Atrophic Vaginitis? (Full Version)

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dollparts85 -> Atrophic Vaginitis? (5/18/2009 1:37:34 PM)

I was just looking up the estrogen vaginal cream my ob/gyn suggested to help with my symptoms and came across Atrophic Vaginitis and I have EVERY symptom...

painful urination
blood in urine
urinary frequency
UTIs
stress incontinence
vaginal itching
vaginal burning
dryness
painful intercourse



WTF is wrong with me?! I'm not old. I'm only 23! I've tried two different vaginal gels so far and I take Vesicare for the OAB.




PanthersMom -> RE: Atrophic Vaginitis? (5/18/2009 2:07:56 PM)

in the words of my obgyn, you don't use it, you lose it, even when it comes to that.  go back to your doctor if you're concerned about it, we can't do a pelvic from here. 

PM




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 2:11:03 PM)

Why would there need to be a pelvic? All my tests come back normal. [&:]




littlewonder -> RE: Atrophic Vaginitis? (5/18/2009 3:08:22 PM)

Have you had STD tests done??

If you have and they've all come back negative then I'd suggest to seek out a specialist who can answer your questions for you.

There's tons of reasons for gyn symptoms.




PanthersMom -> RE: Atrophic Vaginitis? (5/18/2009 3:09:32 PM)

the painful intercourse would have my doc doing a pelvic to look for other causes of pain, something out of place or something growing where it shouldn't be.

PM




angelikaJ -> RE: Atrophic Vaginitis? (5/18/2009 5:17:06 PM)

edit:
(to the OP)

IF you want to know the cause of YOUR symptoms, you should ask YOUR doctor.
IF you want to know why s/he feels the need to have you on an estrogen cream, ask HER/him.




tazzygirl -> RE: Atrophic Vaginitis? (5/18/2009 5:27:38 PM)

your OB/GYN suggested this?  without an exam?




LafayetteLady -> RE: Atrophic Vaginitis? (5/18/2009 6:01:44 PM)

quote:

ORIGINAL: dollparts85

I was just looking up the estrogen vaginal cream my ob/gyn suggested to help with my symptoms and came across Atrophic Vaginitis and I have EVERY symptom...

painful urination  This is a symptom of UTIs as well, so it is connected to something
blood in urine  While this can be connected with the UTI, it can indicate something is going on with your kidneys
urinary frequency  Part of UTI symptoms
UTIs  Then not all tests have come back "normal"  If you are getting frequent UTIs you need to talk with your doctor about it.
stress incontinence  There are many causes of this.  Accident, injury childbirth can weaken the pelvic floor.  It CAN BE corrected, but you need to talk with your doctor about it first.
vaginal itching  Itching and burning CAN be caused by a multitude of things, one of which is the stress incontinence.  Again, only talking to your doctor will resolve it.
vaginal burning
dryness
painful intercourse



WTF is wrong with me?! I'm not old. I'm only 23! I've tried two different vaginal gels so far and I take Vesicare for the OAB.


You need to go to your doctor and tell him ALL your symptoms.  Yes, he/she has heard it all before, so there is no need to be embarassed.   Researching your symptoms on the internet can lead to hypocondria, it really should only be a tool to help you tell your doctor what you are experiencing.  Obviously all your tests have not come back "normal" or you wouldn't have been prescribed an estrogen cream, you wouldn't know you had a UTI.  Tell your doctor everything, and if they won't listen, find another doctor.




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 6:13:55 PM)

I've seen many doctors over the past two years or so for these symptoms. They haven't found a cause. I've seen my ob/gyn probably 6-7 times, a urologist and a nephrologist. I've been tested for STDs, multiple urine and vaginal cultures (whenever the pain gets severe, I go to my ob/gyn and do both a urine culture and vaginal culture and it has been coming back normal.) The urologist did a CT scan b/c of the blood and it came back normal. She said that I must be contaminating the samples some how...but I don't see how that could be every single time the dip stick has shown blood over the past year? The nephrologist did some blood work and a 24 hour urine and such. The stress incontinence is a new symptom but my doctor wasn't at all concerned by it and said it's common. My ob/gyn thinks it's simply that my ph balance is getting upset so she gave me this gel stuff that is supposed to correct it and it does reduce the symptoms a bit but doesn't completely get rid of the pain.




