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RE: Confused and afraid of dying - 8/27/2010 6:47:56 PM   
CynthiaWVirginia


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Some doctors are very quick to rip out everything...when I was 28 and wanted a depo shot, the doctor I went to was insisting it would be better if I just had a hysterextomy.  It can seem like a quick fix to everything.  Other posters gave some damn fine advice and I have nothing to add about the medical stuff, only the financial.
 
After this is over and you need more screenings, more paps just to keep an eye out for a while, find out if there is a free pap given for cancer screening in your area.  I think I found the pamphlet at the area of the hosptial where mammograms are done but I'm not sure.  The health dept. might know too.
 
At the hospital there is a counselor.  I took a friend there as well as my mother and both were surprised to have so much money cut off their bill.  They cannot do anything about other bills though, from the surgeon and the one who knocks you out.  Two years ago, I shattered my lower right leg and had to have plates and screws and all that jazz...and the surgeon had me sign a paper saying that if my medical insurance doesn't cover everything that I will pay him $50 per month.  My mother has had surgeons knock off some money and accept a minimum of $20 per month.
 
Yes, what you are going through right now is scary as Hell.
 
quote:

I'm also trying to understand why my body is acting like this is a uterine or hormone problem when my cervix shows otherwise.

Because sometimes we've got two things or more going on all at the same time.  Maybe you were given a whammy with that cyst...so you'd have some symptoms that would make you run to a doctor and find out that there may be problems with your cervix. 
 
During one of my chemos about 7 or 8 years ago, I was talking with the guy next to me getting chemo too.  He was a farmer and had his tractor roll over on him...he laughed so hard and said it was the best thing that ever happened to him, as when they were x-raying him to see what the damage was, they also found the cancer.  He did fine and last I heard he was still in remission.  A woman I helped through her cervical cancer over 4 years ago, I bumped into her at Walmart last month and she is fine and still cancer free. 
 
When I was having my 3rd or 4th chemo and was feeling a bit depressed, a nurse smiled at me...she had had lymphoma too and had had chemo and stuff a lot more times than I had (I am leaving out all her detailed descriptions, lol) and said that I was still just a baby at this.  She was very much alive and working, and it gave me some odd comfort.
 
If people are blessed to live long enough, sooner or later most of us WILL get cancer.  Many of us will survive it to experience the joy of shattering a leg, or to tease a newbie who is getting chemo like that nurse did to me.  My family wrote me off that first year I was diagnosed...but that was probably over ten years ago when it all started.
 
If you want more information on anything cancer related and how to get financial assistance, phone 1 - 800 - 4 - CANCER within the USA.  It is a government clearinghouse and they give out all kinds of pamphlets for free.  I knew everything that my oncologist was going to do, in advance, by reading these pamphlets.  Yes, I also read from a lot of other sources, from books and from the computer at the library.  Just keep in mind that not everything comes down to worst case scenario.
 
I'll light a candle for you.

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RE: Confused and afraid of dying - 8/27/2010 6:51:55 PM   
angelikaJ


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Most hospitals have free care programs.



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RE: Confused and afraid of dying - 8/27/2010 6:55:55 PM   
defiantbadgirl


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If abnormal cells are common, why is my gynecologist insisting on a cone biopsy followed by an immediate hysterectomy (the same day while I'm still under) if it's pre-cancer or a radical hysterectomy performed by a cancer doctor possibly followed by radiation therapy if it's full blown cancer? Is it true that radiation therapy can either permanently screw up the immune system or damage it so bad it takes 10 years or more to get back to normal?

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RE: Confused and afraid of dying - 8/27/2010 6:58:03 PM   
thornhappy


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You can get a colposcopy and Pap smear at many Planned Parenthood clinics and they have a sliding scale fee system.

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RE: Confused and afraid of dying - 8/27/2010 7:05:57 PM   
angelikaJ


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quote:

ORIGINAL: defiantbadgirl

If abnormal cells are common, why is my gynecologist insisting on a cone biopsy followed by an immediate hysterectomy (the same day while I'm still under) if it's pre-cancer or a radical hysterectomy performed by a cancer doctor possibly followed by radiation therapy if it's full blown cancer? Is it true that radiation therapy can either permanently screw up the immune system or damage it so bad it takes 10 years or more to get back to normal?


