RE: Got Prayers? (Or Good Wishes?) (Full Version)

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theshytype -> RE: Got Prayers? (Or Good Wishes?) (5/6/2013 1:38:47 PM)

Hoping everything goes well tomorrow! I'm sending happy thoughts over to you and am hoping everything goes well tomorrow!




LafayetteLady -> RE: Got Prayers? (Or Good Wishes?) (5/6/2013 2:15:04 PM)


quote:

ORIGINAL: dcnovice

Meeting a surgeon tomorrow at the Rockefeller Outpatient Pavilion in NYC. I keep chuckling at the word "pavilion." It makes me think I'll be seeing gents in boaters and ladies in chiffon dresses, nibbling tea sandwiches as a string quartet plays.


You should suggest that they hire people to do that. It would help lighten the mood for the people who have to go there.

Seriously though, I really hope you get all good news.




JstAnotherSub -> RE: Got Prayers? (Or Good Wishes?) (5/6/2013 2:17:50 PM)


quote:

ORIGINAL: dcnovice

Warmest thanks to you all!

Tomorrow I'm heading to NYC to consult a highly recommend surgeon at Memorial Sloan-Kettering. Fervently hoping and praying he can get the tumor out of my ass without destroying the anus in the process.

Good luck tomorrow. I gotta say that for some reason your way with words here made me giggle. "You can't call me an asshole! My anus is destroyed jackass!".

I know, my humor is sometimes strange.

((((HUGS))))




LafayetteLady -> RE: Got Prayers? (Or Good Wishes?) (5/6/2013 2:19:50 PM)

If anyone's sense of humor can help them through this, it seems to be dc's. I will be praying for his anus. God knows that anuses are very important. Assholes, not so much.




ShaharThorne -> RE: Got Prayers? (Or Good Wishes?) (5/7/2013 6:42:59 AM)

Still burning candles...




dcnovice -> RE: Got Prayers? (Or Good Wishes?) (5/7/2013 7:16:34 PM)

Thanks, everyone! As ever, I deeply appreciate the kind support.

Today's update:

Well . . .

There were no tea sandwiches. Also no boaters or chiffon dresses or strings players. But that didn't bother me.

What did bother me was leaving after almost four hours without the one thing for which I'd specifically trekked north--the promise of what Warren Harding called "a return to normalcy." (Both Woodrow and Edith Wilson, by the way, were affronted by that 1920 campaign slogan, they which took as an insult to their administration. But I digress.)

I'm probably digressing because I don't want to face the hard fact that a third surgeon--highly acclaimed and practicing at one of the nation's leading cancer centers--confirmed what I'd heard from docs down here: MiMA's location, at just about my rear exit, makes it exceedingly unlikely I'll emerge from surgery with the rest of my plumbing intact.

The surgeon offered two options: (a) a permanent colostomy or (b) a colon resection. The latter involves removing my rectum and (if I understood correctly) a fair chunk of my anus. They would then connect my colon directly to the anus. The problem with Plan B is that I'd likely be semi-continent, needing frequent bathroom breaks and always running the risk of accidents. Neither option thrills me, to be honest. I'm gonna think hard over the next few days to sort out which is the lesser of two evils.

One interesting nuance that emerged during the discussion is that the Sloan Rangers tend to do chemo before surgery, rather than after. I'll have to check with my oncologist here to see what he makes of that suggestion. Fortunately, I came home to a voicemail reminder about an appointment with him Thursday afternoon.

I also felt a bit let down by, of all people, the Almighty. Last night, for the first time in maybe a fortnight, I mustered the energy and focus to say Compline (night prayer) before bed. By wonderful coincidence, my one-a-night trudge through the psalter had landed me on Psalm 27. It opens with heartening words:

The LORD is my light and my salvation;
whom then shall I fear?
the LORD is the strength of my life;
of whom then shall I be afraid?

The psalmist then goes on to discuss trusting God even in the face of fear and war and danger. Well, I did that, as best I could, last night, and I still emerged from today's consultation feeling more like Job than the psalmist. Oh well. I'm not planning to solve the puzzles of theodicy tonight--or anytime soon.

Meantime, it's off to bed and back to work. Need to claim as much "normalcy" as I can right now.






theshytype -> RE: Got Prayers? (Or Good Wishes?) (5/7/2013 7:40:22 PM)

I'm sorry things didn't go better. I'm glad you made it home safe, though.
Out of curiosity, if you did go with plan B, is there any (decent) chance the plumbing wouldn't leak? Also, if you went that way and things were unbearable, what would your options be after that?

Anyway, I hope you have a restful nights sleep and a nice day at work!




kdsub -> RE: Got Prayers? (Or Good Wishes?) (5/7/2013 9:25:45 PM)

dcnovice

Things sound bad I'll agree but let me just tell you of two friends that faced your same decision.

FIRST... both are alive today. One had the full colostomy 12 years ago the other had a temporary colostomy for a year then the reattachment.

Ron... had the full colostomy and although I do not know how this effected his sex life I can tell you he lives a full life now...well adjusted to his condition with few problems. He feels free to talk about his condition and says the only problems he has is skin irritation from time to time. Once in a great while an accident... and there are some foods he has to eat in moderation such as corn. He says he hardly thinks of it anymore and it is not as bad as it sounds.

Jim had the reattachment surgery 7 years ago. He does have frequent bowel movements and his biggest complaint is rectal irritation. For the first 5 years his bowl movements were three times normal. The last two years they have become even more frequent requiring medications. Things are manageable he tells me but he must keep to a strict eating schedule to at least feel somewhat confident when he leaves the house. He leads a normal life with a little care. On occasions when he will be out for some time he will wear incontinence pants and keep a spare handy.

