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RE: Fibro sub???? - 3/20/2009 3:30:52 PM

Mikalsheart

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From: kentucky
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that would be great if He HAD a prefered time.......lol

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RE: Fibro sub???? - 3/20/2009 3:36:15 PM

Mikalsheart

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Thanks ! i'll get the little Vicks stick next time W/we're at wally world.

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RE: Fibro sub???? - 3/20/2009 3:40:30 PM

Thunderbird56

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"If one has a therory or prognosis or test... with merit... someone would latch on to that in a heartbeat trying to be the great wiz doc of the century."

I'm only relaying what he said, but don't be too certain of your stance. Modern medicine is not interested in curing people ... they are interested in "managing your health care". Much less accountability and much more money in the long run. Chelation and other "outside the box" treatments and therapy are viewed by traditional medicine as 'one step below voo-doo'.
My doctor is so outside the box he accepts NO 3rd party payments; no insurance, no medicare, no medicaid. They will help you, if needed, with the forms for insurance etc. but you pay him! He also doesn't carry mal-practice insurance!
Why do I see him? Because my last doctor charged $250 for an office call and I don't have insurance. The holistic doctor charges $47 for an office call, & saved me over $100 a month and side effects by taking me off Lipitor and suggesting the same could be accomplished with a natural OTC "statin drug" red yeast rice. Oh, and I get to talk to him for at least 1/2 hour to 45 minutes every time I go in!

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RE: Fibro sub???? - 3/20/2009 3:55:44 PM

lovingpet

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I know your pain OP. What I do not get is the insensitivity of your partner. That needs some examination just as much as your body may.

Boiled vinegar on the stove works well. Just inhale the vapors. It is cheap and works quite well. A mustard and horseradish plaster is handy too. For long term like this, I would agree you should be steering clear of medications. As for the kneeling thing, well I tend to find that submission is far more than just an act or two. Try a big fluffy pillow under, or a stool as already suggested.  He can always place himself in a higher position without you having to go lower. Same effect, but more consideration for your limitations.

Just remember, your limitations are a part of you and in disregarding them, it is a show of disrespect to you. I wish you all the best and hope you can work things out!

lovingpet

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RE: Fibro sub???? - 3/20/2009 5:04:11 PM

Mikalsheart

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Thanks E/everyone it sounds like i'll be trying a variety of things.....something is "bound" to work......

walk off giggling.......

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RE: Fibro sub???? - 3/20/2009 5:18:21 PM

Lockit

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quote:

ORIGINAL: Thunderbird56

"If one has a therory or prognosis or test... with merit... someone would latch on to that in a heartbeat trying to be the great wiz doc of the century."

I'm only relaying what he said, but don't be too certain of your stance. Modern medicine is not interested in curing people ... they are interested in "managing your health care". Much less accountability and much more money in the long run. Chelation and other "outside the box" treatments and therapy are viewed by traditional medicine as 'one step below voo-doo'.
My doctor is so outside the box he accepts NO 3rd party payments; no insurance, no medicare, no medicaid. They will help you, if needed, with the forms for insurance etc. but you pay him! He also doesn't carry mal-practice insurance!
Why do I see him? Because my last doctor charged $250 for an office call and I don't have insurance. The holistic doctor charges $47 for an office call, & saved me over $100 a month and side effects by taking me off Lipitor and suggesting the same could be accomplished with a natural OTC "statin drug" red yeast rice. Oh, and I get to talk to him for at least 1/2 hour to 45 minutes every time I go in!

I have had holistic medical professionals. They vary in how they take certain illness, just as any medical professional will. There are good one's and not so good one's. I do not like the medical community on a whole and how things are done especially in western medicine... more even more so... medicine in the US. I know that no matter who it was... that discovered a fool proof treatment for everyone with fibro... that worked for everyone with fibro... the person would be a hero and people would be word of mouthing him into a mini god!

I have been researching this and treatments... whatever kind for many years and I have not found one thing... doctor... treatment or anything else that works for everyone. I stand by my statment. I also look at different things throughout my lifetime, that some doctor came up with and everyone pooh poohed them and they were correct. My mind is open to some degree... but to think that fibro is a heavy metal thing and needs one treatment... well that is a claim I have heard along with others and science and living with fibro doesn't prove his theory valid for the majority of fibro patients.

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RE: Fibro sub???? - 3/20/2009 6:19:33 PM

Mikalsheart

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i couldn't agree with you more....even some of the things that were working on me at times have quit and i have had to change meds etc..... you do what you have to do to live with as little pain as possible....(from the fibro)

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RE: Fibro sub???? - 3/21/2009 6:59:31 AM

camille65

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On the sinus problems, just find a different positioning where you don't have to bend over. Actually that holds for fibro as well, you need to find different ways to do things. Keep hyper aware of your body and find out what triggers pain then avoid those things.

I use tools to help me, things like a sex sling to help keep my legs up without straining my hips. Adding pillows to certain areas. He makes sure that I don't stay restrained in one position for too long. Massage can help but be careful, some bodies can't tolerate it very well.

Keep yourself active. That doesn't mean you need to go jogging daily but find some activity that makes your body move. I found Ai Chi, Tai Chi done in water and holycow it has made an amazing difference in how I move. Watch your diet, processed foods and sugars are a no-no. I kept a daily diary for months, finding out what causes what and cutting that out of my world.

If you do some 'search' terms on here there have been a lot of fibro-bdsm threads, we have a lotta folks with the same problems.

Educating your dominant will help too. They may understand that you have fibro but not truly understand what fibro means.

