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Has any one ever heard of this? - 1/24/2012 7:53:49 PM

xXLithiumXx

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From: Hell, Kentucky
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My daughter was diagnosed with something called Conversion Reaction.

The doctor did not do any kind of neurological exam. He did not really do any kind of blood work. He didn't ask any questions about neurological history or abnormalities .

This is something that developed completely over night, after a case of pleurisy.

I have an appointment with the doctor on Monday to talk to him more in depth, but I wanted to know if any one else has seen or heard anything about this issue.

I am looking for anything that this may be, besides the mental issue they are saying. I ask to ignore the mental issue because in asking both my daughter, and the girl in the video (the one who's symptoms are more pronounced-because that is almost exactly how my daughters is presenting) have stated that at the time of onset, their life was good, the were not stressed or distressed.

http://blisstree.com/feel/today-show-girls-remind-us-hysteria-is-still-a-thing-926/comment-page-1/#comment-744322

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RE: Has any one ever heard of this? - 1/24/2012 8:04:58 PM

Kirata

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He's essentially telling you that her symptoms are psychosomatic.

Somatoform disorders are marked by persistent physical symptoms that cannot be fully explained by a medical condition, substance abuse, or other mental disorder, and seem to stem from psychological issues or conflicts.

I'd recommend a second opinion.

K.

(in reply to xXLithiumXx)

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RE: Has any one ever heard of this? - 1/24/2012 8:09:07 PM

outhere69

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Her illness may be the stressor, or there can be stresses that she's supressing. (I used to swear to my neurologist that I wasn't depressed, since I wasn't weepy depressed, but I really was. My mom was all "well, duh". I didn't believe it until I was put on a trial of prozac for another medical problem.)

Here's some good info:
http://www.mayoclinic.com/health/conversion-disorder/DS00877

(in reply to xXLithiumXx)

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RE: Has any one ever heard of this? - 1/24/2012 8:09:23 PM

xXLithiumXx

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From: Hell, Kentucky
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I agree. And I plan to get one.

I just keep thinking, if this is something that hit all of these girls, and they haven't really done any kind of testing, how can they be so certain.

I would think, based on the way it presents, that it has to almost be something neurological. I mean this literally came up over night. She was fine on Thursday, we went to sleep, she got up Friday and this was happening. Her mind set is good, and she is trying to make light of it and trying to be positive, but I think we are kind of worried that there is something we just aren't seeing. I am calling her insurance provider tomorrow to see if I can just schedule with a neurologist or if I have to have a referral. Something is just telling me this seems like an easy first impression diagnosis because Dr Demento just saw it on the Today show over coffee and pancakes. It just felt like a pat response, I suppose.

But I want to see if any one has ever seen anything else like it, that it may be so I can know where we need to go for a specific idea of what we are dealing with.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

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RE: Has any one ever heard of this? - 1/24/2012 8:29:41 PM

xXLithiumXx

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quote:

ORIGINAL: outhere69

Her illness may be the stressor, or there can be stresses that she's supressing. (I used to swear to my neurologist that I wasn't depressed, since I wasn't weepy depressed, but I really was. My mom was all "well, duh". I didn't believe it until I was put on a trial of prozac for another medical problem.)

Here's some good info:
http://www.mayoclinic.com/health/conversion-disorder/DS00877

Thanks. I will look over that.

I think the thing I am concerned about is the sudden over night issue.

I mean literally, Thursday she was great, looking at going back to school on Monday, and Friday we got up and this is what we had.

I just wonder if there is anything at all else that presents like this.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to outhere69)

Post #: 5

RE: Has any one ever heard of this? - 1/24/2012 8:31:25 PM

xXLithiumXx

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From: Hell, Kentucky
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Conversion disorder symptoms usually appear suddenly after a stressful event. Common symptoms can include:

Poor coordination or balance
Paralysis in an arm or leg
Difficulty swallowing or "a lump in the throat"
Inability to speak
Vision problems, including double vision and blindness
Deafness
Seizures or convulsions
Other conversion disorder symptoms include:

Loss of balance
Numbness or loss of the touch sensation
Inability to feel pain
Hallucinations
Difficulty with walking
Urinary retention

This from the Mayo clinic site.

She doesn't have ANY of these things. Not a single one.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to xXLithiumXx)

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RE: Has any one ever heard of this? - 1/24/2012 8:34:45 PM

littlewonder

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if you don't agree with the dr's theory then find another dr.

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RE: Has any one ever heard of this? - 1/24/2012 8:35:54 PM

xXLithiumXx

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quote:

ORIGINAL: littlewonder

if you don't agree with the dr's theory then find another dr.

That's the plan.

