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RE: Parents of special needs kids - 7/21/2009 9:17:01 PM   
DesFIP


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From: Apple County NY
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quote:

ORIGINAL: Rainfire

Celeste, how young can a child be diagnosed with bi-polar? Have you any idea on that? Just wondering because of some behaviors we've seen, it's almost like he's cycling in minutes, first ecstatically happy go lucky then raging, screaming, hitting, biting, kicking melt-downs..... 


For mine the onset was puberty but met a woman who had a child diagnosed at 6.

You'll need a specialist in pediatric psychiatry to tell for sure.

But ADHD seems to be the first mood disorder that pops up. Usually you get several of them, after that came  oppositional defiance and then rage. I walked into the pediatric neurologists the first time and said either you treat it or you find me a residential treatment program. Two years on  Risperdal starting at age 9 eliminated the rage for good, it built new pathways in the brain so she no longer can access the rage state - sudden, blind rage. Then about the time that was over came the bipolar. She also has severe Generalized Anxiety Disorder.

If she's anxious, the oppositional defiance comes up. Treat the anxiety and the other stuff seems to lessen enormously.

I cannot urge you all enough to do a family history. Talk about the relatives no one acknowledges. Because most doctors and schools assume there's something wrong at home. If there isn't, and there's a lot of this stuff in the family, then you get better treatment if you show up with a family tree. My daughter's fifth generation mood disorder, when I show up with this tree, people stop talking about what a bad parent I am.

< Message edited by DesFIP -- 7/21/2009 9:31:35 PM >


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RE: Parents of special needs kids - 7/21/2009 9:18:23 PM   
emy33


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Hi everyone,
I have 3 children and my middle son who will be 10 soon was diagnosed with Autism at age 4. He was also diagnosed with ADHD at age 5.  My munchkin is severely autistic and was recentley ( abt 6 months ago) put on clonodine for aggression. He would say sorry over and over again after he had a melt down and would cry for hours.  He has been doing so much better and clonodine doesn't zone him out which was extremely important to me. One of my worst fears with starting meds was him being put on something that would dampen his personality and basicly make him a mini zombie. I'm really happy with the clonodine and it has really made a difference in his aggresion. He still gets upset or angry but hardly ever has a melt down that includes violence now.  

One thing I wanted to point out with mine was how food amped him up. He has a hard time processing carbs so any starchy food just sends him into orbit. A sandwhich, and he would be bouncing like tigger on  super springs.  And veggies can do this to him as well.  Basicly any carb type overload and he can't wind down.  When I started doing things like a ham slices rolled with cheese and mustard( his favorite) instead of a normal sandwhich, he started having less hyper issues. Also at dinner instead of a second helping of veggies(like he usually wants) I offer him an alternative that isn't going to have him and me climbing walls. 

Food issues asside here are some things that have helped us with the hyperactivity.. When he was younger and before his feet touched the floor while sitting in a chair, I would put a milk crate under them. It helped him focus on eating and not on his swinging feet. It also worked at school during class work.
"Ring around the rosie" it helped let out some energy and was an activity that I was hands on for.. Now he does this on his own and I learned in OT its called "spinning"  same concept. Something about the spinning can ground some kids and help them focus more. 

Everything is on a reward system here. For my 10 yr old.. he has 7 good behaviors in a day and he gets a reward. Things like.. a sticker out of my sticker stash. A coloring page printed off the computer that he gets to pick out.  If he goes all week earning his daily rewards then he earns things like a afternoon at the park, or "camping" in the backyard.  The thing with the good behaviors=rewards is that once he earned that "good behavior" I don't take it back because of "bad behavior".  I really use this when we go anywhere... usually goes something like this...
munchkin quiet inside, hands to self, etc.
munchkin get  sun for happy treat( what we call the reward).
It helps because he always has something he enjoys and wants that he is working for and as for the 7 " good behaviors" well I decide what areas those are earned for.. could be an outing, picking up toys.. etc, basicly when he is having a really hard time and is frustrated with something I use it as a positive motivation. It took a while to get that concept through to him and we started out with small daily numbers like 2. But it has helped.

Even with all the different things I've done or tried, the things that work or bombed, I still have days that I go to bed hoping it's enough, worrying and thinking of other things that I can do or ask to help. I think that is part of being a parent.

