Information Concerning Arthritis, FMS and Spinal Injuries

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Information Concerning Arthritis, FMS and Spinal Injuries - 3/10/2005 4:46:04 PM

sippity

Posts: 3
Joined: 3/2/2005
Status: offline

Greetings to A/all.

i would very much like information or perhaps someone has first hand experiences with submissives with FMS ( fibromyalgia syndrome) as well as osteoarthritis and spinal conditions , to name a few herniated disc and spinal fusions that would share information concerning these specific issues. i'm well aware that many healthcare professionals are indeed a part of the lifestyle. Any and all resources would be most appreciated. Many times these areas i've mentioned are missed and there simply isn't information regarding them. B/both Dominants and submissives please feel free to respond with any information would be most happy to hear from A/all.

advanced thanks,
sippity

< Message edited by sippity -- 3/10/2005 4:49:13 PM >

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/10/2005 8:01:26 PM

ohioslave4u

Posts: 5
Joined: 2/25/2005
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Hi There, i for one have had 2 back surgerys within a yrs time. i Backed a bulldozer over a hill and landed wrong. no matter what my doctor say,s i am far from heeled. the last operation was a 2 disc removal than a spinal fusion at L4 and L5, the last mri i had was nothing but bad news with 3 disc portusions and spinal stemonis. anyway i tried to get back into the scene a while back. by the time the motor in my car cooled off i was ready to go. i use to be able to take very heavy cbt and whipping. but i couldn,t take crap. i was so mad. at one time my Mistress could hold a voilet wand any where and i liked. no more. there is alot of nerve changes that comes with back surgery. besides i can,t bend over or get up and down very easy anymore, i have alot to advise on this subject as i have done alot of reading and have had just about anything done that i what done. if you have Questions don,t be afraid to ask good luck

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/10/2005 8:16:43 PM

mistoferin

Posts: 8284
Joined: 10/27/2004
Status: offline

Greetings sippity and welcome to the boards. I have a few restrictions regarding my play due to a broken back I suffered years ago and arthritis in my large joints leftover from Lyme disease. I can tell you there are some positions that are painful and bondage in certain positions for extended periods is sometimes impossible. As I am sure you know....you have your good days and your bad days. I am concerned reading your post that with the problems you list, it is my opinion that you seek the advice of a qualified health professional. Find someone you can trust and be very specific with them. The herniated discs are of particular concern for I know that just the wrong movement can seriously compromise the situation. I am sure that there will be lots of good hearted folks who may wish to give you advice based on their own experiences, but each individual case varies and yours seems to be complex. I would err on the side of safety and speak to a professional.

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Peace and light,
~erin~

There are no victims here...only volunteers.

When you make a habit of playing on the tracks, you thereby forfeit the right to bitch when you get hit by a train.

"I did it! I admit it and I'm gonna do it again!"

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/10/2005 8:49:35 PM

FangsNfeet

Posts: 3758
Joined: 12/3/2004
Status: offline

In the past I've been a Rehab Technition. I've done therapy with many ppl with various problems in nurseing homes and in the hospital. I continue to work with patients in the Trauma Unit.

As a Dom I haven't worked with these type of ppl. As a Medical Worker (still on a sadistic side) I take very much into consideration. When making one like this walk and later do chores you may have to be there by there side. It's important to know there Whinning vs there Really not being able to go for the day.

1. Make sure they are taking there medications. Have them take as little pain medication as they can tolerate.

2. Have the right equipment with you. Back braces, gate belt, walker, cane, and such.

3. Follow the rules with movements as instructed by your doctor with twisting, turning, and such.

4. Never give up on P.T. Pain and Tourture. Physical Terrorist are great people doing Bad Things in the Name of Good. Even after the patient has done all there physical thereapy, continue to do the exercises with them at home.

5. If you love them, you will continue to do what is needed to motivate them in getting better and staying productive. Spanking, gratification denile, whatever it takes.

6. S&M wise, Spanking, biteing, lite bondage, blind folds, nipple clamps, ice, stripping, ginger rooting, and such shouldn't be a problem. Humiliation you can do as you feel. You can always be curel "No I won't get that for you just yet." "You just got a knee replacement. It's a brand new knee, you should be better than ever now." "You know you can do it yourself" Be creative with it. Holding moderate pain medication is past the line for me but it might work for you.

Being that I'm a little tired that's all I can think of for now. If you would like more ideas just send me a message on my Collarme account.

NEXT!

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/13/2005 7:56:14 AM

SherriA

Posts: 544
Joined: 1/1/2004
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I'm not sure what you're asking for here. I have RA and FMS, as well as degenerating discs in my lower back, and yes, it does indeed impact what I can or can't do (and that changes from day to day, depending on a variety of factors). But, my problems won't be your problems.

My best advice is to become as knowledgable as you can about your particular conditions. Find a GOOD health care provider - one that you trust and that will work with you to achieve the best treatment for YOU. Be an active part of your own treatment - don't just passively do whatever someone tells you, make sure you understand why and what result is hoped for and what side effects might occur.

