Parkensons Disease...

Parkensons Disease... (Full Version)

All Forums >> [Community Discussions] >> Health and Safety

Message

mstrcorky -> Parkensons Disease... (1/18/2006 8:09:43 PM)
Howdy everyone... I've recently agreed to take a mentor-type agreement with a sub with Parkenson's Disease. Were it not for Michael J. Fox, I would know nothing about Parkensons... so take that to mean that I don't know very much. But, I am trying to learn... I've found a lot of info about PD - it's just taking some time assimilating all this information. I am curious, though - if there are others out there effected by Parkenson's Disease who'd be willing to give me some advice or pointers on dealing with PD in the dungeon settings. Any help would be greatly appreciated! Thanks.

Thor22 -> RE: Parkensons Disease... (1/19/2006 2:53:20 AM)
No problem, cotact me on collar me-- everyone is different so it is not like otjer conditions, I hjave had it for 5/6yrs and last year went to florida for three months-- nshe seemed happy :)) ONE thing never fall sor the error that our minds are as disabled as our bodies, my acuteness ios enhanced rather than diminished! Will go into greater detail if you mail me [Mod Note: email address deleted. Personal contact information is not allowed in the forums]

slaverubyred -> RE: Parkensons Disease... (1/19/2006 3:42:45 AM)
Always make sure she has taken any medication she is prescribed (she will be well aware of the consequences if she doesnt) and at the exact time every day. I know all of the clients (private health care) I have assisted in the past have always maintained they must have it at the right time, otherwise it throws them out for the rest of the day, and if she needs to sleep let her, apart from that let her do for herself unless she asks for help, having control is one thing but taking away someones independance is another thing entirely. Depends also on how far advanced it is as to what her limititations if any yet are. Also you could contact the local Parkinsons Disease Help Line, where you will get plenty of advise on the illness. Also I will say many people do not understand Parkinsons, I know I dont and I have some experience working with people who have it, again depending on the stage of the illness, depends a lot on the 'jerky' movements which some ignorant people find very funny and sometimes it is but make sure you always laugh with them and not AT them :o)

FangsNfeet -> RE: Parkensons Disease... (1/19/2006 12:54:28 PM)
You're already getting great advice so I won't repeat what they said. But here are a couple things that I will advise. 1. Use bondage that can hold her down good and that you can release quickly. 2. How serious is this relationship going to be? It's mostly fun and games when you are doing a scene but what else will you be doing? As you already know, parkensen's still does not have a cure. Treatments are getting better to increase the life span and dignity of the diagnosed but for now, it still wins sooner or later. As the conditions worsen, you'll be having to do more care such as dressing, bathing, and eventually feeding. Not to long after that, you'll be dealing with other health issues about nutrition, weight, immune system, and skin/tissue break down. Finally, you'll be dealing with death. How soon are you ready to loose someone you may have just fallen in love with? These are things I want you to think about. I'm not being cold hearted, just sensible in having you think about your future. I wish this indivdual the best and hope she can be cured before it's to late. Good luck for both of you and your decissions. My prayers are with you.

mstrcorky -> RE: Parkensons Disease... (1/22/2006 12:10:28 PM)
Wow. Thanks for all the great responces... they are sure appreciated. slaverubyred, the guy I plan on working with has been living with PD for many years, he keeps in contact with his doctor, takes his meds - and between him and his Master, they pretty much have things under control. He does have the occasional shaking episodes when he gets stressed, or during the period of time right before he needs to take his meds. But, he's learned to deal with it pretty well, from what I've seen. As a psychologist myself, I don't think of any disease as a disability. In a way, I hate that word. As a guy who is hard of hearing (almost deaf) I don't consider that a disability - just means you have to speak louder if you're standing on my right side. But, that doesn't mean that many of us don't have our physical limitations - and in a sense, that is part of what I am curious about. Which brings me to what FangsNfeet said ... yes, I usually do use bondage that is easy and quick to get off. That isn't because I like to be able to take them down in a few seconds - no matter their conditions - but because I just never mastered the elaborate rope work or more complicated forms of bondage... so I usually just stick with straps, velcro, magnetic restraints, and hooks that - to me, anyway, are just as effective and easier. As far as what I will be doing with this boy - we really haven't discussed too much of the specifics yet. (We are mainly waiting for a time to be able to talk face to face.) The situation is that he and his Master are looking to me for some aditional training - for them both. As far as the relationship goes, while I have agreed to mentor these guys (for lack of a better word) when it comes to the nature of the relationship - I will be the outsider. As FangsNfeet mentioned, the future is the least of my concerns ... as this will most likely be a temporary situation. (If that makes sense.) Thanks again for all the great advise. :-) As I said, I really do appreciate it.

Page: [1]

Collarchat.com © 2025

Terms of Service

0.03125