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D/s and Multiple Sclerose - 1/13/2009 10:24:35 AM

nhebulax

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Joined: 1/4/2009
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hey ^^

I've recently been diagnosed with Multiple Sclerose and I was wondering if there are more subs/slaves on this website who are going thru the same.

at the moment I am very confused about what to do next. I am certainly not a vanilla but I'm doubting if it would be wise to start a D/s again. at the moment I feel pretty much useless (tho i can be used as a bad example =D )
I try to stay positive and this results in being slightly cynical *coughs*
I very much believe men and women are not equal, I was hoping to spend my life taking care of a D as I am reasonably domestic and I believe it's a womans duty. I have no idea if ill find a D that can accept me because I am ill (people tend to avoid the sick imo) and honestly I would feel awefull if things get bad again and a man would have to look after me, wich is exactly the reason why I moved out of my house wich I shared with a housemate and moved in temporarely with my parents O.o I also believe a D couldn't possibly be proud of the girl He owns if she spends some time in a friggin wheelchair ( I use one when I'm outside :s)

please someone tell me I'm wrong

I'm also wondering if play and copaxone meds (injections) go together. also I would like to know if would you tell someone you'r ill and when?

tyvm for reading this and sorry for the crappy english, it isn't my first language

neb

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RE: D/s and Multiple Sclerose - 1/13/2009 10:46:12 AM

sirsholly

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quote:

I also believe a D couldn't possibly be proud of the girl He owns if she spends some time in a friggin wheelchair ( I use one when I'm outside :s)

please someone tell me I'm wrong

You're wrong...dangerously so.

Please involve yourself with a support group ASAP.

(((((hug)))))

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RE: D/s and Multiple Sclerose - 1/13/2009 12:58:08 PM

pixidustpet

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Joined: 6/4/2008
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i literally have my MRI's tonight to start me on the diagnosis run to see about MS.

TheEngineer has known me 9 years. he's known i have health issues those whole 9 years...sometimes i've used a wheelchair, some days i stay in my jammies all day, some days i have enough energy to do stuff. each day is different.

he's known me 9 years. dec 22 he married me, knowing all these things, knowing the issues i continue to have, knowing that he may outlive me. and yes, we still do the BDSM things we both like doing.

some days he takes care of *me*. some days i take care of *him*. even though he's the dominant, this is a relationship between two people who love each other first, and the D/s comes after. the love and caring we feel towards each other allows us to go beyond the "this is how you should act if you are in a D/s relationship and the roles can NEVER change!" rules that some people think are set in solid steel.

good luck to you.

kitten

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RE: D/s and Multiple Sclerose - 1/13/2009 1:50:19 PM

CallaFirestormBW

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I was diagnosed with multiple sclerosis 11 years ago. I'd had symptoms for better than a decade before that. My primary problem is mobility -- I can't walk for more than about 15 steps without a cane, do most of my ambulation using a mobility scooter at work, and ambulate with difficulty at home (because we live on a property where a scooter isn't feasible at home).

-I have a regular 40 hr + (Ok, closer to 60 hr +) a week job
-I garden (container garden, these days, but I grow about 20% of our food, from an inner-city apartment)
-I make homemade butter and cheese
-I'm a trained pastry chef, and love to bake
-I'm trained in French, Italian, and organic/raw foods cuisine, and cook
-I write novels
-I do temporary piercings and basic and decorative permanent piercings, and will be spending the summer of 2010 interning in tattoo and exotic permanent piercing.
-I am active in the Locavore and Slow Foods movements in our community, and run and participate in web lists and seminars on local, raw, whole, and slow foods
-I teach science fiction worldbuilding
-I am an ordained alt-spirituality minister and provide pastoral care for several 'fringe' communities
-I raised 4 offspring through their teens and into adulthood while suffering MS.

