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Epilepsy & BDSM - 12/27/2008 1:10:46 AM   
EmeraldHaze


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A local guy has expressed some interest in being a sub. There's just one catch... he's epileptic. He's never played before, so we can't really go based on his past experiences. Has anyone dealt with this before? What should I be on the lookout for? What should I avoid? Any suggestions?
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RE: Epilepsy & BDSM - 12/27/2008 9:07:50 AM   
RiotDoll


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http://www.epilepsy.org.uk/info/triggers.html

While this sub may have never played before, he should know at least some of his own triggers or at least his history with seizures and what happens when he is experiencing them. Talk to him about them, and learn the signs of his seizures so that you can seek help right away.

Stressful situations can be a trigger, so keep a good eye out after play for signs of a seizure. Perhaps avoiding play altogether if he already had a stressful day, so that the body is not put under most strain.

I don't see a reason why he could not experience bdsm play, but care must be taken and communication is key. Know his signs, start slow, and work your way up.

(in reply to EmeraldHaze)
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RE: Epilepsy & BDSM - 7/12/2009 2:35:37 PM   
LadyAyla7053


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quote:

ORIGINAL: EmeraldHaze

A local guy has expressed some interest in being a sub. There's just one catch... he's epileptic. He's never played before, so we can't really go based on his past experiences. Has anyone dealt with this before? What should I be on the lookout for? What should I avoid? Any suggestions?


Dealing with epilepsy for anyone whether they are epileptic or not can be stressful. I know from personal experience. I am an epileptic and have been in the lifestyle for many years. Some of the things you can do is talk to him about his triggers. They can be a wide variety of things from extreme emotions(both good and bad emotions) to strobe lights and everything in between. As for what you should look out for it would all depend on what kind of seizure he has and how long since it's been since he's had a seizure. Two of the most common epileptic seizures are petite mal and grand mal. Petite mal seizures are tiny seizures where most of the people who suffer them look like they are daydreaming. Although most epileptics that have these kinds of seizures don't daydream. Grand mal seizures are usually associated with passing out and have convulsions usually not lasting for more than 30 seconds. For both of these types of seizures there isn't anything that can be done once the seizure has started but to avoid seizures it's best to talk to his explicitly as to what his triggers are and either avoid those practices or limit them. I hope this helps.

Bright Blessings,
Lady Ayla

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RE: Epilepsy & BDSM - 7/12/2009 3:14:54 PM   
angelikaJ


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I would also suggest researching his medications so you know what the potential side effects are.

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RE: Epilepsy & BDSM - 7/12/2009 4:05:16 PM   
kiwisub12


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Most people, if ask what to do during a seizure, would say that you need to put something in their mouth. Something that can be dangerous to the teeth and the individual seizing.    I blame TV - every time you see someone have a seizure on TV, someone is cramming something in their mouth!

Don't put anything in their mouth. Leave them along - if they stop breathing during the seizure, they will start again once the seizure is over!!!!

A seizure is a scary thing to watch, but unless the individual falls and hits their head, there is very little danger to the individual.  It just looks very dramatic.

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RE: Epilepsy & BDSM - 7/12/2009 4:17:00 PM   
snappykappy


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i do not have epilepsy but do have pulminary hypertension and if i exert to much energy then i do not have enough air in reserve and i am almost like being smothered and very hard to breath and am gasping for air

i am on liquid oxygen 24/7 so i am confined most of the time at home and do not go out

if i do go out then i have a portable oxygen tank for the shoulder and one i also pull along behind me and depending on the flow last approximately 3-4 hours each

just walking about 30 feet is tiring as well as washing myself cant take a shower because it sucks all of the air out of me so i do a sponge bath so to speak but do it bit by bit and rest in between areas

i am awaiting to go to the va med center in madison wisconsin to see the transplant team for final evaluation for a double lung transplant and then if they give the go ahead and wait for the phone call saying they have a good set of lungs for me but of course the lungs will be from someone who has died and i have to be near the hospital and at the most an hour away because lungs only last 6 hours at the most and they are the most fragile organ in the body

i have sarcoidosis it does not have me
i will kick its ass
i refuse to lose
thomas michael