Like I said, though, I am looking to see if any one has ever known anyone with anything that presented like this...just maybe a list of things that can be ruled out when I get her with the neurologist.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to littlewonder)

Post #: 8

RE: Has any one ever heard of this? - 1/24/2012 8:46:41 PM

xxblushesxx

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Well, what *are* her symptoms?
List all that you know.

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RE: Has any one ever heard of this? - 1/24/2012 8:50:31 PM

Duskypearls

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I wonder if Kundalini Awakening should be considered? It can happen spontaneously.

http://www.elcollie.com/st/symptoms.html

A particular book, "Spiritual Emergency," by Stanislav Grof comes to mind. Wish I still had it. Here's his site:

http://www.stanislavgrof.com/

I must also wonder if these girls received the Gardisil vaccine?

< Message edited by Duskypearls -- 1/24/2012 8:58:09 PM >

(in reply to xXLithiumXx)

Post #: 10

RE: Has any one ever heard of this? - 1/24/2012 9:12:10 PM

FrostedFlake

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Uhhmm. Look. In any medical situation there are only three things that could happen. The patient might get better. The patient might stay the same. The patient might get worse.

If the patient gets better, everyone agrees the Doctor is a genius and a saint. Pats on the back all around, solid reputation, secure retirement. If the patient remains the same, the Doctor says,"Let's try this new treatment I just pulled out of my ass." Spin the wheel again. If the patient gets worse, the Doctor will say, "It's too bad you didn't call me sooner.". In sum, either the Doctor wins, or plays again, or passes the blame to the patient. So, of course, the Doctor has a good reputation. How could he not? In a psychiatric diagnosis things are particularly slippery. No one has ever put a psychosomatic illness under a microscope and said, "There it is!" And the supposition is, the patient is a nut. No one ever listens to a nut. He is a nut, you see, and his complaint is therefore nutty, too. You see how that works?

My read is, the Doctor has punted. Doesn't know. Figures there are only three things that can happen, only one is bad, AND that one doesn't affect him.

When a diagnosis is made without using symptoms as the basis one might wonder if the Doctor needs to see a Doctor. So get another opinion, and then get another. Then, you see, you will have two opinions. I would be surprised if either matched the first.

Bottom line. Stroke.

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(in reply to xXLithiumXx)

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RE: Has any one ever heard of this? - 1/24/2012 9:26:27 PM

xXLithiumXx

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From: Hell, Kentucky
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quote:

ORIGINAL: xxblushesxx

Well, what *are* her symptoms?
List all that you know.

No fever, no kind of gastro anything, no sinus anything.

Two weeks ago, she had strep, and on the heels of that, most likely picked up as an upper respiratory infection, she had pleurisy. This was all over the span of two weeks.

Friday we saw the doctor, and I mistakenly thought that the spasm and vocal outbursts were as a result of the pain associated with the pleurisy.

Doc said she should be all better Monday, yesterday. Monday comes, and she is having what I can only compare to a partial convulsion-that is her neck, shoulders, and face convulse and she will make a random noise "NEH!" She has developed a stutter and some shaking in her limbs as well as involuntary limb movement in the arms and hands.

If you looked at the link, there was a girl named Thara (?) Sanchez. My daughters symptoms are identical. She expresses that it is somewhat painful, just a choice of pains; when she holds it in, she grinds her teeth and that wears on the jaws, and when she is openly vocal, she has pain in the diaphragm area of the chest. I am thinking that is because of the sheer force with which she does it.

There is no cussing, it is just a random noise and a sever stutter, just like the girl in the video.

She does it when she sleeps, but not nearly as bad as when she is awake, and it is not as bad when she first wakes up, with the volume and intensity being less than when she is wide awake. However, the intensity and frequency increase through out the day.

Um..her appetite is decent, but it is somewhat difficult for her to eat, because she tremors so much, and the vocal spasms come with the convulsiong of the entire head, neck and shoulder area...but she does eat. No foods, medications, even laundry detergents, have been changed. Everything is pretty static for her.

I have honestly googled all of these combinations until my eyes have bled. It is mind boggling.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to xxblushesxx)

Post #: 12

RE: Has any one ever heard of this? - 1/24/2012 9:30:32 PM

xXLithiumXx

Posts: 723
Joined: 9/2/2008
From: Hell, Kentucky
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quote:

ORIGINAL: FrostedFlake

Uhhmm. Look. In any medical situation there are only three things that could happen. The patient might get better. The patient might stay the same. The patient might get worse.

If the patient gets better, everyone agrees the Doctor is a genius and a saint. Pats on the back all around, solid reputation, secure retirement. If the patient remains the same, the Doctor says,"Let's try this new treatment I just pulled out of my ass." Spin the wheel again. If the patient gets worse, the Doctor will say, "It's too bad you didn't call me sooner.". In sum, either the Doctor wins, or plays again, or passes the blame to the patient. So, of course, the Doctor has a good reputation. How could he not? In a psychiatric diagnosis things are particularly slippery. No one has ever put a psychosomatic illness under a microscope and said, "There it is!" And the supposition is, the patient is a nut. No one ever listens to a nut. He is a nut, you see, and his complaint is therefore nutty, too. You see how that works?