Once you've done that, it's a good idea to be very open and clear with your partners about any limitations you may have, and make sure that they understand that the ability to do certain things may change from day to day (or hour to hour when the weather is like what we've been experiencing here in New England!). Learn the difference between "good" and "bad" hurt. Be clear about the difference between "i dont' like this" and "this may be damaging".

It's also probably not a great idea to use your medical conditions as an excuse to get out of things you simply don't want to do/participate in. It can become a case of the boy who cried wolf if you abuse that excuse. "I don't want to" isn't the same as "I can't". Both are valid, but the difference is significant.

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Fighting for peace is like fucking for virginity.

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/13/2005 1:08:14 PM

phoenix52

Posts: 179
Joined: 12/9/2004
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Hi sippity,

You might like www.kinked.org. It is a support site for BDSMers with disabilities.

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/14/2005 11:12:25 PM

sippity

Posts: 3
Joined: 3/2/2005
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Hi phoenix52,

Thank you so very much for the information link ... and your respond. It's a joy to know that the site is available. Be blessed ....

sippity

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/14/2005 11:16:24 PM

sippity

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sippity thanks A/all for the prompt responses and sharing.

much luv,

sippity

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/18/2005 12:38:52 PM

ARoseAndAnEye

Posts: 67
Joined: 12/8/2004
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i, too, have serious back and neck issues. 2 herniated cervial discs, 1 bulging. it goes on from there. It gets me down quite a bit, because there are many positions that i used to be able to tolerate quite well, that i can't begin to think of attaining today. Master and i work around it. Obviously no suspension play. Obviously no heavy bondage to my upper body. (sniff sniff!!!! -- god i'm getting depressed all over again!!).

Like it was already said, there are good days and there are bad days. The health issues with my neck and back are the ONLY issues Master allows me to have full say in. If i feel i'm being put into a position that will compromise my spine, i am allowed to say so, and Master immediately alters what He is doing.

One of the first things W/we mention to those we play with are my back and neck issues, and that this is not an area to be stressed. So far, everybody we've come into contact with has respected this, and we play as intensely as my spine will allow. Obviously if i am in pain before we enter a scene, we cancel it.

~ anna

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RE: Information Concerning Arthritis, FMS and Spinal I... - 3/19/2005 4:50:44 PM

mamapolarbrr

Posts: 6
Joined: 2/7/2005
From: northern northern california
Status: offline

I have FMS & MPS....I know right off the bat Shibari is going to be an issue......from what I understnad it takes sometime for the elaborate tying to be done and then to remain in a tightly held position is gonna be bad news for anyone with FMS or MPS, let alone both. The general rule for FMS/MPS is to change positions every 20 minutes...apply that rule to your BDSM activities as well. If your partner can't accomodate, you don't need that partner. Their main concern should be for your well-being, right?

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Christy

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RE: Information Concerning Arthritis, FMS and Spinal I... - 4/1/2005 7:30:35 PM

SoulfulPisces

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Joined: 5/15/2004
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I have actually come to collarme.com as an observer because of my FMS/CFS. I left the local scene because of it and am afraid of reentering it.

I have spinal pain 24/7 and I honestly don't know from one day to the next what would cause a flair-up, that's what frightens me. I am often fatigued and moody and I don't feel it's completely selfish after this has hit me around 2-3 years ago to think of me, my health.

Has anyone entered the lifestyle or entered it again after their diagnosis and if so how did they handle the emotional part as well as the physical?

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RE: Information Concerning Arthritis, FMS and Spinal I... - 4/21/2005 5:04:28 PM

darlingjade

Posts: 54
Joined: 1/31/2005
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Hmm...Ok, I have FMS, horrendous migraines and my thyroid was removed entirely five years ago.

Honestly, getting a diagnosis on each of those was the first battle. After getting a diagnosis the next step was being patient enough to find the right meds and lifestyle that works best for me.

Will say here that I think a lot the reason that I'm able to live the kind of productive life that I do has a lot to do with my attitude. Never once have I asked "why me?" because I always figured why NOT me? Do I REALLY think that I'm so much more special than the child that has cancer? Nope. So I never went there. Instead, early on I decided that I was going to live my life to the fullest extent possible.

Yes, I tailored my lifestyle to accomadate those things that I have no choice but to accomadate but I refuse to give one damn milimeter more than that. So as soon as I was able I pushed the envelope as far as I could to find out exactly where I my limits were down to that last tiny milimeter.

The net result of all of this is that today I work out probably 4-5 five times a week by running 30 minutes and lifting light weights. My job is physically demanding(I wait tables at a fast paced restaurant) and for all intents and purposes the rest of my life is normal as well.

Hmm...As for limitations regarding wiitwd? Well, other than needing to shift positions after kneeling for a while, knowing I'll never experience suspension or sleep deprivation(sleep is VERY important to folks with FMA) and the handful of pills I have to take every day there's not a lot else...Oh, and because of the thyroid thing I can't allow a Dom to dictate a diet of rapid weight lose because I'd end up in the hospital...

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