Von Willebrand disease and BDSM play (Full Version)

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ShahaarSkye -> Von Willebrand disease and BDSM play (8/7/2010 7:19:02 PM)

I have a fairly mild version of Von Willebrand disease.  The primary problem with this is my blood is very slow to clot and I bruise easily.  My concern is how much information do I need to give a prospective play partner about this.  Is it sufficient to tell them anything that breaks the skin would be a hard limit or do I need to go into great detail?  I do not normally need to wear a medic alert bracelet but should I perhaps wear one if I am going to a play party?  I don't want to scare off potential partners with the fear that they may accidentally harm me.  I do feel that I have to say something about it.  Any thoughts?



bemyslut -> RE: Von Willebrand disease and BDSM play (8/7/2010 8:08:18 PM)

people with VonWil DeBrand's disease are at much higher risk for bleeding. It doesn't matter if the bleeding is external, such as from a cut or internal as from a blunt force trauma.  The internal bleeding is much more worrisome as there are very little, if any, symptoms until you have lost a significant portion of your circulating blood volume.  You have to be EXTREMELY cautious when participating in any activity!



ShahaarSkye -> RE: Von Willebrand disease and BDSM play (8/7/2010 8:21:17 PM)

I'm aware of that.  That's kind of what I'm talking about.  How much info do I need to give a prospective play partner and when do I do that?



kiwisub12 -> RE: Von Willebrand disease and BDSM play (8/7/2010 8:29:07 PM)

You need to have a frank talk with your doctor - the one that treats you when necessary. YOU need to have a deep understanding of your limits and the activities that you can indulge in, and the only place you can get factual information is from your doc.

Once you have this info. you need to relay it to whomever is topping you. You can't withhold it out of fear that no-one will play with you, because if something were to happen, they wouldn't have the info. they need to assess your condition. It would be as irresponsible as a diabetic withholding knowledge of their condition from a play partner.

Enjoy your play - -  safely! [:D]



DarkSteven -> RE: Von Willebrand disease and BDSM play (8/9/2010 5:58:06 PM)

Just explaining that breaking the skin is a hard limit due to medical issues should be sufficient.  That said, what happens if you get deep tissue bruising - are there issues with that?  If so, you may be unable to take spanking with any implements.



ShahaarSkye -> RE: Von Willebrand disease and BDSM play (8/9/2010 7:20:51 PM)

I'm thinking I will just stay bruised a long time.  I'm not severe enough that I don't feel comfortable testing my limits a bit.  As Kiwi pointed out to me privately I will always win the subbie marks contest



Lucylastic -> RE: Von Willebrand disease and BDSM play (8/9/2010 7:29:58 PM)

Honestly if I were to play with you I would want to know everything you can tell me, and then some.
I wouldnt discount you as a partner, but I would want to know what levels an  limits, and ways of decreasing the risk and how to deal with everything so that an "oops" doesnt begin to be a problem

I wish you luck n fun



January -> RE: Von Willebrand disease and BDSM play (8/9/2010 7:33:37 PM)

Hi Skye,

You should probably rethink impact play altogether. It's not fair for your partner to discover during a session (or even afterwards) that you are shockingly black and blue due to a medical issue.

The fact that it's a "fairly mild" version of the disease doesn't change the fact you are not clotting correctly. They aren't "free" bruises. They are bruises.

Can you get your kicks from a D/s scene instead of a top/bottom one?

January




switchingcrone -> RE: Von Willebrand disease and BDSM play (8/9/2010 7:43:13 PM)

I do feel it would be best to fully disclose your condition with a simplified explanation. External bleeding is visible and can have pressure applied to it to reduce the bleeding until the compliment tree is fully activated. My big concern is internal bleeding if things get a bit too rough. You can't torniquet those. Also I think it would be very importnat to discuss regular hematocrit testing with your PhD. if you are going to push your limits. Also you need to discuss with your doctor if extra Vit K or compliment infusions would be required if you find yourself with extensive bruising( depending on your specific type).
Play safe.
SC



Aswad -> RE: Von Willebrand disease and BDSM play (8/10/2010 7:10:50 PM)

The question isn't whether one might scare someone away with information, but why one would want to play with anyone who doesn't want this information.

Someone on top is essentially responsible for your health while in their care, and I for one would be upset to find that such important information has been withheld. If an accident occurs, I am the one who is responsible for dealing with it, and if I don't know about a clotting disorder, then I can't accurately judge the risk posed by bleeding (external or internal). That kind of information can be important if I need to leave the room to assist EMTs in locating the house, for instance, or when deciding on an exit should a fire occur. I don't need a 20 page manual, but a cheat sheet sure would be nice.

For comparison, if a partner is allergic, I want to know what the known triggers are, how severe they are, and where the epi-pen is.

Common sense, and awareness of who is responsible for what, are important to a rewarding and safe session.

Health,
al-Aswad.



bemyslut -> RE: Von Willebrand disease and BDSM play (8/10/2010 8:39:16 PM)

I would have to agree with Aswad, it is imperative your partners be made aware of your conditions. Even if you have to explain in layman's terms: it is very difficult for you to stop bleeding should it occur. VWD is not a defect in the compliment cascade, or the internal or external pathways. Rather, patients with VWD are lacking either in Factor VIII or VWfactor. Supplementing with Vit K is worthless as this doesn't even address the defect. The initial step in hematostasis is the formation of a platelet plug; without platelet aggregation a person will NOT stop bleeding regardless of how much pressure or bandages are applied. A tourniquet in this case will not stop bleeding it will merely limit blood flow to that extremity. Patients with VWD must be treated with either F8 or DDAVP (in limited cases); Cryoprecipitate and FFP offer some benefits as the clotting factors are concentrated in these blood products

The bottom line--YES you must inform your partner. Secondly, you need to have a back up plan should your session go awry.



stellabella -> RE: Von Willebrand disease and BDSM play (8/14/2010 1:33:31 PM)

I generally turn up with bruises so it makes it easy to explain. Most people haven't heard of von willes so I just tell them I have a mild bleeding disorder and bruise easily... so far it hasn't caused me any major problems but anything which breaks the skin is a hard limit.
Have fun with it



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