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 6:17:04 PM)

quote:

ORIGINAL: LafayetteLady

quote:

ORIGINAL: dollparts85

I was just looking up the estrogen vaginal cream my ob/gyn suggested to help with my symptoms and came across Atrophic Vaginitis and I have EVERY symptom...

painful urination  This is a symptom of UTIs as well, so it is connected to something
blood in urine  While this can be connected with the UTI, it can indicate something is going on with your kidneys
urinary frequency  Part of UTI symptoms
UTIs  Then not all tests have come back "normal"  If you are getting frequent UTIs you need to talk with your doctor about it.
stress incontinence  There are many causes of this.  Accident, injury childbirth can weaken the pelvic floor.  It CAN BE corrected, but you need to talk with your doctor about it first.
vaginal itching  Itching and burning CAN be caused by a multitude of things, one of which is the stress incontinence.  Again, only talking to your doctor will resolve it.
vaginal burning
dryness
painful intercourse



WTF is wrong with me?! I'm not old. I'm only 23! I've tried two different vaginal gels so far and I take Vesicare for the OAB.


You need to go to your doctor and tell him ALL your symptoms.  Yes, he/she has heard it all before, so there is no need to be embarassed.   Researching your symptoms on the internet can lead to hypocondria, it really should only be a tool to help you tell your doctor what you are experiencing.  Obviously all your tests have not come back "normal" or you wouldn't have been prescribed an estrogen cream, you wouldn't know you had a UTI.  Tell your doctor everything, and if they won't listen, find another doctor.


They've all come back normal the past year or so. Last UTI I had was back in May of 2008. (I've been super careful.) same with the bacterial infections...haven't had one since May...but it still feels like I do. It hurts so bad. I think I had a yeast infection starting last month after a round of antibiotics but my doctor gave me Diflucan when she prescribed it so I took it. (I always get them from antibiotics ugh.)




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 6:18:24 PM)

quote:

ORIGINAL: tazzygirl

your OB/GYN suggested this?  without an exam?

I've had more internal exams in my life than the average 40 year old. haha




Lockit -> RE: Atrophic Vaginitis? (5/18/2009 6:28:41 PM)

I am only saying here what doctors told me.

If there is blood in your urine, your test aren't negative.  If it is happening a lot you could have an infection in your bladder wall itself and they need to do a clean catch with a cathiter... or however you spell that, rather than in a cup and may need to go in and see if the infection is in the bladder wall.  I had all that too and for years they could not figure out what was wrong.  If the infection is in the bladder wall you will test free of infection a lot of the time but you really have one, they just can't see it without doing better testing.  Then it just means a long course of antibiotics.

As for the itching and such.. any meds they give you for the infections can cause that.

For me it was a combination of a number of things.  One start was I was allergic or my body was acting as if it was allergic to my husbands cum believe it or not.  I had a friend with the same thing and they had to use condoms at all times.  I divorced so it was no longer an issue. There are also spasms you could be getting that make you feel like you have an infection when you don't but I can't remember the name of what spasms.

You need to keep going to doctors or different doctors until someone actually finds something.  That is your only answer.  You could find a number of things your symptoms might fit... but a doctor and the right doctor is the only way.  Each doctor I saw had a different answer and they would stop with that and it was never the right answer... I had to keep suffering and seeking.




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 6:36:53 PM)

I do have bladder spasms, which I thought was part of the UTIs but my urologist said it's not and prescribed Vesicare to help with that. Now I only get them once in a while if I get a bit dehydrated from my IBS.

I'll go back to my urologist soon and ask about the infection in the bladder wall thing. I used to be scared to death of the idea of cathitors. haha but at this point it's just whatever the hell will fix this! ya know? If they wanted to cut me open, I wouldn't even care.




Lockit -> RE: Atrophic Vaginitis? (5/18/2009 6:39:59 PM)

The cathitors... however you spell that... don't hurt really... maybe a lil pinch depending on who does it from my experience and believe me... they were doing it every week for a long time!  Going into the bladder to see was a bit more painful, but not that bad.




tazzygirl -> RE: Atrophic Vaginitis? (5/18/2009 6:46:51 PM)

have you tried an endocrinologist?  at 23 you seem to have the symptoms of someone going through menopause, which, btw, isnt unheard of at your age, just rare.




