your partner but it sounds like you already have.

(in reply to sweetsub1986)

Post #: 13

RE: seizures and BDSM - 1/31/2008 11:04:02 AM

chellekitty

Posts: 3923
Joined: 3/27/2005
Status: offline

i have seizures, more so lately because my doc is trying to straighten out my meds because of my some things that turned up on my chem pannel the last time i went to see him...

the thing that would concern me more than the fact that you are having seizures is the fact that you are having seizures and don't know it...i have auras (the feeling that i am going to have a seizure) for 5 to 10 minutes before i am going to have a seizure and i can tell the people around me...so, sorry i am not going to give you a text book answer...but i will give you my opinion
1) talk to your doctor
2) talk to your doctor, if this was an anomaly, and if, according to your doctor - not your dominant, not your mother, not your best friend, not the lady at the groccery store, and certainly not some strangers on a message board - the seizures will not start again, continue to play as normal...
3) talk to your doctor, if this was not an anomaly, and if, according to your doctor, the seizures are starting again, follow his advice on whatever he or she thinks you should do to medically regulate them, and when the doctor starts spacing out your appointments to at least 3 months apart, because you are regulated, then you can continue to play, and in the mean time, learn/relearn what triggers the seizures, learn/relearn what signs there are of a seizure coming on, educate/reeducate yourself on your seizure disorder...there is no excuse for being ignorant with the knowledge you have, and harming yourself because you want to get your jollies is ignorant....

but what do i know, i am just one of those strangers on a message board....
good luck, take care of yourself
chelle

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One thing I know: the only ones among you who will be really happy are those who will have sought and found how to serve. ~Albert Schweitzer

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Post #: 14

RE: seizures and BDSM - 1/31/2008 11:17:43 AM

CalifChick

Posts: 10717
Joined: 10/28/2007
From: California
Status: offline

Sweet, if you're not getting appropriate care from your doctor, then get a new one, don't just go to strangers on the internet for medical advice! Have you told your doctor that you need help with something? If you didn't tell her, then tell her. If you did tell her, and she was less than helpful, then get a new one.

Cali

_____________________________

AKA "The Undisputed Goddess of Sarcasm", "Big Bad Cali" and "Yum Bum". Advisor to the Subbie Mafia, founding member of the W.A.C. and the Judgmental Bitches Brigade, member of the Clan of the Scarlet O'Hair-a's and Team Troll

(in reply to chellekitty)

Post #: 15

RE: seizures and BDSM - 1/31/2008 12:17:18 PM

celticlord2112

Posts: 5732
Status: offline

quote:

ORIGINAL: MissSCD

You are kidding right? You honestly want to go into BDSM having seziures? You will be putting your self at risk as well as your Dom/me if something happens.
There is no guideline for this.

Regards, MissSCD

A former slave of mine has seizures from both epilepsy and persistent hypoglycemia. Unless the seizures are so frequent as to be extremely debilitating, it is possible for a person to partake of a full measure of kink.

I do recommend that people with a history of epilepsy 1) disclose this to anyone they intend to scene with and 2) go a bit slower than what otherwise might be anticipated, but to refrain from all kink is most likely unwarranted.

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RE: seizures and BDSM - 1/31/2008 1:12:34 PM

xxblushesxx

Posts: 9318
Joined: 11/3/2005
From: Kentucky
Status: offline

Ever since I was a child, I had the kind of 'seizures' that is basically, just in the mind. (I think)
Basically, I can be sitting with you, and start doing something (like start doing something weird-not sex-with a pencil) put it down, and then wonder why everyone is staring at me.
Also, strobe lights, and things that blink quickly in front of my eyes can do that to me. (and make me very ill)
I play.
But then again, my 'seizures' aren't the typical kind.

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~Christina

A nice girl with a disturbing hobby

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RE: seizures and BDSM - 1/31/2008 2:12:24 PM

sweetsub1986

Posts: 41
Joined: 12/11/2007
From: Tennessee
Status: offline

it seems to be that becoming over stressed is what triggers them for me.

_____________________________

I have found myself, good friends(family of the heart rather than blood), and an amazing love.
Proudly Owned by Gizzo!!!!!!!!

(in reply to xxblushesxx)

Post #: 18

RE: seizures and BDSM - 1/31/2008 2:43:14 PM

celticlord2112

Posts: 5732
Status: offline

quote:

ORIGINAL: xxblushesxx

Ever since I was a child, I had the kind of 'seizures' that is basically, just in the mind. (I think)
Basically, I can be sitting with you, and start doing something (like start doing something weird-not sex-with a pencil) put it down, and then wonder why everyone is staring at me.
Also, strobe lights, and things that blink quickly in front of my eyes can do that to me. (and make me very ill)
I play.
But then again, my 'seizures' aren't the typical kind.

You are aware you are describing a form of epilepsy?

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Post #: 19

RE: seizures and BDSM - 1/31/2008 3:01:19 PM

Aswad

Posts: 9374
Joined: 4/4/2007
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quote:

ORIGINAL: xxblushesxx

But then again, my 'seizures' aren't the typical kind.

You are describing complex partial seizures or somesuch.

If you're not already receiving treatment for those, talk to your doctor about it.

Despite not entailing the convulsions associated with tonic-clonic seizures, these can still entail a danger of status epilepticus, which is not something you want going on in your brain (hint: brain damage, respiratory failure and cardiac arrest have been observed in cases that appear to be instances of undiagnosed seizures that progress to status epilepticus; some have gone so far as to suggest that many cases of sudden death are due to undiagnosed complex partial seizures.)

If you ever space out for more than 20 minutes or so, your partner should take you to a hospital.

Health,
al-Aswad.

_____________________________

"If God saw what any of us did that night, he didn't seem to mind.
From then on I knew: God doesn't make the world this way.
We do." -- Rorschack, Watchmen.

(in reply to xxblushesxx)

Post #: 20

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