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RE: Fibro sub???? - 3/21/2009 9:59:00 AM

Mikalsheart

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Thank E/everyone...i will take a look and see what works and doesn't for me. i can't wait until the weather warm up so i can get in the pool!!... i'll look up the other posts too..........thanks !!!!!!

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RE: Fibro sub???? - 3/22/2009 4:27:47 PM

Mikalsheart

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WooooooHooooooo picked up a Vicks inhaler yesterday afternoon....20 minutes later.....mmmmmmmmm i could breathe, Master was so happy He went shopping and bought all kinds of new toys!!!!!!! i can't thank you A/all enough!!! (also got some saline spray too)

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RE: Fibro sub???? - 3/22/2009 6:16:38 PM

Caillin

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If being horizontal or head down is a problem, can he spank you with you in a position where you are heads up? Try messing around with pillows under your chest and see if that helps.

I can't kneel. But I can sit cross legged for a few minutes.

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RE: Fibro sub???? - 3/24/2009 5:59:02 AM

Mikalsheart

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Cross legged on the floor is a possibility W/we had not come up with....W/we tried a different position with me on the bed and Him standing next to it.....it was about 15 minutes after the Vicks stick and worked wonderfully, He could paddle my ass as i served Him. yummmmmmmmmm

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RE: Fibro sub???? - 3/24/2009 6:33:32 PM

TranceTara

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For sinuses, I remember someone mentioning a neti pot. Those are great. You can also add Xylitol to the saline for a great wash that cleans out the nasal passages. There is also a xylitol nasal wash or spray called Xlear. It's great at preventing as well as getting over an infection.

Another thing that can help is a breathing technique called the Buteyko Method. You can google it and learn more about it. It has helped many people with chronic sinus problems, asthma, chronic fatigue, fibromaylgia, and many other problems.

I used to suffer severe asthma and sinus problems. Last year I could barely walk up a flight of stairs without triggering an attack. Today, I am able to walk, long distances, and even uphill, with no problem. I have not had an attack in 9 months. If my sinuses begin to get stuffy, I practice my Buteyko and they clear up usually within 5 to 10 minutes.

As for the fibromyalgia, that is such a blanket term. I used to suffer severe fibromyalgia and chronic fatigue. I had tried chiropractic, acupuncture, fasting, and many other forms of healing. It wasn't until I saw a cranio sacral therapist for fascial unwinding that my fibromyalgia began to clear up. I found myself in a lot of pain a few weeks ago and really missed my CS therapist for she moved away. I needed a tune up.

Well, I prayed and a chiropractor walked into my store and his technique was in alignment with where I was and after two adjustments the severe pain has almost gone. I still have some remnants as my body readjusts and muscles that had nerve impulses blocked are coming back to life. And, amazingly, my chiropractor just started learning The Buteyko Method from another of his clients. He needed some help with his asthma and allergies. Small world! :-)

If you need any links, let me know and I can Cmail you.

Good luck.
TT

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RE: Fibro sub???? - 4/4/2009 3:33:16 PM

LAgirlsub

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I have two suggestions:

1. Malic acid for your fibro if you haven't tried it (with magnesium)
http://chronic-illness-treatments.suite101.com/article.cfm/trigger_point_therapy_to_relieve_chronic_pain

2. My sinus problems have been essentially cured by this literally 10 min procedure I had at the ears, nose, throat specialist at Kaiser. I don't know if it would pertain to your situation - but it has helped me tremendously:

I had this brief, laser procedure where my turbines (inside my nose) blocked my breathing, which basically this now gave me more physical space inside my nose and hence I can breath better. I do have allergies, I do still get some congestion but it isn't anywhere near as bothersome now that I physically have more breathing space inside my nose.

So if you don't have as much physical space inside your nose, I found this procedure fast, not painful and full healing took a few weeks but nothing bad at all. To give an example, when I used an Imitrex nose spray for migraines, I could put it in my nose but not that far - after this procedure it's wild that I can go all the way up my nose (not that I'd want to). So if that's an issue, this procedure did wonders for me. I was endlessly using nasal spray to get sleep most nights and now it's rare that I use it.

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RE: Fibro sub???? - 4/4/2009 5:26:41 PM

MissEnchanted

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quote:

ORIGINAL: Mikalsheart

He has not brought this up to me until last night ....W/we both know i have limitations but it has just been recently (plus a very damp winter) that seem to have made my sinuses worse.
If i know W/we are to have playtime..i usually take something to make it easier for me to move from the fibro....

i would like ideas all day long as you put it.that is why i am here, for help....

I used to run a support group for people with Fibro.

If you chat with your doc and delve more deeply into the sinuses thing, you may be able to get a handle on that specifically.

There are new meds out for sinus trouble and several of them have fewer side-effects.

ps: many I know are having trouble with allergies this year,

Me

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RE: Fibro sub???? - 4/14/2009 7:24:26 AM

slavekahlan

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Wow it is amazing how many individuals are affected by fibro and CFIDS. It is unique to each person coming with a multitude of symptoms and affects. i have severe fibro and cfids noticing that although those who i love and care about try to understand until they experience it they may never truly know. The Medical and Legal communities are trying to catch up yet often are not as knowledgeable as they would present or as accepting as they may appear, in my opinion. There is great information on about.com, the cfids association, fibromyalgia association as well a MD sites online. There is absolute cause only causal relationships especially for chronic fatigue per clinics, research centers, the CDC, the ADA to date so i am curious how there is an absolute cure without a concrete basis for development only theoretical?

respectfully Master David's kahlan

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