That is precisely why I suggested a second opinion.

I was not exaggerating when I said 30% of my pap smears have shown abnormal cells.

I still have my cervix and uterus.

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RE: Confused and afraid of dying - 8/27/2010 7:12:35 PM   
nancygirl34652


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i agree wholeheartedly with having someone with you next time you go to the doctor...someone who will remain calm and really listen.

may i suggest that you call your doctor immediately and schedule an appointment...then write down some of the questions you have been asking here and read them off to her one by one and get answers....then go get a second opinion...and again, have someone with you and be prepared with your list of questions.

i hope that seriously schedule another appointment to talk your case over...and bring someone....your doctor was supposed to educate you as to what is going on and you seem more confused than before you had the tests.

i will keep you in my prayers and hope everything, no matter what, works out well for you. and don't worry about the money...just explain to your doctor (and the second opinion dr as well) that you have financial concerns...they may know agencies or private groups that can help...and talk to the hospital as well....they offer lower fees, payment plans, etc.

Again, my best wishes to you.

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RE: Confused and afraid of dying - 8/27/2010 7:30:44 PM   
fluffypet61


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Surgery, radiation, and/or chemo for cancer is not the end of life - it is the beginning of a journey.   i am partway along that journey.  It's tough but do-able. 
 
i started my diagnosis at the Health Department with the BCCSP (Breast and Cervical Cancer Screening Program) paying for the tests.  Then when i got my diagnosis of Stage 0, i qualified for Medicaid.  (After the surgery the pathology found more and it was changed to Stage 1).
 
Contact me if you want to talk.

< Message edited by fluffypet61 -- 8/27/2010 7:45:30 PM >


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RE: Confused and afraid of dying - 8/27/2010 8:32:55 PM   
CynthiaWVirginia


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quote:

ORIGINAL: defiantbadgirl

If abnormal cells are common, why is my gynecologist insisting on a cone biopsy followed by an immediate hysterectomy (the same day while I'm still under) if it's pre-cancer or a radical hysterectomy performed by a cancer doctor possibly followed by radiation therapy if it's full blown cancer? Is it true that radiation therapy can either permanently screw up the immune system or damage it so bad it takes 10 years or more to get back to normal?

Maybe because she was trying to scare you into making that cone biopsy a high priority.  Maybe she had just attended some conference on the subject and was still fired up from it.  Maybe because it was an emotional issue with her...that a close friend of hers died from cancer and she wished her friend (and maybe all other friends) would have a hysterectomy as a preventative surgery.  This is why we do get second opinions, study about this from reputable sources, and get proactive about our medical care.  Doctors are human beings too, not gods.
 
My mother paid to get her tubes tied.  When she was unconscious on the table, and her hubby was nowhere nearby to consult, the surgeon found out what later turned out to be a fibroid.  Instead of tying her tubes, he gave her a complete hysterectomy.  She was pissed.  I don't know what issues he had, but he did this with a lot of women as well as young girls who came in to have their appendix removed...there was some sort of class action lawsuit over this and he died of a heart attack before he could get into trouble.  Doctors are humans, not gods.  Take someone with you, to hear when you are too upset to hear everything, and to make decisions for you if you are unconscious and family authority is needed to make a decision (I'm not talking about those "if I'm a vegetable" papers we are asked to sign at hospitals).  I don't want to scare you, just show that some people react in a knee jerk way with extreme measures.  Your doctor had an opinion, another doctor may have another opinion. 
 
Listen to other women who have gone through the same thing you are going through.  Let it empower you when you talk with your doctor.  I would suggest asking your Dom to come here and read this thread, as it may help him if/when he talks to your doctors.
 
