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Hyperparathyroidism - 11/28/2008 7:45:41 PM   
lovingpet


Posts: 4270
Joined: 6/19/2005
Status: offline 		Anyone who has experience with the surgery and the recovery process, your input would be greatly appreciated.  I can get basic information.  I just want to have some idea what to expect on a more personal level.  I understand I will respond in a uniquely individual manner.  Thanks in advance!

lovingpet
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RE: Hyperparathyroidism - 11/28/2008 7:50:08 PM   
Lockit


Posts: 11292
Joined: 5/7/2007
Status: offline 		They treated mine with medication rather than the surgery.  I had Grave's disease which is the hyperthyroid and I had a gouiter about the size of a baseball and hospital wanted to force doc to do the surgery but he refused and I am glad he did.  With the surgery you must take medication for the rest of your life.  Without it and going the route of medication, I did not have to do that.  They did say that in about twenty years... for me it was over twenty five... I would switch to being hypothyroid.  I did do a bit of a switch, but it only lasted for short bits of time, some weight gain and then back to normal after a year of medication.

I can't remember the name of the medication, but if I were you, I would check into other alternatives and see if they might be worth trying before they do something that cannot be undone.  I wish I could help more with how they treated me, but it was a long time ago.  I have forgotten so much.  I wish you well!

Edited to add... I know the parathyroid is different... but still when they talk surgery... I want to check other things out and there may be other things that can be done.

< Message edited by Lockit -- 11/28/2008 7:51:26 PM >

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RE: Hyperparathyroidism - 11/28/2008 7:55:48 PM   
slaveatom


Posts: 1
Joined: 3/18/2006
Status: offline 		I had complete thyroid removal 7 years ago.  Recovery was fast.  The hardest part was finding the right dose level for the thyroid replacement medicine.  Till I got to the right level I was very tired. 

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RE: Hyperparathyroidism - 11/28/2008 7:57:21 PM   
lovingpet


Posts: 4270
Joined: 6/19/2005
Status: offline 		This is the removal of the parathyroid gland(s), not the thyroid.  I appreciate your responses, however!

lovingpet

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RE: Hyperparathyroidism - 11/28/2008 7:58:59 PM   
Lockit


Posts: 11292
Joined: 5/7/2007
Status: offline 		The parathyroid is in the brain.  The thyroid is in the throat area.  I think.. lol god I need a brain.. wiz of oz here I come!

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RE: Hyperparathyroidism - 11/28/2008 8:03:40 PM   
johntom571


Posts: 63
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quote:

ORIGINAL: Lockit

The parathyroid is in the brain.  The thyroid is in the throat area.  I think.. lol god I need a brain.. wiz of oz here I come!


Actually the parathyroid is right next to the thyroid, in the throat.  you're thinking of the pituitary, which is located under the brain in the skull.

JT

< Message edited by johntom571 -- 11/28/2008 8:04:39 PM >

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RE: Hyperparathyroidism - 11/28/2008 8:06:32 PM   
lovingpet


Posts: 4270
Joined: 6/19/2005
Status: offline 		No, they are in the throat behind the thyroid.  It is not terribly rare, but it's a shot in the dark that I will find someone who has had this done. 

lovingpet  

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RE: Hyperparathyroidism - 11/28/2008 8:08:29 PM   
Lockit


Posts: 11292
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quote:

ORIGINAL: johntom571

quote:

ORIGINAL: Lockit

The parathyroid is in the brain.  The thyroid is in the throat area.  I think.. lol god I need a brain.. wiz of oz here I come!




Actually the parathyroid is right next to the thyroid, in the throat.  you're thinking of the pituitary, which is located under the brain in the skull.

JT


hehe... see I told you... I always confused those!

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RE: Hyperparathyroidism - 11/28/2008 8:17:33 PM   
dreaminofdestiny


Posts: 20
Joined: 8/11/2007
Status: offline 		I had both removed a long long time ago.  I take thyroid replacement tablets...called synthyroid.. a very high dosage since I have nothing left.  some people I know take sythyroid medication to supplement their inactive thryoids
I've been on the medication for many many years......had 4 children when on it.......obtw   I had thryoid cancer thats why every thing was removed

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RE: Hyperparathyroidism - 11/28/2008 8:37:08 PM   
lunadancer


Posts: 211
Joined: 12/27/2007
Status: offline 		i take thyroid meds and battle weight problems too, i often get very tired and there are also times when i feel like i am on a never ending pms trip, so i go in every 3 months to have it check, blood work done and the dosage adjusted if needed. the latest dosage seems to be working for me. haven't had to change it for almost a years now. so far i haven't had to think of surgery, so i feel lucky there.