Both men function just fine and seem reasonably happy. Ron is married and Jim is divorced.

I am hoping that hearing their story will at least help you understand you will be just fine ...can still be happy...even if there will be some adjustment. Both men told me they were very depressed at first. Jim told me he thought of suicide and his attitude held back his recovery. But both said the depression lifted when they found out they can live their lives just fine.

PS...Jim is kinky as hell he even hits on me...lol he has two girl friends although he does not tell me what he does with them...but they keep coming back for more so it must be working OK.

Butch




LafayetteLady -> RE: Got Prayers? (Or Good Wishes?) (5/7/2013 9:44:56 PM)


quote:

ORIGINAL: theshytype

I'm sorry things didn't go better. I'm glad you made it home safe, though.
Out of curiosity, if you did go with plan B, is there any (decent) chance the plumbing wouldn't leak? Also, if you went that way and things were unbearable, what would your options be after that?

Anyway, I hope you have a restful nights sleep and a nice day at work!


This was my first thought as well.

dc, I realize this was not the news you were hoping and praying for. I won't get into a theological discussion, and I'm sure you don't want to bother with it now. Continuing to pray for strength and perhaps even telling God you are a bit pissed at him at the moment wouldn't be a bad idea.

Think about it, ask your regular doctor on Thursday what his opinions are and take it from there. As butch pointed out, you can still lead a good life. I'm sure that while sex is far from your mind at the moment, you will want it again someday, and you should talk to your doctor about that. Butch's friends are apparently straight, so I'm going to assume their sex life (as in the act itself) is a bit different for them than you. Hopefully, you are comfortable enough to discuss this with that doctor and more important, he will hopefully tell you that when all is said and done and you are on the road to remission, sex can be part of your life again.

As always, you have my prayers and positive thoughts that you will get the answers you need to make the right decision for you.




SDFemDom4cuck -> RE: Got Prayers? (Or Good Wishes?) (5/7/2013 9:57:22 PM)

:(

I know your time and energy is limited at the moment but have you tried any websites that deal with this type of cancer and its aftermath?. They are sure to have forums where people will talk about exactly what to expect with either choice you were to go with. Just a thought and may be a good place for support for talking with others that have gone through what you are facing. I can relate only so much. I can commiserate on chemo and well meaning relatives and the frustration of exhaustion.

Prayers and candles being burned furiously...Love ya ninja grizzly!





Marini -> RE: Got Prayers? (Or Good Wishes?) (5/8/2013 6:51:54 PM)

{{{{{Huggles for dc}}}}}
I am sorry you didn't get the news that you certainly wanted to hear.
I am glad you are researching all your options.

With all the advances being made in medicine, I pray that whatever route you decide to take, you have a full recovery and are able to live comfortably.

Still have you in my prayers, dc.

Peace, blessings and healing prayers




Level -> RE: Got Prayers? (Or Good Wishes?) (5/8/2013 7:00:52 PM)

Pal, I'm sorry. I know it's disappointing. Try to take Butch's post to heart, if you can.




TheBanshee -> RE: Got Prayers? (Or Good Wishes?) (5/9/2013 4:37:01 AM)

You're still in my prayers, DC - stay strong.




ShaharThorne -> RE: Got Prayers? (Or Good Wishes?) (5/12/2013 4:37:26 PM)

Just checking up on you...




dcnovice -> RE: Got Prayers? (Or Good Wishes?) (5/13/2013 6:55:50 PM)

Wee bit o' venting here.

This just in:

I think that we need a next plan of action. Did you book the cat scan? What about the mri? Did you call for the prescription? I know it is overwhelming but we are running out of time.
Mom


My reply:

I know you mean well, and I really do appreciate all the support. But anxious, rapid-fire questions honestly aren't helpful.

I needed, and took, a cancer-free weekend. Then I actually focused on work at work today. I'll wade back into the medical stuff tomorrow. If the WHC surgeon is correct, MiMA's been squatting in my rectum for ten years. Another day isn't going to kill me. 8-)

Sound reasonable?





LadyPact -> RE: Got Prayers? (Or Good Wishes?) (5/13/2013 7:09:20 PM)

We're still with you, dc.




theshytype -> RE: Got Prayers? (Or Good Wishes?) (5/13/2013 7:16:49 PM)

I say that sounds very reasonable!

Now, if I replied to my mother that way I'd get the silent treatment from hell (which isn't always a bad thing). If she asks a question, you better answer her and it better be the answer she wants to hear.




LafayetteLady -> RE: Got Prayers? (Or Good Wishes?) (5/13/2013 7:17:37 PM)

You take a cancer free weekend, you you WORK? Next time, try to enjoy some time with non-obnoxious friends and doing fun things.




dcnovice -> RE: Got Prayers? (Or Good Wishes?) (5/13/2013 7:23:53 PM)

quote:

You take a cancer free weekend, you you WORK? Next time, try to enjoy some time with non-obnoxious friends and doing fun things.

No, I spent the weekend relaxing and hanging with dear friends. I did cheat a bit and start reading The Emperor of All Maladies, which is fascinating and beautifully written.

Didn't focus on work till I was back there today. [:)]




LafayetteLady -> RE: Got Prayers? (Or Good Wishes?) (5/13/2013 7:32:28 PM)

I misread. Glad to know I did. Perhaps you could try to make every weekend a cancer-free weekend. After all, your doctors and what not are off, so they aren't available to you anyway. I think it can do you a world of good.




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