About core biopsies...I had several done to moles on my lower back that were larger around than an eraser at the top of a pencil.  All were ok, by the way.  Anyway, I had a shot like a bee sting, and while I held still he just cut them out.  No pain.  But...I should NEVER have looked into that pan that held the cores, lol, seeing my own flesh there made me very sick to my stomach.  I didn't think it would bother me because blood doesn't faze me and neither did seeing a bone punched through my skin.  Mom recently had a precancerous mole removed from the bridge of her nose in a doctor's office.  She got a shot that felt like a bee sting and then the girl put this thing to her nose that took a small slice off.  The doctor said that the small scar will disappear after a few weeks.
 
Maybe for this coring on your cervix, you will only have to have a speculum up there, a shot, and then they will take the core. 
 
Sorry your doctor went into such detail on worst case scenario.  Try to forgive her when this is all over.  I think she just overreacted, and if not, that her treatment plans are always this extreme, then you need a new doctor.
 
I don't want to talk about radiation treatment and all that unless you are diagnosed with cancer and your oncologist has decided to go down that road, and you shouldn't worry about it either.  The woman I mentioned in my last post who had cervical cancer...she had radiation and I can tell you all about what I heard from her.  She is fine now, has been in remission and is healthy as a horse. 
 
Do what you need to do to calm down...drink some hot green tea, eat some chocolate.  Force yourself to do fun, relaxing, enjoyable things.  Watching some comedy movies like Galaxy Quest works for me...and if any friend does to you what mine did...suggest romantic drama movies without telling you that the girl ends up dying from cancer, ask your Dom to go YELL AT THEM.
 
 

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RE: Confused and afraid of dying - 8/27/2010 9:42:38 PM   
tazzygirl


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quote:

ORIGINAL: defiantbadgirl

If abnormal cells are common, why is my gynecologist insisting on a cone biopsy followed by an immediate hysterectomy (the same day while I'm still under) if it's pre-cancer or a radical hysterectomy performed by a cancer doctor possibly followed by radiation therapy if it's full blown cancer? Is it true that radiation therapy can either permanently screw up the immune system or damage it so bad it takes 10 years or more to get back to normal?


She can insist all she wants... say no. No one should be allowed to go under without knowing what will happen next. Call medicaid, see what they say about coverage. The financial dept at your hospital will know as well.

Also, call around to other cancer centers. Most major cities have them. Do your research. It IS your life... take control.

My mother was diagnosed the same as you... by her gyn. Her gyn referred her to a specialist. Insist upon a referal and a second opinion. You are far too young to take the first decision you hear.

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RE: Confused and afraid of dying - 8/27/2010 9:43:07 PM   
sweetsub1957


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~FR~
OP, Possibly the cone biopsy will get rid of all the abnormal cervical cells. I'm not a doctor and can't give out medical advice but I can say that, after years of colposcopies and punch biopsies of the cervix, I finally had a cervical cone and that was the end of it. I had NO more abnormal cells EVER. I am SO glad I had it done. There was very minimal recovery compared to a lot of procedures, and (just in case you wonder) it does not ruin your intimate life.

Also, most hospitals have a program that will make part, or even all, of your hospital bill disappear, depending upon your income. That's a fantastic thing, and that program has helped me more than once. So, if you do need to be hospitalized, look into that.

~sweetsub~

~edited to add second paragraph~

< Message edited by sweetsub1957 -- 8/27/2010 9:46:20 PM >


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RE: Confused and afraid of dying - 8/27/2010 9:48:04 PM   
MistressTonya2u


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First, my prayers go out to you.
I agree with getting a second opinion.
I have ovarian cysts and a thickened uterine lining.
I went for almost 20 years without having a regular period, I only had one when I took pills my doctor gave me.
This february, my body started regulating itself and I have had a period every month.
I have had all sorts of tests, biospies, ultrasounds, ect.
I was told I was high risk for cancer, so far I am cancer free.
I was afraid, and so upset that I might be dying that the stress starting causing me to have other health issues.
I truly understand your fear.
You can not give up or assume the worst or you are going to  make yourself crazy.
Take someone for support.
Check with your local clinic, hospital, dept of social services, there is help available.
Do not give up on yourself and do not give up hope.