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RE: Hyperparathyroidism - 11/28/2008 10:19:36 PM   
porcelain26


Posts: 181
Joined: 11/16/2007
Status: offline 		I can't tell you much about the recovery process past the 1-3 days patients are on my post-surgical floor ;) But here is what I've seen *most* often.

There is usually a long scar across the throat that is either sutured or glued shut when patients arrive to the floor. There isn't usually a bandage over this incision, and more often than not, patients also have a JP (Jackson-Pratt) drain coming out near the incision as well. This is a small, flat, drain that goes into the surgical site to help drain excess fluid from the surgery. It usually comes out in 3-7 days.

The main concern for us when these patients come back to the floor is first of all, respiratory status. So generally, we have you on either a mist mask or humidified oxygen to make breathing easier (when the air is moist, it's also more soothing to your throat), or we'll have a humidifier by the bedside. When we do vital signs, we'll also tap the side of your cheeks, facial ticks caused by us doing this are an indication of hypocalcemia, which can cause serious complications after sugery. We'll watch you pretty close that first night, and then be a bit less 'hovery' one subsequent nights.

Most generally, the worst pain our patients feel is having a raw throat from the intubation (drinking fluids helps this a lot, ice chips are a good thing!). This is the first night I'm referring to. After the first night, you feel a general soreness and stiffness from the sugery, and you'll probably start feeling the incision pull because the local's the surgeon used will have worn off. But it's not usually anything too terrible.

Keep in mind, the hospital where I work is fairly small, so the way we do things and the way they're done at a huge hospital might be very different. But, this is my experience with the process. I hope it helps!

*edited for spelling errors

< Message edited by porcelain26 -- 11/28/2008 10:22:23 PM >

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RE: Hyperparathyroidism - 11/29/2008 5:35:24 AM   
lovingpet


Posts: 4270
Joined: 6/19/2005
Status: offline 		Yes, this does help some.  I have just heard that there can be a lot of complications and that there can be a long period of adjustment while the remaining parathyroids get the message that they have to start working properly again.  I am wondering also about how patients' previous symptoms feel after the surgery.  I have also heard that there can be a noticeable (though from what I read positive) personality shift due to the lower blood calcium levels reaching the brain.  I have no idea how much of this is conjecture and actual experience.

Again this thread is about removing the parathyroids not the thyroid.  I do appreciate everyone's input, however.

lovingpet

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RE: Hyperparathyroidism - 12/1/2008 5:38:37 PM   
Maya2001


Posts: 1656
Joined: 8/22/2007
From: Woodstock ONT,CANADA
Status: offline 		If you want to view forums discussions about from individuals who have went thru   my suggestion is to so a  google search on
Hyperparathyroidism forum or replace forum with the word blog

here is an example of what I found
http://healthforum.name/discussion/21526/hyperparathyroidism/#Item_0
http://www.mdjunction.com/Hyperparathyroidism

http://wordpress.com/tag/hyperparathyroidism/
http://endocrinesurgeryucla.blogspot.com/



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RE: Hyperparathyroidism - 12/1/2008 6:06:09 PM   
lovingpet


Posts: 4270
Joined: 6/19/2005
Status: offline 		Thanks so much!!! I will take a look!  Needless to say getting a resolution to long standing problems can be a relief and bring stress of it's own.  Education is my best tool at this point. 

lovingpet

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RE: Hyperparathyroidism - 12/2/2008 6:54:29 AM   
CallaFirestormBW


Posts: 3651
Joined: 6/29/2008
Status: offline
quote:

ORIGINAL: lovingpet

Anyone who has experience with the surgery and the recovery process, your input would be greatly appreciated.  I can get basic information.  I just want to have some idea what to expect on a more personal level.  I understand I will respond in a uniquely individual manner.  Thanks in advance!

lovingpet


Hyperparathyroidism has nothing to do with the thyroid except for the location of the parathyroid glands. Hyperparathyroidism affects calcium metabolism and there's a lot that goes along with it.

I work with an -awesome- surgeon who specializes in surgical management of parathyroid adenomas, and is considered one of the seminal practitioners in the field,  and just finished writing a textbook chapter and 2 journal articles on the subject. Feel free to mail me on the other side if you like, and I'll be happy to share.

< Message edited by CallaFirestormBW -- 12/2/2008 6:57:39 AM >

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RE: Hyperparathyroidism - 12/2/2008 7:40:41 AM   
lovingpet


Posts: 4270
Joined: 6/19/2005
Status: offline 		Calla, you've got mail!  :)

lovingpet

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