Emy

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RE: Parents of special needs kids - 7/21/2009 9:56:11 PM   
Shuhaki


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quote:

ORIGINAL: sirsholly

I so hope this thread stays up. My three yr olds Doctor wants him to be evaluated for ADHD. The level of hyperactivity is something i can handle, but the danger...a threat to himself and/or others is now the issue. He will not...WILL NOT...listen to us if he has a focus/goal, dispite the danger. If his goal is running across a busy parking lot, my voice will not stop him...he has to be physically restrained. The kid moved at the speed of light and will take off with no hint of his plans. He has caught me off guard time and time again (and please guys...if you ever see a kid on a leash..wristband connected to wristband...think of this situation before you criticize? A leash is on my shopping list, as holding his hand is not always possible. I actually fear breaking his hand/wrist. THat is how hard he fights me).

He is very violent with his dad and i. Yesterday was a good example. He pulled all the vidios off the shelf dispite being told over and over he is not to touch them. Ok...so i told him he will not go outside to play until they are put back. He said they are too heavy . Then he announced he did not want to. I told him he did not have to, but he would not go outside. The next thing i know a very heavy antique Maple chair is flying towards me. This is typical. His level of frustration (i do not think it is anger) is so sudden and intense and violent.
The voilence is just here...he is a very passive child at school and his teacher was shocked when i said we are to have an ADHD eval.


Please...any help?

ETA...unless it is absolutely imperative and suggested by a second opinion (and a third) we are adamant that a three year old should not be given Ritalin, Aderrall and/or whatever new ones are out there.



i'm not a parent, but i do have ADHD, so i might be able to help.  First off spare yourself the pain of school and don't enroll him.  Grab the Teenage liberation handbook; how to quit school and get a real life by Grace Llewellyn, from the library.  i've never met an ADHD child - or their parents - who have anywhere close to an acceptably pleasent experience with school.

Second, no matter how much anyone complains about it, you all should change your diet to not include dairy, and to have a large amount of fruit.  Before when i was eating mainly no fruit, i was so bad that i got expelled from school in first grade due to the fist fights i was getting in to.  Almost every ADHD kid i've met has benefited from dropping milk from their diet, or greatly decreasing it.  It may seem like a huge thing, but it's not, especially since your taste buds will actually start to be able to taste the complexities of your other food you eat. All of you will have to change your diet though, because putting him on the "special diet" will make him get an eating disorder.  Plus who can't do with more fruit in their diet?

Try to also limit T.V watching - this includes youtube and online videos - that stuff causes havoc with ADHD,  Also never talk to him like he's not an equal.  It may sound stupid since your his parent and he's like three, but ADHD kids do NOT do well with the normal hierarchical structures of our society, and you will have to ease him in to the typical parent child relationship, though don't hold any hopes of being anything more than a friend to him, even i don't consider my older brother to be more than a friend and he actually acted like my parent for the last three years of my life before i turned 18 and left home.

These are just things that i've seen helped me and other kids like me, who are unmedicated and refuse to take pills  This may not be the perfect solution for you guys, but honestly it couldn't hurt to try, especially if his frustration and rage attacks are already this bad.  i hope things work out for you.


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RE: Parents of special needs kids - 7/22/2009 1:33:36 AM   
calamitysandra


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quote:

ORIGINAL: sirsholly

I so hope this thread stays up. My three yr olds Doctor wants him to be evaluated for ADHD. The level of hyperactivity is something i can handle, but the danger...a threat to himself and/or others is now the issue. He will not...WILL NOT...listen to us if he has a focus/goal, dispite the danger. If his goal is running across a busy parking lot, my voice will not stop him...he has to be physically restrained. The kid moved at the speed of light and will take off with no hint of his plans. He has caught me off guard time and time again (and please guys...if you ever see a kid on a leash..wristband connected to wristband...think of this situation before you criticize? A leash is on my shopping list, as holding his hand is not always possible. I actually fear breaking his hand/wrist. THat is how hard he fights me).

He is very violent with his dad and i. Yesterday was a good example. He pulled all the vidios off the shelf dispite being told over and over he is not to touch them. Ok...so i told him he will not go outside to play until they are put back. He said they are too heavy . Then he announced he did not want to. I told him he did not have to, but he would not go outside. The next thing i know a very heavy antique Maple chair is flying towards me. This is typical. His level of frustration (i do not think it is anger) is so sudden and intense and violent.
The voilence is just here...he is a very passive child at school and his teacher was shocked when i said we are to have an ADHD eval.


Please...any help?

ETA...unless it is absolutely imperative and suggested by a second opinion (and a third) we are adamant that a three year old should not be given Ritalin, Aderrall and/or whatever new ones are out there.




I see one thing that makes me doubt ADHD, the fact that he is not behaving this way in school. Might he really "just" have a extremely severe case o the terrible twos/threes?