My MS is remitting/progressive (RP). That means that each attack takes away a little more of my mobility. It's pretty slow, though. MS doesn't kill most people. For those who have Remitting/Relapsing and Remitting/Progressive types of MS (the most common), they often have a full lifespan. For me, I've used nutrition, homeopathy, and both regular and alternative healthcare to help me to reduce the damage caused by the MS and extend the period of time between attacks.

I had already entered into my training contract to House Bladewing when I was diagnosed. Sure, we had some rough times, but I did what I could, and kept right on believing that I would get to where I wanted to be.

Only you can decide whether you're going to claim a life for yourself or whether you're going to sit down and give up, but I'm here to tell you that if you want it, you can get it, even with a diagnosis of MS. Feel free to drop me a line off-list.

< Message edited by CallaFirestormBW -- 1/13/2009 1:54:03 PM >

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RE: D/s and Multiple Sclerose - 1/18/2009 4:53:35 PM

sweetnygirl

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I was diagnosed with Relapsing Remitting MS this past June after a few months of testing. I also had Gilliane Barre 5 years ago (peripheral nervous system auto immune disease). My initial reaction was very similar to yours, no body wants me now why would they want me with a disease and in a wheelchair. That lasted about a day and I have since decided while I might have MS it doesn't have me. I have been having D/s sessions with the same Dominant for the past 4 1/2 years and the only changes that are made depend on how I'm doing at the time. If I go numb he moves me around, relieves the problem and goes back to whatever it is we're doing. In fact our sessions are one of the things that help me get through some days. Just the other day he raised my endorphin levels so high that I feel the way I did before I was diagnosed with MS. I also get energy treatments by a healer I know,a combination of Reiki, massage, reflexology and other modalities. I generally work 50 hours a week running a warehouse, unloading trucks and getting stressed out about 7 hours a day. I've also had 6 MS incidents needing solumedrol & prednisone plus other meds, but I refuse to let it ruin my life. Sorry for the lengthy reply but you can do D/s, M/s or whatever you want to call it just take it day by day but don't stop, you might have to change things around sometimes but it's worth it.

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RE: D/s and Multiple Sclerose - 1/18/2009 5:43:17 PM

PghSpanking

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A very close scene friend of mine has MS. Hers is the remitting/relapsing kind, which does make a difference. She plays, goes to parties, and has a Dom. Sometimes life IS harder for her, just like we all have our own struggles, especially those of us who are older.

As someone else mentioned, there are also alternative modalities that can slow the progression of the disease, and help the body stay strong in other ways. Staying as healthy in other ways is important, and not giving in to the depression, anxiety, and hopelessness that can come after a diagnosis that is scary.

Maybe you are not ready for a D/s now. Sometimes we have to focus all of our energy and attention on healing and getting stronger. That is where I am now in my life. I need to do some healing and recovering, to make my life better, before I can commit myself to a relationship. I believe that when I am ready, the man who is right for ME will come into my life.

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RE: D/s and Multiple Sclerose - 3/30/2009 3:31:44 AM

LAgirlsub

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I was hoping after I wrote a lengthy response in a thread on another disease I wouldn't find an MS thread...

You should talk to me in email if you want to ask me more specifics but here's the thing - the US medical establishment will claim I have MS, which is multiple lesions in my brain and maybe one or two in my spine, but that is not the fundamental truth. My 'MS' is because I have been slowly poisoned by my dental amalgams. Mercury poisoning is what caused what they call MS. I am in the best shape of my life and let me say this loud and clear - you will unlikely ever be in a wheelchair. I'll repeat - that is a scare tactic and it's disgusting. Yes, some MSers will be in wheelchairs but MOST are not.

Email me, tell me where you are at in what you're doing and if you want my advice, I'd be happy to point you in the right direction regarding supplments (very important), diet and exercise.

Copaxone is four sythnetic amino acids which is why it was the only drug I allowed in my body ever so briefly. And if it works for you, guess what? You need to add quality proteins in your diet (amino acids - building blocks of proteins). Steroids are good to help stop an exacerbation but are not good long term.

Since this thread isn't too old, you haven't been diagnosed that long. Email me if you have questions.

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