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RE: Epilepsy & BDSM - 7/12/2009 4:22:37 PM   
sweetnurseBBW


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Sir has a seizure disorder and never has issues during play. He takes his meds and makes sure his med levels are where they are supposed to be. Not all epileptics have seizures all the time or have many at all.  Lots of epileptics are very controlled with meds and learning what their seizure activity if any is.  Every person with a seizure disorder is different and learning what their specifics ailments are is better than any advice anyone could give you.

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RE: Epilepsy & BDSM - 7/15/2009 12:27:19 PM   
LyraLaLaurie


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Aside from what other people have said...no electric play :( I have migraines with aura/had some seizures and I felt terribly nauseous when I tried the violet wand. I wouldn't recommend it.

Make sure you have safety scissors....

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RE: Epilepsy & BDSM - 7/15/2009 7:32:10 PM   
Aswad


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First off, the good advice is "talk to the neurologist or primary care physician about it."

Failing that...

I would second the "no electric play" part. Avoid any rythmic stimuli altogether, including touch. Limit the contrast in the room, and don't have any moving or dangling decoration around. None of these things are very likely to be triggers in and of themselves, but in the context of a scene, the neurochemistry can be radically different, so you want to avoid anything that might conceivably affect the seizure threshold. Yes, a bit excessive for someone with well managed epilepsy, but the condition merits taking extra care if you haven't asked the doc yet, particularly when you lack experience with his particular seizure disorder and haven't had to manage one of his seizures under more conventional circumstances.

Educate yourself on his condition, his medication, his triggers, his warning signs, and so forth.

Get to know his doctor and history. Figure out who can answer your questions. Memorize the numbers to call if there is a problem. Have any relevant medical equipment available. Keep safety scissors around and don't leave him alone when he is helpless or might be at additional risk if he has a seizure. Make a note of any abnormal events (e.g. sudden mood shifts or personality changes, movements he's unaware of, muscle twitches, etc.), and keep a record of the food and drink he's getting while he's there, along with the activities you've done. Look for patterns or let the doc do so. If you have some form of exercise pulse meter, use it. (Incidentally, some forms of epilepsy (unilateral temporal lobe seizures) will tend to cause a sudden 30% rise in beats per minute slightly ahead of the main seizure. Not all doctors are aware of this.)

In short, learn and prepare.

You can choose the level of effort vs level of risk to a large extent. Some of what I've suggested is overboard for most of us. Some of it is essential for anyone dealing with epileptics. And all of it will be better if seasoned with common sense as far as play is concerned. Just don't make the mistake of thinking common sense generalizes to the medical aspects of it (a lot of medical details are counterintuitive). Listen to him and his doc about the medical side, tell them both about what you have planned for the play side, and pad out with some common sense.

Docs are used to hearing about BDSM, and are not allowed to pass it on; just make sure they know you're trying to be responsible and would like their help in that regard. Most doctors will be very happy that you are being responsible with their patient. Hell, some will be relieved to know they won't have to dig a broken bottle out of his ass at 4am while pulling a double shift in the ER. As I said, they're used to us, you're just giving them a glimpse of how it's supposed to work. If the doctor is not all that helpful, consult the Kink Aware Professionals list, or ask here if someone knows a neurologist that would be willing to offer kink-friendly advice based on a journal printout (ask the neurologist which extra forms s/he'll need copies of).

Health,
al-Aswad.


_____________________________

"If God saw what any of us did that night, he didn't seem to mind.
From then on I knew: God doesn't make the world this way.
We do.
" -- Rorschack, Watchmen.


(in reply to LyraLaLaurie)
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