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RE: Unable to Diagnose Pain Stiffness Swelling - 11/11/2011 1:13:32 PM   
Lockit


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gorgeoushair, do you have any digestive issues? There are a lot of questions I would have for you, but from things that have been said here, I think some things are missing.

I would want to know about any digestive things you might have going on... any low grade fever... retaining water anywhere else on the body... white blood count, heart testing... family history, etc.

If you are having problems with arthritis of any kind, this could suggest a lower ability to fight off infection and such. Auto immune diseases can take many years to diagnos just as fibromyalgia and any doctor going the direction of fibromyalgia without proof of many things I don't see listed here... I would suspect is putting you off because of their own limitations. They don't often like patients like us. They can't figure it out and therefore... give you something like a name and then hope you will go on that or go to someone else. I'm not saying you don't have fibro, but I do suspect that diagnosis based on what has been said here. Swelling can happen with fibro, but I believe that is typically another ailment added to the fibro.

Right now, I see you going in any direction that this could be in a mad search to find out what is going on, which is very normal. However, you can easily get stuck on a direction that really isn't where you need to be moving. All you want are answers and to feel better. There is something missing here, I just feel that very strongly.

The product that LL is mentioning is called Green Magma. I must say... the stuff saved my life. I don't believe in things like this and always said.. if it works so well, someone would give it free, knowing it would help and that they would have a lifetime customer. I found someone willing to give this to me for free, no association with anyone or Green Magma. I had woken up after many months in bed, very ill and we thought I was close to my end. I was. My lips were turning blue and within a week, I started the green magma. Within a few weeks of working it certain ways, I was out taking short walks. Within a month I was so healthy and vital that no one could believe it. It has all sorts of minerals, vitamins and is considered the most perfect food. Baby green barely. The stuff is truly amazing. We found out that I couldn't absorb nutrients normally.

I can no longer take it as they think I have an allergy to something in it and it would be too risky, but it won't hurt most people, even if it isn't the total answer to their problems. If you wish to try it I can help you with how to start it out.. you dont' want full dose! Half dose for the first week. If you have energy level issues, absorbing nutrient issues, etc. this product will help you. It will boost your immune system! Don't go with the Magma plus... that shit is so nasty, you can't gag it down! Just get the regular green magma and you can find it much cheaper online than anywhere else. Google the 13 oz bottle of powder... don't' get the pills. The powder is easier to digest and you get more out of it as it is almost broken down for you already. The pills you will lose half the dose in digestion. If you can find the 13oz bottle, you can get it for the price of the 8oz.

Whatever is going on, the green magma won't hurt to try, but I can't say it will help because I don't know enough of what is going on. I can't place my finger on what I think is missing here, as I am real tired, but I do think something isn't adding up.


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RE: Unable to Diagnose Pain Stiffness Swelling - 11/11/2011 3:55:13 PM   
ShaharThorne


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Fibromyalgia reacts to different people.  Sure I got the swollen ankles and feet, god awful pain but I try to keep going.

Can't walk too far before I start hurt.  Can't stand too long on my feet.

I do try to keep moving though.  Best thing to do.

I do need to lose weight.  After we get the new flooring done, I will get back on my liquid protein diet with veggies and fruits.  I have to stop my comfort foods (mac and cheese and mashed potatoes).

As long as I can do 10 to 15 minutes at a time on the exercise bike, I feel that I am doing good.

Stay positive.  I was in remission for years then a nasty freeze got me.  I know that I will have another one in the future, just don't know when.


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RE: Unable to Diagnose Pain Stiffness Swelling - 11/11/2011 5:31:21 PM   
MistressDarkArt


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GH-
Your doc's suggestion of an antidepressant might be a good one. They are not a fix-all and you may not even be depressed, but they can be helpful dealing with chronic pain and unresolved physical issues. Prolonged chronic pain can stress your adrenal glands, putting you into fatigue or failure. It's like an office that takes 3 people to efficiently run. If 2 of them are out sick, the one remaining gets overwhelmed with the load and efficiency grinds to a halt. The AD 'puts the other 2 back in the office.' Mental function improves, ability to cope with pain and physical issues improves, quality restorative sleep becomes possible. It is not a cure or a diagnosis, but it may be very helpful in getting your body back on track to heal. Even a half or quarter dose can be helpful. Once you're feeling better and doing what needs to be done for your body, you can back them down and eliminate them if you'd like.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/12/2011 9:04:48 AM   
Duskypearls


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A holistic veterinarian I interned for regularly gave the homeopathic remedy Thuja to his patients to help prevent a vaccine reaction, and I am aware it's used for humans, as well. Here's a link regarding some remedies used for this purpose in animals. I am not diagnosing or prescribing, just offering information. Some homeopaths recommend treating with the remedy of the vaccine which caused the reaction, which in your case would be tetanus.