My middle child is in the evaluation phase at the moment. So far it seems like he has an autism spectrum disorder, however, diagnosing him is difficult, as his problems are mild. They are just severe enough for us to want to get down to the bottom of his "differentness", so we, and other people in his life, as well as he himself can better understand him.

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RE: Parents of special needs kids - 7/22/2009 2:40:13 AM   
sirsholly


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quote:

In regard to parents not showing up for IEP meetings... I'm not sure if the laws are different here, but I am pretty sure that the school can meet without the parent being there. I've been to a few where the parents never showed.
as a mom, i will never understand this 

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RE: Parents of special needs kids - 7/22/2009 4:42:17 AM   
Rainfire


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quote:

ORIGINAL: sirsholly

quote:

In regard to parents not showing up for IEP meetings... I'm not sure if the laws are different here, but I am pretty sure that the school can meet without the parent being there. I've been to a few where the parents never showed.
as a mom, i will never understand this 


I've been to LOTS of IEP meetings, between the monster #1 having ADD, #2 having speech and sensory issues and #3 with his PDD, ADHD, ODD and LD. Plus Mr. Smarties this year...... I have NEVER missed an IEP meeting, it's simply too important for their schooling.

I know that in California, Idaho and here in Ontario, while they may meet and discuss an IEP, it cannot be implemented without the parents permission. If the parents are not cooperating, either through avoidance, ignoring or denial, then that ties the school's hands and they can't do a whole lot.

Hey Holly, have you seen the child safety harnesses, like THIS ONE or maybe THIS ONE?  I found them more effective and safer than the wrist leash... Of course, they've grown a lot fancier and nicer than the plain yellow nylon one I used for the monsters. 


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RE: Parents of special needs kids - 7/22/2009 4:52:07 AM   
sirsholly


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quote:

ORIGINAL: Rainfire

quote:

ORIGINAL: sirsholly

quote:

In regard to parents not showing up for IEP meetings... I'm not sure if the laws are different here, but I am pretty sure that the school can meet without the parent being there. I've been to a few where the parents never showed.
as a mom, i will never understand this 


I've been to LOTS of IEP meetings, between the monster #1 having ADD, #2 having speech and sensory issues and #3 with his PDD, ADHD, ODD and LD. Plus Mr. Smarties this year...... I have NEVER missed an IEP meeting, it's simply too important for their schooling.

I know that in California, Idaho and here in Ontario, while they may meet and discuss an IEP, it cannot be implemented without the parents permission. If the parents are not cooperating, either through avoidance, ignoring or denial, then that ties the school's hands and they can't do a whole lot.

Hey Holly, have you seen the child safety harnesses, like THIS ONE or maybe THIS ONE?  I found them more effective and safer than the wrist leash... Of course, they've grown a lot fancier and nicer than the plain yellow nylon one I used for the monsters. 

How sad. I cannot help but wonder if the no-show parents of the IEP students are the ones that bitch the loudest when their child does not show any improvement. If they do not bother to go to a meeting it is a fairly safe bet in my book that they are not working with the kid at home either.


As to the harness, Rain. A good idea was given to me that the LO would be out of the wrist leash in a few seconds (and i can plainly see him attaching his part of it to something large and stationary. Mom would be trying to free her ass while the kid takes off). I was avoiding the back pack because of the size of the LO. He is laaaarge!! I will get him one that fits, even if i have to custom make it.

Thanks to all posters. The info and support here is awesome!!!!!


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RE: Parents of special needs kids - 7/22/2009 5:02:35 AM   
Rainfire


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So you had the exact same thought I did..... I was wondering if LO was too big for some of those. The one I had was expandable, it had heavy duty, industrial grade velcro on it so it could grow with the child. Monster #1 was a big boy too, he was 9 pounds at birth and went from there.

If you want to think about a custom made one, look at THIS SITE..... she makes them for sizes ranging from toddler to adult.


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RE: Parents of special needs kids - 7/22/2009 6:31:14 AM   
lusciouslips19


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quote:

Hey Holly, have you seen the child safety harnesses, like THIS ONE or maybe THIS ONE?  I found them more effective and safer than the wrist leash... Of course, they've grown a lot fancier and nicer than the plain yellow nylon one I used for the monsters. 


I just strapped a flexi-leash (retractable dog leash) on my sons belt loop on his pants!




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RE: Parents of special needs kids - 7/22/2009 6:35:56 AM   
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I wanted to mention this as a focus tool when an Adhd kid needs to focus. Or to perhaps try this at home. I have read books on the exercise ball. A book I read called Pilates on the Ball by Coleen Craig talks about the balance and Nuerologic affect of the ball on different populations. A school in Sitzerland had the kids sit on exercise balls instead of regular chairs and what it did was help them to focus. I guess because so much of the body was focused on balance the body could not be hyperactive. So try this at home as an experiment. Maybe you will see it help with homework or some other thing. Like quiet while a kid watches tv or something like that.

