Trigeminal Neuralgia

Collarspace Discussion Forums

Home Login Search

Trigeminal Neuralgia

View related threads: (in this forum | in all forums)

Logged in as: Guest

All Forums >> [Community Discussions] >> Health and Safety >> Trigeminal Neuralgia

Page: [1]

Message

<< Older Topic Newer Topic >>

Trigeminal Neuralgia - 4/29/2007 4:06:27 AM

Dastardly

Posts: 58
Joined: 5/30/2006
Status: offline

Anyone else got this? I was diagnosed a couple of months ago and am just settling into the meds - I'm currently on 800mg of Tegretol which I seem to be ok with but it's definitely having an effect on my mood, I seem to be flatlining most of the time, no big highs or lows anymore. Anyone else on this for other conditions?

Really glad the pain is under control, it was the most excruciating thing I have ever experienced in my life, but it would be nice to see if anyone else lives with this condition

Many thanks

D

_____________________________

'Out of sorrow entire worlds have been built
Out of longing great wonders have been willed'
Nick Cave

Profile

Post #: 1

RE: Trigeminal Neuralgia - 4/29/2007 6:20:30 AM

windchymes

Posts: 9410
Joined: 4/18/2005
Status: offline

I don't have it, but I had a friend who did and I remember the agony she went through. Meds didn't help her much and she finally had to have the surgery to sever the nerve (this was years ago). She said that little bit of paralysis was worth it to be rid of the pain.

I'm glad your meds are helping, good luck! :)

_____________________________

You know it's going to be a GOOD blow job when she puts a Breathe Right strip on first.

Pick-up artists and garbage men should trade names.

(in reply to Dastardly)

Profile

Post #: 2

RE: Trigeminal Neuralgia - 4/29/2007 9:29:17 PM

sweetnurseBBW

Posts: 2464
Joined: 1/26/2006
From: North Carolina
Status: offline

My sister had it a few years ago. The meds did make her spacey but she said she would rather have that then the pain. She still has some defecits on her face from the paralysis.

_____________________________

Sir Pain's pain slut

(in reply to Dastardly)

Profile

Post #: 3

RE: Trigeminal Neuralgia - 4/30/2007 8:36:34 AM

Aswad

Posts: 9374
Joined: 4/4/2007
Status: offline

quote:

ORIGINAL: Dastardly

I'm currently on 800mg of Tegretol which I seem to be ok with but it's definitely having an effect on my mood, I seem to be flatlining most of the time, no big highs or lows anymore.

Carbamazepine (Tegretol) is a mood stabilizer and an anticonvulsant.

You could try a different anticonvulsant with less "mood stabilizing" effects, or a tricyclic like nortriptyline. That might reduce the problems with flattened affect.

Alternately, if painkillers work for you, it might be possible to deal with it using long-acting opioid painkillers like buprenorphine or methadone, possibly along with memantine to reduce tolerance buildup, and occasional rounds of Protein Kinase C inhibitors and/or ketamine to reverse it.

Neuralgias aren't something I've looked into, though, but I know a guy who's done some research on treating them with tricyclics, so I could ask him for a clue when/if he's available again. Your own doc is probably a better bet, though.

_____________________________

"If God saw what any of us did that night, he didn't seem to mind.
From then on I knew: God doesn't make the world this way.
We do." -- Rorschack, Watchmen.

(in reply to Dastardly)

Profile

Post #: 4

RE: Trigeminal Neuralgia - 4/30/2007 9:57:40 AM

Dastardly

Posts: 58
Joined: 5/30/2006
Status: offline

Cheers for the replies everyone

Aswad, I'm hoping the meds kinda even out, it galls me to be on mood stabilisers when my mood was effin fabulous before this LOL. However, as the OPs have said, the pain is so hideous that I am just grateful for that to be gone. Thanks for the advice though, half of that stuff I haven't even heard of.

Once I've visited the neurosurgeon I'm going to look into having some accupuncture as apparently this has a high success rate. I've had it before for other stuff and love it so I am fingers crossed about that.

_____________________________

'Out of sorrow entire worlds have been built
Out of longing great wonders have been willed'
Nick Cave

(in reply to Aswad)

Profile

Post #: 5

RE: Trigeminal Neuralgia - 4/30/2007 1:38:08 PM

windchymes

Posts: 9410
Joined: 4/18/2005
Status: offline

Good luck!

_____________________________

You know it's going to be a GOOD blow job when she puts a Breathe Right strip on first.

Pick-up artists and garbage men should trade names.

(in reply to Dastardly)

Profile

Post #: 6

RE: Trigeminal Neuralgia - 5/1/2007 9:51:46 AM

Kitte9

Posts: 411
Joined: 11/26/2006
Status: offline

I have no idea what your condition means, but I was on Tegretol for several years to treat epilepsy. Yes, it will kill you sex life. Took care of my siezures, but i couldn't orgasm to save my life. That was frustrating as hell, so I talked to my doctor and we tried other meds. Eventually I got to the point I didn't need them at all, and I am happy to say my sex drive is as healthy as it ever was.

_____________________________

I am stronger than yesterday

(in reply to Dastardly)

Profile

Post #: 7

RE: Trigeminal Neuralgia - 5/2/2007 5:38:42 AM

Dastardly

Posts: 58
Joined: 5/30/2006
Status: offline

Ex-squeeze me? Unable to orgasm?????? *coffs* I don't seem to have hit that just yet but I do know that my moods are very la li laaaaaaaaa.......................*makes flat humming sound*..............very odd indeed. I'm a bit of a drama queen by nature and it is disconcerting to just shrug my shoulders and go meh at things that would normally have me flouncing LOL

Kitte9, really glad to hear you're off the meds and well

< Message edited by Dastardly -- 5/2/2007 5:39:21 AM >

_____________________________

'Out of sorrow entire worlds have been built
Out of longing great wonders have been willed'
Nick Cave

(in reply to Kitte9)

Profile

Post #: 8