http://www.dogsnaturallymagazine.com/homeopathic-treatment-vaccine-reactions/

Here's one about post vaccine reactions for humans:

http://www.post-vaccination-syndrome.com/3924/the-post-vaccination-syndrome.aspx

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/12/2011 11:09:18 AM   
LafayetteLady


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With all due respect Dusky, the doctors have NOT stated it was a reaction to tetanus, only that it MIGHT be.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/12/2011 12:23:59 PM   
Duskypearls


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Layfayettelady,

I did not state that it was or was not their diagnosis, nor did I suggest I was diagnosing/prescribing. Like many others here, I merely offered it as a possibility worth considering and researching, no more, no less.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/13/2011 9:27:26 AM   
gorgeoushair


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Thanks, everyone for looking out for me, so kind and thoughtful and humane of you....I do understand what Dusky is offering and I appreciate it. I dont take anyone's comments as a diagnosis or prescription...just nice people offering what they can from their own experiences or their particular expertise. I do so appreciate it. you all have been wonderful.

This is where I am now. For the next month, I am regarding what I have as fibro, following a conversation I had three days ago wiht my rheumatologist from the Mayo, and following the exercise, sleep, etc., protocols that you are familiar with.
I am also drinking my two green drinks (sprouts, celery, cuccumber) twice daily and trying to get down two ounces of wheat grass juice twice a day.
Laying off sugar, flour, non raw as much as possible....let's see where it takes me...

You all are great, consider you my friends....lucky to have you all ...hugs.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/13/2011 10:01:42 AM   
Duskypearls


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Graciously and well said, Gorgeoushair. Good luck in finding your diagnosis, remedy and relief.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/16/2011 9:37:46 PM   
gorgeoushair


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Over the last few days, having lots of problems with pain. Could not stand up for more than an hour to work on a painting, where I had just a few days ago. Taking Tramadol. Doesn't seem to be working. Can't take the usual heavy duty pain killers, they either make me itch or nauseous. It is very wearing. Tried Neruontin for a bit, did not seem to work. Had a pain consult at the Mayo when I was there. Doc recommended a local pain doctor with whom he trained...trying to get that contact up and going. Also considering accupuncture...only real obstacle there is money. The beat goes on...with difficulty.

@ Lockit, et al, what is Green Magma and where do you get it?

Thnaks ...

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/17/2011 6:56:37 AM   
Rule


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quote:

ORIGINAL: gorgeoushair
Woke up with some physical symptoms returning: pain, stiffness in my body. Swelling of my feet and ankels (hands and wrists, too, again, now).

Did you eat rice or a product made from rice?

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 3:35:27 AM   
gorgeoushair


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@ rule, now generally try to stay away from carbs, including rice..what's up with rice?

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 3:57:23 AM   
Rule


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quote:

ORIGINAL: gorgeoushair
I am also drinking my two green drinks (sprouts, celery, cuccumber) twice daily

Stop drinking Brussels sprouts.

I dunno what your disease history is, but it seems to me that you've got one of them chronic diseases. I such cases I recommend: Avoid healthy foods. First of all limit your diet to several liters of yoghurt and plain vitamin C tablets (no fruit), perchance some potatoes (not all species of potatoes are safe, though) and once or twice a week a bit of meat (not marinated). If that does not result in an improvement in a couple of weeks, you might try something else, like various fish oils in combination with Urtica dioica.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 6:32:06 AM   
tazzygirl


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That combination would kill me. Literally.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 6:59:56 AM   
Rule


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Urtica dioica is reputed to have an effect on arthritis-like symptoms. I am dubious about the fish oil myself, but some people with chronic diseases benefit from a particular kind (I dunno which) and it was recommended about five years ago by his sports teacher to my nephew who has started to develop serious reumatoïd symptoms, including a spontaneous breaking rib and dislocating knee. The minus of fish oil is that it will strongly increase the risk of bleeding and it might therefore result in a stroke or heart attack. I speculate that the working mechanism of fish oil may be that it clads all kinds of molecules, preventing them from interacting - but I don't know.

I would not use fish oil myself. I prefer my diet of yoghurt and plain vitamin C. Tonight I am going to bake some potatoes and perhaps add some onion in.

< Message edited by Rule -- 11/21/2011 7:00:58 AM >

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 11:40:54 AM   
Lockit


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Without knowing exactly... let me put emphasis on EXACTLY, what is going on medically and a full history, some of the things being recommended could be dangerous. Do not add or rule out certain extreme things until you know more. You could be doing the opposite of what you really need to do. Right now, until you know... go easy on stopping all this or that and going to only this or that.

