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RE: Parents of special needs kids - 9/3/2009 11:30:50 AM

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Hugs for gypygirl. It probably compounds those "meanies" That he is 15 and going through all the hormones of puberty.

My son was put on a too high dose of Aderall and for those 2 days was angry and hostile. Then he puked all over the car from being given it on an empty stomach. Not me, his father. Concerta works much better for him too plus the straterra. He has his issues but is very mart and does very well in school. My son has Aspergers Syndrome.

Since you are new to this party, let me welcome you and tell you how glad we all are that you are here to lend support and get support.

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RE: Parents of special needs kids - 9/8/2009 10:57:43 PM

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My husband has ADHD and dyslexia. I am ADD and on the autism spectrum.

So of course when we reproduced, we had one with ADD with autistic features and dyslexia, and one with ADHD. It's been interesting.

I have always worked well and understood the eldest boy; he's the one with the autistic traits, like me. He has found a lot of the tricks I use to maintain a moderate focus or get out of a deep focus in due time useful. I started teaching him ways to deal with frustration early, and did a lot of work redirecting his brother away from him because Eldest has a profound dignity and doesn't handle teasing well, and never has.

The youngest....ack. Very hyperactive. Very sociable and charming; I think he will wind up in sales because he can sell ice in the winter, but he also has a profound drive to figure out how things work and why things are the way they are. This was the cause of some of our scares when he was a toddler, because he would just suddenly decide to try to jump off the roof. (!) He's settled down somewhat now that he's nine, but he's still very hyperactive and is having to learn ways to burn it off safely without it getting in his way.

They are both going to be strikingly physically attractive men, and both should top six feet tall, so they've got that as an advantage in life, at least.

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RE: Parents of special needs kids - 9/17/2009 10:10:31 AM

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How are your kids fairing with the whole back to school? This year seems to be slightly better. Guess hes growing up.

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RE: Parents of special needs kids - 9/22/2009 4:15:56 AM

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This thread is too precious...needs bumped, and i need advice.

The Loudone had his second eval with a specialist a few weeks ago. I called the Drs office to find out when the offical report will be in (a day or two) and i can give you more info then. I will tell you that it was awesome!! This doctor was so positive, praised the LO, sat on the floor with him, and just interacted so well. It was obvious that he loved the kids he works with and that made such a huge difference!! He did not dismiss that there are several issues, Autism/PPD, and ADHD (we will know more when we get the offical report). But sheeesh...what a difference a positive attitude makes!

Ok...so the issue of the day. Game playing. Games such as Chutes and Ladders, and other age appropriate board games. I bought LO a Curious George Board game and we all sat down to play it last night. He was terrible!!!

He refused to wait for his turn, grabbed all the playing pieces from the board as well as his dad and i, and was just a gereral obnoxious pain in the tush. He got frustrated after a few minutes when he was prevented from having his way. He announced that he did not want to play any more (no surprise). Hubby and i continued to play, basically ignoring him and he did his all out best to be disruptive until the game was over. I do not know if he had a lack of interest in the game itself (Curious George has never caused an adrenaline rush, as far as i know) or if he was lost on proper behavior, or...or...

Part of this is our fault, as we have not been up on the board game playing, as we should have been. It has always been reading, counting and that stuff in the evenings.

Now correct me if i am wrong...but playing a board game is the most basic of social skills? Taking turns, respecting the space of the other players, etc.

Any ideas on board games to get him started and hold his interest? Then...any help at all???

Hugs to all of you and i missed this thread!!!

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RE: Parents of special needs kids - 9/22/2009 7:59:40 AM

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I've only read the first page, so, I'm sorry if I am not up to date. When I was around... 3-5 years old, my doctor diagnosed me with ADHD. My mom REFUSED to put me on medication, and instead, gave me peanutbutter and apples or a little coffee with a lot of warm milk. She said those things worked. I still feel crazy hyper and get rampagey if I don't get my coffee in the morning. It works about the same way as Ridalin. Its a stimulant, just not as serious of one. Maybe I had a mild case, but I thought it was something you could try out. May work faster than Ridalin in fits.

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RE: Parents of special needs kids - 9/22/2009 8:24:46 AM

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thank you Kitten...i actually did try caffeine with him and it seemed to have no effect at all. We with ADHD are wired so differently. Benadryl will all but have the LoudOne and i ready to jump out of our skin, whereas everyone els is knocked loopy.
So on that theme, the caffiene should have calmed him a bit. Now keep in mind i am clueless as to how much to give him (i tried a tablespoon of regular coffee) so perhaps i did not give him enough.

Then there is the reason that most lil ones are not given the stimulating meds like Ritalin and Adderall...supposedly they are not effective with ones so young. The Dr suggested we be prepared to medicate by the time the LO starts Kindergarten, in another two years. Hopefully it will not be necessary.

The doctor also mentioned the Finegold (?) diet, which eliminates all preservatives and additives. I ordered a book and am waiting for its arrival.

