LafayetteLady-glad to see that you are doing better. Sounds like you have gone to hell and back.
Just curious but when I was first given 50,000 Vitamin D, I always thought it was too much. Is two dosages of 50,000 a standard dosage? I only ask because I'm low on vitamin D and taking 50,000 once a week.
Also, this is more of a general question to anyone experiencing thyroid problems.
Over the summer, I had a tumor removed that effected my hormones. My doctor put me on a 3 month birth control pill to prevent new tumors from forming. during this time (in november), I went to my endocrinologist for my 6 month checkup (as my Hashimoto's was regulated at the moment) and while the Free T3 was high, the T4 was normal but antibodies were shot through the roof. With that being said, he left the meds at the current dosage. I felt fine. Nothing felt off at the moment.
Now here is where it gets tricky. I just finished up my second 3 month dose of birth control (in december) and about 3 weeks ago, I started to gain weight and show symptoms of being "off" but it happened really quickly-I've had Hashimoto's for about 13 years now and this is the first time where the weight gain was pretty quick. It was like I was not on medication at all. That is how rapid it happened. It's only a 10 pound gain but it's enough to make me notice, especially when my weight has been stable for so long.
So my question is-has anyone experienced anything like this where hormone/estrogen fluctuations cause that much of an upset?
It may be that I experienced a serious surgery and my body is still not back to normal so the holiday eats may have caused a trickle down effect so I'm watching what I'm eating and keeping an eye on things but there is a part of me that is worried about the hormone change being the culprit. If anyone has any stories they would like to share or suggestions on what to look for, please let me know.
Also, if anyone knows of a good endocrinologist in NNJ or NYC....I'm all ears. I am not happy with the one that I am seeing now.
Absolutely, yes, my endo here now works together with my endo in LA, and basically they share blood tests.
My antibodies were through the roof about 18 months ago, which was pretty awful as I was compatible to somebody with leukemia as a donor for bone marrow, as long as the antibodies were too high, they couldn't use my bone marrow as it would have caused her problems.
The result was also putting me on the pill (apparently a misfiring thyroid takes a lot of stuff from your body, including estrogen and due to only having one ovary left, it seemed to be a bit of a problem anyway), switching me over to an NDT, increasing the vitamin D and B12 dramatically and adding folate and some DHEA. I also take some selenium.
They did a test where they checked for reverse T3 and it turned out I produced a lot of that with levo, as apparently I can't really metabolize levo.
Previous to that, they put my adrenals right, because they supplemented for the lack of proper thyroid function, so my sleep patterns were more than erratic, it was a bit of a pain in the neck as I had to give up coffee, tea, carbonated drinks, etc. It basically can become pretty much of a vicious cycle, as the more your adrenals work, the more the thyroid takes a good kicking.
It seriously worked wonders, my energy levels went through the roof, within 3 months the antibodies were in complete remission, I didn't lose much weight (maybe 10 lbs) but toned up beyond believe and dropped from a size 8 to a 2 without effort, they waited another 6 months to make sure it was stable and the antibodies aren't coming back and then tapped me for the bone marrow.
The way they explained it to me was that the adrenals have to be addressed first as there is a relation to the thyroid, then without the right amount of D and B12 you can have all the T3 in your body, it just doesn't get metabolized in the cells, they seem to be some sort of facilitator. I have regular B12 shots and take 5000 units of D3 a day and twice a week double up on it. Basically my ranges have to be not "within range" but at the optimal range, which is the upper third.
I wish they would have done that years ago, it was like I got my life back and the dogs are now worried about my energy levels...
Oh and absolutely GF as the body reacts to the gluten by producing antibodies.
Thanks for the info, JC.
We have spoken about our thyroid maladies in the past. I've cut a shit-ton of gluten out of my diet over the past year or so because I have noticed a sensitivity to it but I will admit-I'm not 100% GF. I do love stuffing during the holidays. Lol.
My problem is that my endo is a real asshole and not to get into details but when I asked for copies of my medical records, I was asked by his receptionist if I was "going to another doctor and why would I leave him and if I was leaving him (I wasn't at the moment) then they would charge me for my medical records)". There are other outstanding factors as to why I don't want to go back to that office but that kind of behavior caught me off guard.
I found another doctor but that appointment is in the end of February (as opposed to May, when they originally scheduled me).
I'm wondering if it would be possible to double up on my vitamin D to see if that makes a change at all. I'm on 50,000 a week and when I last seen my doctor, it was low but that may have been because I skipped 2 weeks before my bloodwork was done. It doesn't feel like it's increased since being back on it.
"The desire to inflict pain, that is all that is uppermost"-Albert Fish