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 6:50:08 PM)

I hope it's not menopause...I haven't had children yet and I would really like to have children some day. :( I haven't seen an endocrinologist yet but I have been thinking about asking my doctor about it. I have hypothyroidism anyways and while my numbers are normal now on my meds, I still have symptoms like muscle cramps and fatigue.




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 6:52:01 PM)

quote:

ORIGINAL: Lockit

The cathitors... however you spell that... don't hurt really... maybe a lil pinch depending on who does it from my experience and believe me... they were doing it every week for a long time!  Going into the bladder to see was a bit more painful, but not that bad.

Is it basically like some cramping in the belly when they do it?




LafayetteLady -> RE: Atrophic Vaginitis? (5/18/2009 11:09:17 PM)

Wow, ok.  Catheters (correct spelling) don't hurt.  A doctor who tells you nothing is wrong while finding blood in your urine needs a foot shoved up his/her ass.  If you are contaminating the samples, then they need to use a catheter.  Lockit is 100% right that the meds can cause the itching.  Since I injured my back last December, I have been on varioius pain meds and had allergic reactions that made me itch so bad, I scratched til I broke the skin, then got my period AND the runs and a really nasty infection followed.  I know that is TMI and gross, but the point is that it happens.

Stress incontinence is very common, but you know what?  It doesn't mean you do nothing about it.  After my son was born, I developed it.  Eventually it got really bad and I couldn't take it anymore.  I met with a specialist and a pelvic sling was "installed".  Anyone who says deal with hasn't had to smell like a wet diaper all day.  Doesn't matter if you use pads or not, the smell is still there.  Pelvic sling isn't the only solution, but it did work for me.  My point is that you don't have to just accept it because it is common. 

I know how difficult and aggravating it can be to go to a ton of different doctors.  But your health is worth it.  By the way if your regular doctor is treating your hypthyroidism, you should know that the "scale" for normal is very big and most regular doctors don't know to go beyond that.  A normal reading doesn't always translate into a thyroid that is acting normally on medication.  I'm dealing with that issue myself at the moment.  I have a nodule on my thyroid so all my number fall within the "normal" range, but my thyroid is not properly functioning.

I would suggest not going back to the same urologist again, especially if that was the doctor that dismissed your incontinence as "normal".  It is NOT normal in a 23 year old who hasn't had children or a severe injury.

This may sound a bit odd, do you have a teaching hospital near you?  I've found that because of the residents and interns, they tend to be a bit more willing to go a bit further searching for a solution.

Nothing you are experiencing is "normal".  There are so many stories of people (typically women) who had doctors that kept dismissing their symptoms and telling them there was nothing wrong.  Those women kept pushing forward, changing doctors until a solution was finally found.  Please don't dispair and don't give up.  Make a list of all the symptoms and bring it with you.  Make a list of all your questions as well.  Don't accept anyone telling you nothing is wrong.  You may need to become a bit pushy and very pro-active, but in the end, you will be glad you did.  DO find an endocrinologist to deal with your thyroid issue and make sure that you tell that doctor all of your symptoms.  Your thyroid can mess up practically everything in your body.  It will mess with your periods, your sex drive, your cholesterol, your blood pressure, your energy, your eating, the list goes on.  It can also screw up test results. 

Again, don't give up.  You will find a diagnosis.  Just keep trying and don't take "no" for an answer.  Good luck. 




LafayetteLady -> RE: Atrophic Vaginitis? (5/18/2009 11:10:28 PM)

I didn't have cramping in the belly from being catheterized.  A little pressure at the insertion point, but nothing major. 




dollparts85 -> RE: Atrophic Vaginitis? (5/18/2009 11:39:25 PM)

Thanks! Your post is very helpful.

I've actually had 2 doctors tell me that my urine samples must be contaminated for showing the blood. I also have protein in my urine and they haven't found a real cause for that. I think they just read the other doctor's notes and agree with them or something. It's just so frustrating b/c I *know* something is wrong but they can't find anything.




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