< Message edited by MistressTonya2u -- 8/27/2010 10:05:11 PM >

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RE: Confused and afraid of dying - 8/27/2010 9:58:26 PM   
Mistletoe


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quote:

ORIGINAL: MistressTonya2u


I was afraid, and so upset that I might be dying that the stress starting causing me to have other health issues.
I truly understand your fear.
You can not give up or assume the worst or you are going to  make yourself crazy.
Take someone for support.
Check with your local clinic, hospital, dept of social services, there is help available.
Do not give up on yourself and do not give up hope.

To the OP.....Staying in control and as positive as you can be will help. This is very good advice. I wish you all the best.


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RE: Confused and afraid of dying - 8/28/2010 12:07:14 AM   
Vendaval


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You have some great advice here about second and third opinions and having someone calm with you at the appt. I recommend finding the nearest hospital run by either a religious organization or a research university that might help regardless of your financial situation.

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RE: Confused and afraid of dying - 8/28/2010 3:37:17 AM   
areallivehuman


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Defiantbadgirl,

Take a deep breath. The wheels of medicine grind very slowly. Do as much research as you want. Knowledge is power.
I absolutely believe that our diet is the base of cancer, and that cancer is aproaching epidemic proportions. I got the diagnosis two and a half years ago, and decided to pursue "natural" methods of treatment. I am basically trying to make my body so healthy that it kills cancer cells, the way it was designed to do. Feel free to write me if you're interested.
In the end, how one chooses to deal with their cancer is a highly personal decision. Get a second opinion, and third. I do believe that modern medicine is way too eager to cut out the affected parts, without adressing the cause.
It's easy to say, and hard to do, but a calm, positive outlook is key. Whatever you do, don't give up, don't despair. Tell yourself every day, "I will beat this".
Wishing you all the best.

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RE: Confused and afraid of dying - 8/28/2010 3:49:28 AM   
LadyConstanze


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quote:

ORIGINAL: defiantbadgirl

I was having problems with constant vaginal bleeding so I went to a gynecologist. An ultrasound revealed a small cyst on one ovary and abnormally thick uterine lining. The gynecologist prescribed 14 days of medication to slow my bleeding and scheduled me to come back in 2 weeks for testing. The medication completely stopped my bleeding. She said that was a good sign and was very optomistic. She said the chance of me having cancer at 37 was slim but did a pap smear and a uterine biopsy just to make sure. This morning, she called me with good news and bad news. The good news is that my uterine biposy is normal. The bad news is abnormal cells on my cervix. From what I've read, it would be alot better if it was the other way around. When I looked up the symptoms of uterine cancer, abnormal bleeding is listed as a common warning sign. With cervical cancer, there are no warning signs in the early stages and abnormal bleeding is listed as a symptom of advanced cervical cancer. I've been off the pills for several days and have had some cramping, but haven't started bleeding again yet. I'm really confused because it makes no sense that the pills stopped the bleeding if my uterus or hormones aren't the problem. How is that possible? I'm scheduled for a cone biopsy and possible hysterectomy on September 21. She said if the cells are only pre-cancer (according to what I read it's probably advanced cancer), she will do the hysterectomy. If it's cancer she can't do the hysterectomy and will refer me to a cancer doctor who will do a radical hysterectomy and see how far the cancer has spread. I'm devistated that after finally meeting the right guy 2 1/2 years ago, we're going to have such a short time together before my death. I'm also trying to understand why my body is acting like this is a uterine or hormone problem when my cervix shows otherwise.



I agree with what has been said, you have to calm down, otherwise how can your body heal if you're putting more stress on you? More opinions are always good, also that you should take somebody with you to remember and help you keep a clear head.

Cancer doesn't mean you are dying, in my 20's they found a tumor, I lost one ovary and both tubes, I'm still alive, despite when they finally found it (GP was treating me for a kidney infection for months, missed a tumor of 14" diameter completely in the scan) the prognosis wasn't good, I saw my OB Gyn at 10 am and he told me to go home, pack my stuff and he'd see me in the hospital the same afternoon.

Cervical cancer can be treated, but if you are driving yourself nuts, treatment is much much harder, you need to focus on getting healthy, not picturing the worst possible option, because if your body is fighting cancer, your state of mind is important.

