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MS support groups - 2/23/2012 6:37:52 PM   
winspiritsbaby


Posts: 141
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Does anyone know of any good MS support groups in the central Wyoming area? I could Google it, but I'm more interested in any firsthand knowledge that can be given.
This may not be needed as the final test results haven't come in yet, but I want to be ready for it if they are positive.
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RE: MS support groups - 2/26/2012 3:17:38 PM   
kalikshama


Posts: 14805
Joined: 8/8/2010
Status: offline
One of the women in my yoga teacher training had advanced MS. I was really proud of her for pursuing her certification despite the challenges she faced.

Best of luck to you.

Management of the effects of MS

Disease-modifying treatments reduce the progression rate of the disease, but do not stop it. As multiple sclerosis progresses, the symptomatology tends to increase. The disease is associated with a variety of symptoms and functional deficits that result in a range of progressive impairments and disability. Management of these deficits is therefore very important. Both drug therapy and neurorehabilitation have shown to ease the burden of some symptoms, though neither influences disease progression.[1][48] Some symptoms have a good response to medication, such as unstable bladder and spasticity, while management of many others is much more complicated.[1] As for any patient with neurologic deficits, a multidisciplinary approach is key to improving quality of life; however, there are particular difficulties in specifying a 'core team' because people with MS may need help from almost any health profession or service at some point.[1] Multidisciplinary rehabilitation programs increase activity and participation of patients but do not influence impairment level.[49]

Historically, individuals suffering from MS were advised against participation in physical activity due to worsening symptoms.[50] However, under the direction of a physiotherapist, participation in physical activity can be safe and has been proven beneficial for patients with MS.[51] Research has supported the rehabilitative role of physical activity in improving muscle power,[52] mobility,[52] mood,[53] bowel health,[54] general conditioning and quality of life.[52] However, it is important to be cautious about not overworking or overheating the patient during the course of exercise. Physiotherapists have the expertise needed to adequately prescribe exercise programs that are suitable for the individual. The FITT equation (frequency of exercise, intensity of exercise, type of exercise and time/duration of exercise) is typically used to prescribe exercises.[51] Depending on the patient, activities may include resistance training,[55] walking, swimming, yoga, tai chi, and others.[54] Determining an appropriate and safe exercise program is challenging and must be carefully individualized to each patient being sure to account for all contraindications and precautions.[51]

(in reply to winspiritsbaby)
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RE: MS support groups - 2/26/2012 5:01:45 PM   
winspiritsbaby


Posts: 141
Status: offline
Thanks kailik. It's not me, but I want to have as much information as possible. We have both done a lot of research already and are as prepared for the actual diagnosis as possible. I am hoping to locate a good support group because we are 90% sure of what the results will be, and he is obviously isn't very happy about it, but I want to be able to have an idea where to send him for additional support that is local to him. There are still a few months before I can move to be closer to him and long distance support isn't the greatest.

(in reply to kalikshama)
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RE: MS support groups - 1/29/2013 10:42:36 AM   
MusicInstr78


Posts: 21
Joined: 1/23/2013
Status: offline
I was diagnosed with ms in the summer of 2003. I do not take any meds for it, but treat it naturally with a mind/body/spirit approach. I have to stay in balance daily, and on those days I am not...stress, sickness, ate something to cause a flare-up it throws my body off. Ms effects every single part of our bodies...physically, the nerves and joints, the organs, mentally, emotionally...every single area of one's life. A simple cold or flu will keep me down twice as long some times, but thank God the longest I have been down since Aug has been maybe a few days. I also have migraines,IBS(goes along with it) but when I am out of relationships that are making me worse and not better I feel incredible. The Master I am seeing knows all my health issues and is aware of how they effect me. Truth be told He is the first person to ever truly take all this seriously but will not let me let it ruin my life or remind me that it can. I am not a victim of ms and never have been. The best place to go is MSACTIVESOURCE I think it is...great site and will not make you feel like you are weak and useless. I felt like that and even at times I will think how can I be a good slave/gf/lover/wife ever because I do not want to feel they are limited because of my limits maybe for that day. I also got dx last march with precancer cells on my cervix...terrible pain after the biopsy and ultimately led to the end of a relationship because of that pain and them not wanting to take care of me. I am a strong woman...very strong...I am an even stronger slave, but sure I need a little more care and attention than most. The most important thing to know is you are not alone in this and there are supplements and things one can do to avoid the medication route. I run/jog daily...I could not even do this 4 years ago. Don't give up!! Keep fighting and know you are stronger than you think.

(in reply to winspiritsbaby)
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RE: MS support groups - 2/14/2013 11:17:24 AM   
ThePrincessKali


Posts: 424
Joined: 9/19/2012
Status: offline
My father passed from complications of MS last year so this is probably off topic but to the OP and anyone else suffering from MS my prayers are with you.

(in reply to MusicInstr78)
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