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RE: Parents of special needs kids - 7/22/2009 7:42:13 AM   
LaTigresse


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Such wonderful moms here!!

First to address the hyperactivity and violence. Knowing what I know now, I would start with a journal. The focus of that journal would be food and beverage intake, sleep patterns, play, physical activities, external stimuli (like people visiting, going places, activities like television, etc) and the short person's mood and behaviour. See if any patterns emerge. Then I would try omitting food groups, aside from the obvious sugar I would focus more on, dairy, wheat and corn. Three things that are often culprits.

My grandsons have always been HUGELY active. Always climbing things they shouldn't, like kitchen cabinets or entertainment centers, since before they could even walk. Let me tell you, walking into a kitchen and seeing a 1 1/2 yo hanging from the very top of a top kitchen cabinet, will make your heart jump into your throat. Child proofing took on a whole new meaning for my son and his ex. They had to pad lock away the knives and wrap a cable around the stove with a lock to keep someone from climbing up and turning it on. The fridge also had a padlock installed. Getting ready to cook a meal was a production. The additional locks on doors going outside were definitely not code, but necessary.

Now the oldest that caused the most trouble as described above, at age 6, is the quietest. Though not inactive by any stretch of the imagination, he can sit and watch a movie or favourite programme no problem. The youngest, age 5, is the most hyper. He cannot even sit still on the sofa to watch a movie he begged to watch. He is also much more prone to violence and misbehaving. I have found, when I have them, several things that help a lot. Lots of fresh fruits and veggies, something they love and don't get enough of otherwise. No fast food, period.  A lot of fun physical activity, then quiet and more focused stuff like painting or clay. Then back to more wild crazy physical stuff, even if it is challenging them to racing out to the pasture gate and back. Making it fun, how fast can they do it. Maybe a walk down to look for coyotes at the coyote house (an old shed the neighbour drug down by the creek, that they think is the coyote house because there are always tracks around it) looking for frogs in the creek, checking out gross dead animal parts and bugs......boy stuff yanno. Then more quiet time, maybe even a nap. I also make them drink water, something they will not do much of if left to their own devices. Always a bath before bed and some quiet snuggly time when it is bedtime.

The oldest is very managable now, but the youngest still bounces off the walls. I know he simply just cannot sit still much of the time. The running and hiking gives those muscles the activity they are asking for and the evening bath helps set the stage for sleep. He used to sleep like a whirling dervish but that is much better now. Another thing I noticed with both boys, especially Mr Dervish, is that the more involved his brain is, the more controlled and calm his body is. The television usually does not stimulate his brain enough to calm his body. Even walking somewhere, he can be crazy, flailing his arms and tripping over his feet. Jumping on and off the grocery cart and hurting himself. BUT, give him a task, something to think about that interests him and the body gets more controlled also.

My own kids biggest problems came at a later age, 10 through teens and early twenties. ADD for my son, and with my daughter, so many diagnosis I cannot even remember them all. Too many meds that caused too many problems. Too many trips in and out of mental lock up. Drugs, alchohol. Suicide attempts. Jail, and by the grace of god (a judge that saw something few did) a near miss with prison. I hated going to visit my son, talking on a phone through thick glass, seeing him in that orange jumpsuit, knowing the kind of people he was sharing his space with, for a year. I hated visiting my daughter in a mental hospital, knowing what she had been doing to herself, that she wanted the pain of living to just stop so badly she was willing to die for it.

Now, I look at my kids, ages 28 and 30, and the wonderful human beings they are, where they are in their lives, what fantastic parents they are.......and I find it so hard to believe what they've been through. Not only do I love them, I like them, AND I respect them. I enjoy being with them. They are two of my most favourite people in the world, and not just because they are my kids. Spending a day, like last Saturday, with them, with their SO's and with my grandchildren. Laughing and just being together, celebrating a 1 yo's birthday. Nothing fancy or special to anyone looking on. No store bought cake but a mess of a thing my daughter baked. No grand party. Burnt brats and burgers, that tasted of lighter fluid, cooked by a grill moron. But it was a wonderful day full of everything I could have asked for with all the people I love most in the world.

I guess I just want to tell those of you still going through the hell of raising them, there is light at the end, even when it seems the darkest. Days like I had on Saturday make days like those spent crying and exhausted, hiding in the chapel at that hospital, after seeing my daughter strapped down, 4 floors up. Or in the car after seeing my son in jail.........well those days feel almost like they happened to other people. The shadow of them remains, enough so to remind all of us to remain viligant, to never go there again. To not take where we are now for granted. But the agony of them is only a faded memory.