You can google Green Magma. Google the 13oz bottle as it is the cheapest. Do not get Magma Plus! Do not get the pills, you need the powder to digest better, to get more out of it and work faster in your system. I don't know many things Green Magma could hurt unless you have Celiac disease or cannot have baby green barely. Do check into that before you try it. It is worth a try... but whatever changes you make in this process... go slow, no fast moves and don't do things all at once. Go with one thing and then when that is tested and you know whats up with it, you can try something else.

If the pain is increasing as you say... you may be in a cycle of pain that needs to be broken and it is as simple as that, even if they don't yet know what it going on. You are in crisis... so work on the pain symptoms and breaking that cycle and then go from there.

Good luck!




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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 1:04:31 PM   
LafayetteLady


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From: Northern New Jersey
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quote:

ORIGINAL: gorgeoushair

Over the last few days, having lots of problems with pain. Could not stand up for more than an hour to work on a painting, where I had just a few days ago. Taking Tramadol. Doesn't seem to be working. Can't take the usual heavy duty pain killers, they either make me itch or nauseous. It is very wearing. Tried Neruontin for a bit, did not seem to work. Had a pain consult at the Mayo when I was there. Doc recommended a local pain doctor with whom he trained...trying to get that contact up and going. Also considering accupuncture...only real obstacle there is money. The beat goes on...with difficulty.

@ Lockit, et al, what is Green Magma and where do you get it?

Thnaks ...


Tramadol is not really for pain. It helps with sleep or is supposed to. It is not uncommon to have opiate pain relievers cause itching. I know if they give me codiene I scratch like a meth addict. Not fun. The "heavy duty" painkillers tend to be Oxycodone (which is Percocet). For the swelling and joint pain, you have things like Celebrex and Voltarin, which should not cause itching, they are anti-inflammatories.

Have they started you are anti-depressants? Because really, they are going to be helpful in getting your stress levels evened out. You never said...have you tried elevating your feet? What happens?

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 3:01:15 PM   
angelikaJ


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quote:

ORIGINAL: LafayetteLady


quote:

ORIGINAL: gorgeoushair

Over the last few days, having lots of problems with pain. Could not stand up for more than an hour to work on a painting, where I had just a few days ago. Taking Tramadol. Doesn't seem to be working. Can't take the usual heavy duty pain killers, they either make me itch or nauseous. It is very wearing. Tried Neruontin for a bit, did not seem to work. Had a pain consult at the Mayo when I was there. Doc recommended a local pain doctor with whom he trained...trying to get that contact up and going. Also considering accupuncture...only real obstacle there is money. The beat goes on...with difficulty.

@ Lockit, et al, what is Green Magma and where do you get it?

Thnaks ...


Tramadol is not really for pain. It helps with sleep or is supposed to. It is not uncommon to have opiate pain relievers cause itching. I know if they give me codiene I scratch like a meth addict. Not fun. The "heavy duty" painkillers tend to be Oxycodone (which is Percocet). For the swelling and joint pain, you have things like Celebrex and Voltarin, which should not cause itching, they are anti-inflammatories.

Have they started you are anti-depressants? Because really, they are going to be helpful in getting your stress levels evened out. You never said...have you tried elevating your feet? What happens?



Tramadol (which is a synthetic opiod) IS for pain. It used to be thought of as non-addictive and doctors have since learned otherwise.
http://en.wikipedia.org/wiki/Tramadol

Perhaps you were thinking of Trazodone: an antidepressant frequently prescribed to help with sleep issues.
http://en.wikipedia.org/wiki/Trazodone

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 6:35:27 PM   
kalikshama


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quote:

Also considering acupuncture...only real obstacle there is money.


If acupuncture is the only thing that works for you, you'll find a way to pay for it.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 7:54:17 PM   
LafayetteLady


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You are so right angelikaJ.

Might be because at the moment I am in need of both, a sleep aid AND a pain reliever!

Tramadol isn't a controlled substance though, is it?

At any rate, now that you made me think about which is which. I have had Tramadol injected in an IV. Not such a horrible choice. Pill form? Useless to me. Same thing with Dilaudid. Injected in an IV? Lovely. In a pill? Total waste.

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RE: Unable to Diagnose Pain Stiffness Swelling - 11/21/2011 9:01:06 PM   
Duskypearls


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LayfayetteLady, have you considered peripheral neuropathy/polyneuropathy as a possibility, aside from what else may or may not be going on in the joints?

< Message edited by Duskypearls -- 11/21/2011 9:41:10 PM >

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