Get information but do not self-diagnose, get the opinion of several doctors, they are trained to recognize and diagnose, you are not, so you aren't doing yourself any favors. Keeping a positive outlook is the best you can do for yourself. You might need radiation therapy and after a hysterectomy you will experience most likely signs of menopause, check with your doctor which hormone treatment is available, but there are also countless natural remedies that can help you (red clover, evening primrose oil, etc.), you need your energy to get better, you won't have energy if you're panicking and running yourself ragged with fear.

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RE: Confused and afraid of dying - 8/28/2010 4:21:24 AM   
PeanutTigerinBox


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quote:

ORIGINAL: tazzygirl


quote:

ORIGINAL: defiantbadgirl

If abnormal cells are common, why is my gynecologist insisting on a cone biopsy followed by an immediate hysterectomy (the same day while I'm still under) if it's pre-cancer or a radical hysterectomy performed by a cancer doctor possibly followed by radiation therapy if it's full blown cancer? Is it true that radiation therapy can either permanently screw up the immune system or damage it so bad it takes 10 years or more to get back to normal?


She can insist all she wants... say no. No one should be allowed to go under without knowing what will happen next. Call medicaid, see what they say about coverage. The financial dept at your hospital will know as well.

Also, call around to other cancer centers. Most major cities have them. Do your research. It IS your life... take control.

My mother was diagnosed the same as you... by her gyn. Her gyn referred her to a specialist. Insist upon a referal and a second opinion. You are far too young to take the first decision you hear.


Dito.

Also sometimes there are good forums eg online where people with that (potential) condition can give advice to each other how to get help in whatever aspect.

Eg when I looked for respite care for a severely disabled child at work I stumbled over a forum where parents from children with disabilities were giving advice how to access equipment, what financial help is on offer, etc. Maybe there is also a forum out there about your problem?

Aged 16 I was feeling like bleeding to death and the doc did send me to a specialist to ensure it isn't bowel cancer. I had several tests done but never got an answer what it was at the end though of course not cancer. Then I met a colleague who has morbus crohn and told me that to her my problems sound like colitis ulcerosa.

A while later aged 24 I had enormous pain in my heel where an x-ray was done. The so called specialist I was referred to from my GP also tried to talk me into whatever rare form of cancer he thinks I might have, which to him my hands would indicate (some swelling I had, though only he could see those swellings ). He then referred me to that x-ray and whilst my swelling on my heel was going down, after that x-ray that doctor there asked me if I sometimes suffer from those internal bleedings. I was puzzled why he is asking me that, after all I am coming to him because of my heel. There he did show me a line in my heel which according to him usually indicates a chronic bowel disease.

I went back to that other specialist (interestingly they didn't seem to get on well as it was precisely instructed on my x-ray not to hand out any x-rays to that particular doctor) who after that outcome treated me like a pretender who has nothing and entirely dismissed the opinion from that x-ray doctor despite that at least his diagnosis (or well, it is an assumption not a diagnosis) did make perfectly sense to me.

Then aged 28 I went over here to the GP as during that time I had as massive bleedings as never and by then I had them over a year (as by then I was fed up to go to the doctor in the first place). however, as it just did not stop at all I had to go at some point....as over here referrals take their time it took another 4 months until I had that appointment by which then the symptoms were gone and nothing was found I was also quite a wreck at that time as you can read online a lot that if you suffer from those bleedings since more than about 8 years or so that you are at higher risk to develop bowel cancer and it simply felt that it just does not go away anymore at all....but nevetheless.....once that test was finally done I was ok again and nothing was found.

whilst I am glad that I know (or at least knew at that time) to be fine I am not that pleased about never having had a diagnosis about it...because if I would know now if I have colitis ulcerosa or not then at least I would know where I stand and not live in the uncertainty.

My only luck right now is that I am symptom free since 4 years so right now it does not bother me at all. However, that is also the longest period ever that I am symptom free and as it usually turned up at least once a year always for a while I managed now to relaxe about it as I haven't had that issue anymore now since so many years.