My read is, the Doctor has punted. Doesn't know. Figures there are only three things that can happen, only one is bad, AND that one doesn't affect him.

When a diagnosis is made without using symptoms as the basis one might wonder if the Doctor needs to see a Doctor. So get another opinion, and then get another. Then, you see, you will have two opinions. I would be surprised if either matched the first.

Bottom line. Stroke.

In totality I completely agree with you. I understand, having been under the wide and varied microscope of the psychological world, that there are no static definitions, no completely perfect treatments, and no 100% accurate diagnosis'. That does not stop me from wondering what the hell would make him just shoot that off the hip.

It seems like painting with a wide brush, which I guess is what you are saying. Guessing at what might be right, and using the most current information to describe it.

A second opinion is where we are heading. As I post back and forth here I am researching different GP's that we can check into, because I just got word via email that yes, I have to have a referral for any specialists. Horray for managed health care.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to FrostedFlake)

Post #: 13

RE: Has any one ever heard of this? - 1/24/2012 9:33:31 PM

velvetpetal

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has she ever been given the guardasil injection?

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RE: Has any one ever heard of this? - 1/24/2012 9:35:42 PM

xXLithiumXx

Posts: 723
Joined: 9/2/2008
From: Hell, Kentucky
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quote:

ORIGINAL: Duskypearls

I wonder if Kundalini Awakening should be considered? It can happen spontaneously.

http://www.elcollie.com/st/symptoms.html

A particular book, "Spiritual Emergency," by Stanislav Grof comes to mind. Wish I still had it. Here's his site:

http://www.stanislavgrof.com/

I must also wonder if these girls received the Gardisil vaccine?

No, I did not get that shot for her. It was offered during a time when the girl died from having gotten the shot, or at least that was rumor at the time, and I felt that with the rampant predisposition to cancer in my family (I have lost two grand parents, two uncles, an aunt and three cousins to it.) that it would just be too big of a risk to introduce that element into her body.

She does have chronic ovarian cysts, she is on birthcontrol for that, but is NOT sexually active. Unless she is doing it in the hall at school, which I do not think she could get by with. She literally is at home every day, all day. Not even a walk down the block that she is not with me, or my room mate.

But she has been on it for years now, and has never had even the slightest issue.

I am looking at the different links you have posted. I want to research the first one more, as I have never heard of it.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to Duskypearls)

Post #: 15

RE: Has any one ever heard of this? - 1/24/2012 9:41:00 PM

kjade

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Have you looked into PANDAS disease. It is caused by strep infection and results in torrets like symptoms.

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RE: Has any one ever heard of this? - 1/24/2012 9:45:08 PM

xXLithiumXx

Posts: 723
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From: Hell, Kentucky
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quote:

ORIGINAL: kjade

Have you looked into PANDAS disease. It is caused by strep infection and results in torrets like symptoms.

quote:

PANDAS

No, but I will google it now.

I am literally at the point where everything anyone says I am looking it up and comparing it.

I want to have something to start with.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to kjade)

Post #: 17

RE: Has any one ever heard of this? - 1/24/2012 9:45:28 PM

kjade

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http://intramural.nimh.nih.gov/pdn/web.htm

A friend of my sisters son developed PANDAS after a strep infection when he was 8. You should check it out.

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RE: Has any one ever heard of this? - 1/24/2012 9:48:42 PM

xXLithiumXx

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From: Hell, Kentucky
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So far, PANDAS is coming up closer than anything else I have read so far.

The only thing is, she wasn't OCD, didn't have ADD or ADHD.

If she did, it was something I never noticed, or that she ever complained with.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to xXLithiumXx)

Post #: 19

RE: Has any one ever heard of this? - 1/24/2012 9:50:19 PM

xXLithiumXx

Posts: 723
Joined: 9/2/2008
From: Hell, Kentucky
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quote:

ORIGINAL: kjade

http://intramural.nimh.nih.gov/pdn/web.htm

A friend of my sisters son developed PANDAS after a strep infection when he was 8. You should check it out.

I am going to research it some more, see what else I can find about it. I think it is a valid point to check into it. I have never seen anything like this at all. I am now wondering what the course of action would be, as they have here on these anti seizure meds, and I am always cautious with things like that.

_____________________________

If Barbie is so popular, why do you have to buy her friends?

Ideas don't stay in some minds very long because they don't like solitary confinement

You have to believe in yourself. -Tsun Tzu-

Resident Malkavian.

(in reply to kjade)

Post #: 20

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