Keep being the fantastic mothers you are.........mothers amaze me.


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RE: Parents of special needs kids - 7/22/2009 8:13:30 AM   
GreedyTop


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wow.

I'm not a parent (although I sometimes think Amos is hyper...LOL)  but I just wanted to say that my admiration and respect (already high) for you all has kicked up a bunch of notches.

God bless you all...


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RE: Parents of special needs kids - 7/22/2009 8:52:02 AM   
sirsholly


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quote:

ORIGINAL: lusciouslips19

quote:

Hey Holly, have you seen the child safety harnesses, like THIS ONE or maybe THIS ONE?  I found them more effective and safer than the wrist leash... Of course, they've grown a lot fancier and nicer than the plain yellow nylon one I used for the monsters. 


I just strapped a flexi-leash (retractable dog leash) on my sons belt loop on his pants!



now is that a damn good idea or what?


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RE: Parents of special needs kids - 7/22/2009 10:00:19 AM   
Rainfire


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  Somehow, I don't see Lumus letting me do that to Mr. Smarties, tempting as it is. 

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RE: Parents of special needs kids - 7/22/2009 10:30:32 AM   
PanthersMom


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the only reason i've missed iep meetings is for hospitalizations.  even then i'm in touch with the teachers by phone and they know whenever there is a problem or question they can call me immediately.  the last iep meeting i "attended" was by conference call.  these days there is no excuse for missing even a phone call conference.  unless you're under the knife, in labor or dead, you can pretty much be available for one anywhere, even if you have to be away from home.

PM

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RE: Parents of special needs kids - 7/22/2009 10:32:40 AM   
Sunnyfey


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*hides from the mention of IEP meetings* GAWD do you have any idea how horrible those were as a kid? Mom would come home all irritated and I never had a good answer for her as to why I was doing so bad in my classes....*shivers*

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RE: Parents of special needs kids - 7/22/2009 10:38:48 AM   
Rainfire


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quote:

ORIGINAL: PanthersMom

the only reason i've missed iep meetings is for hospitalizations.  even then i'm in touch with the teachers by phone and they know whenever there is a problem or question they can call me immediately.  the last iep meeting i "attended" was by conference call.  these days there is no excuse for missing even a phone call conference.  unless you're under the knife, in labor or dead, you can pretty much be available for one anywhere, even if you have to be away from home.

PM


See, PM, that's fine, in fact, I wouldn't even call that missing the meeting, you made accommodation to still get the information and give input if necessary. But people simply not showing or calling? How is that supposed to help their child? It doesn't. 


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RE: Parents of special needs kids - 7/22/2009 10:53:54 AM   
KneelforAnne


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I agree on the missing an IEP meeting... I mean, who does that?? We're trying to HELP their kid, not yell at the parents... LOL...

But, on a more serious note, I think that a lot of these parents are at their wits end--and many of them are lower income and have multiple jobs. I try not to judge... I don't know what their lives are like.

~

In regard to the leash for kids thing... this sounds awful... but I totally mean it to help.

I have a harness for my dog, and she's large- and it works wonders. I wonder if you could get one for your kid? It's super sturdy and safe for the dog, I buckle her up with it and everything. It wasn't terribly expensive either, under $20.

I was just looking at it, and it would go over the shoulders, and attach under the arms. I don't think it would cause any neck issues, but you would really have to try it on them. Also, with the harness, there is a place to attach the leash on both sides, a D-ring looking hook on one side and an O ring hook on the other. That way, whichever side you decide to put in the front, there is a way to attach it to the back, where they can't get to it and let themselves go.

The only thing I can see being a problem with the retractable leash is that my dog (50-60 lbs) has broken 3 of them just by jerking hard. I wouldn't want that to happen to a kid that's running out into traffic.



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RE: Parents of special needs kids - 7/22/2009 12:48:14 PM   
LaTigresse


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Yes, I have yet to find a retractrable leash that I like. And so far, I've only used them on dogs.......

As my daughter says, my "mean voice" or even worse she says "the look" has always worked up until this point, on all short people. Except her, when she was in some outer space zone as a teen and couldn't see straight or hear even herself. I remember having to quite literally, body slam her, once.


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Profile   Post #: 79
RE: Parents of special needs kids - 7/22/2009 12:51:15 PM   
intenze


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Lots of folks in Europe use harnesses all the time. I think they are safer.

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Profile   Post #: 80
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