So what I am trying to say is whatever the outcome will be, be glad that symptoms for a potential illness are found rather sooner than later. Because if it is what you are dreading than at least you won important time for it. So whilst I agree with others not to stress yourself out too much until you know the result, be glad it is being investigated and you will know an answer soon. That's much better than to remain in uncertainty.

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RE: Confused and afraid of dying - 8/28/2010 6:25:09 AM   
DaddysInkedSlut


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quote:

ORIGINAL: sexyred1

To those of you who have never experienced this situation FIRST HAND, I would caution you not to advise the OP to not do research.

Research and second and third opinions are life savers.

Information is knowledge and knowledge gives you choices. and options. To advice against that is simply ludicrous.

Take it from me.


I agree with this however, IMO if you dont have a full diagnosis you are only guessing on what to research.

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RE: Confused and afraid of dying - 8/28/2010 6:53:58 AM   
JstAnotherSub


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Definately get a 2nd opinion.  From your description of the doctor you are seeing, I would change doctors even.

I know research is a good thing.  I also know that, in most cases, doing it on line leads to "if none of these seem right to you, see your physician, it can be a sign of cancer".

Rash on nipple?  cancer.....irregular bleeding, cancer, so on and so forth.

I didn't mean to appear as if I was saying remain ignorant.  All I am saying is there is no need to panic, because it does no good and makes your physical state worse.  Speak to your doctors and, when you are sure of your diagnosis, do all you can to be proactive.

I am amazed that a doctor would say the things you say your doctor told you.  At best he or she has no bedside manner, at worst, they are a fucking idiot.  Get a doctor that you can share your fears with and get real answers.  Even without insurance, they are out there.  Speak to patient advocates at the hospital.

Breathe, and do all you can to relax a bit hon.  I know it aint easy, been there done that, but try.

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RE: Confused and afraid of dying - 8/28/2010 7:25:15 AM   
wandersalone


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quote:

ORIGINAL: JstAnotherSub

I am amazed that a doctor would say the things you say your doctor told you.  At best he or she has no bedside manner, at worst, they are a fucking idiot. 


I just want to say that having been on the end of these grim discussions with a doctor (one as recent as this week) I do know that a couple of times what they have said and what I have heard in my stressed and shocked state have been markedly different.  For this reason I definitely agree with everyone else who has said to take someone else with you to your other appointments.  Ask them to take notes and ask any questions on your behalf if required.

And also just reiterating what others have said, whilst it is natural to jump to the worst case scenario there are a lot of other things that this could possibly be and terrifying yourself isn't going to help you.

You will be in my thoughts, please let us know how your next appointment goes



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(in reply to JstAnotherSub)
Profile   Post #: 39
RE: Confused and afraid of dying - 8/28/2010 7:40:08 AM   
LadyConstanze


Posts: 9722
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quote:

ORIGINAL: defiantbadgirl

If abnormal cells are common, why is my gynecologist insisting on a cone biopsy followed by an immediate hysterectomy (the same day while I'm still under) if it's pre-cancer or a radical hysterectomy performed by a cancer doctor possibly followed by radiation therapy if it's full blown cancer? Is it true that radiation therapy can either permanently screw up the immune system or damage it so bad it takes 10 years or more to get back to normal?



Those are questions you want to ask your gynecologist and another gynecologist, because to me he or she sounds a bit too "knife happy" and too eager to perform a hysterectomy. You definitely will need other opinions and checks, I mean if you have a car and you have an accident with it, you wouldn't really do what the first mechanic tells you, you would want to have several options, why treat your body with less caution?

There are different radiation therapies, usually not very pleasant and some with side effects, but I consider the side effects less severe than dying, and I'm sure you agree. After most radiation therapy it's not recommended to have children within a certain time frame (I think 3 to 5 years), I would think that is a fairly good indicator on the length of the side effects and until you're fully well again. Depending which radiation you are getting, the side effects will vary but what all of them seem to have in common is that they dehydrate you and leave you feeling sick, so you want to make sure to have plenty of fluid intake and you are having ginger (helps with the sickness).

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(in reply to defiantbadgirl)
Profile   Post #: 40
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