The biggest culprit that i have read about is Red Dye 40. Now...when i first read how dangerous this is for our special sweeties, i was dumb enough to think..red dye..pretty obvious, right? HA!!!! Do you know there is Red Dye 40 in white cake frosting??? There is nothing obvious about it.

< Message edited by sirsholly -- 9/22/2009 8:25:44 AM >

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RE: Parents of special needs kids - 9/22/2009 8:44:26 AM

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Huh. White frosting... Strange...

Yeah, not enough. Mom gave me a bit more. Peanutbutter by a spoonful may help calm him. Coffee... Maybe a bottle or sippy cup, half coffee, half milk, not too warm. Not sure. Mom is supposedly the same as me. We're hyper without the coffee. Coffee chills us out. Maybe ours is more mild, though. No clue.

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RE: Parents of special needs kids - 9/23/2009 4:51:51 AM

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Red dye 40 is the worst culprit. Go look for a strawberry yogurt that doesn't have any. More now but when my daughter was little there was only one, Dannon fruit on the bottom. The lite Dannon has it.

About the game, there's a huge amount of frustration in losing. My mother in law found a game where there are no winners or losers, Snail Pace Race. You don't have 'your' piece, you just roll colored dice and a number dice and move whatever color snail up the number of spaces. It eliminated a lot of problems because she couldn't lose. There are games made for special kids, the doctor's office should have a website if you can't google any.

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RE: Parents of special needs kids - 9/23/2009 4:58:45 AM

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good heads up on the yogurt, Celeste..thank you.

About the games...Jim and i would most certainly let the LO win. His issue is he cannot wait for him turn at all. We never even got him close to the end of the game. Snails Pace Race is going on my list though...hopefully we will get him past this

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RE: Parents of special needs kids - 9/23/2009 5:06:55 AM

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http://www.dotolearn.com/
Found this site.

The big problem here is the frustration level. Plus he's too young to really have a full vocabulary yet. Can he express how he feels in words. Most of these kids can't and they don't know the words. They don't know the difference between feeling frustrated and being angry or irritated. And that by itself is frustrating, to have feelings without being able to identify or share them. They have posters with faces and the name of the emotion underneath. But asking him how he's feeling when he doesn't know is itself frustrating, it's easier to point to a face and you describe the feeling.

Colorforms are also good, and those six piece puzzles. Something easy to do so he can't fail at it.

As far as taking turns though, you don't have to complete the whole game, if he can make one round, applaud his patience and good sportsmanship and then put the game away. You want everything to end on a good note.

For cleaning up, I'm told it can be helpful if you do it by color. Can you put away 3 purple things and so on.

Times like this you wish God didn't trust you enough to handle all of it though. Good luck.

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RE: Parents of special needs kids - 9/23/2009 5:14:22 AM

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Ah yes. Good ole red dye. I remember when I was first going out with my husband, I foolishly forgot the red dye thing and fed his special needs 3 year old...are you sitting down? Fruit punch. He was just slurping back the last of it, as my then b/f want pale seeing what I had given the wee man to drink....It was definitely a lesson I'll never forget as this tazmanian devil-like creature tore apart the house until 3am.

He is such a fascinating boy as he has never fit into any one category, nor can they give a name to his condition. But that has made paperwork a nightmare since you need a diagnosis for getting help. So the doctor and I put our thinking caps on and decided Static Ecephalopathy was an iimpressive sounding name. lol

Since then we have taken our boy to a Naturopathic doctor, just for some extra input on some things we can do to help some issues he may be having. Interestingly, she recommended more protein to help with his lacking muscle tone, no bananas (sadly he loves them), and no dairy. The changes weren't overnight, but he did seem calmer and able to focus for longer periods of time. A fistful of different b vitamins, a lot of Omega fatty acids...and you know, I think it all helps.

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RE: Parents of special needs kids - 9/23/2009 6:27:14 AM

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quote:

http://www.dotolearn.com/
Found this site.

Wow...really good site, Celeste. Thank you, as usual you advice is awesome.

Reading what you said, i cannot believe i was actually expecting his to sit through the entire game!!

And you are right about the frustration level...he doesn't KNOW...he just feels and reacts.
I am going to try to get a smiley face poster...i really think that will help a lot.

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RE: Parents of special needs kids - 9/23/2009 6:29:30 AM

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quote:

He is such a fascinating boy

he is lucky to have you

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RE: Parents of special needs kids - 9/23/2009 8:23:32 AM

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http://www.childtherapytoys.com/store/index.html

Welcome LadyEss

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RE: Parents of special needs kids - 9/23/2009 10:04:35 AM

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i have been on that site for the past few minutes, Celeste. It seems great.

I found a mood/emotions poster on Amazon. My guess is with a bit of prompting at first the LoudOne will really enjoy using it. Thanks so much for the suggestion

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RE: Parents of special needs kids - 9/23/2009 3:49:54 PM

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The good thing about identifying the problems this early is that he will do better in the long run. Can you find a good play therapist in your area? Good for him and you get to sit there and read a magazine for an hour which you need.

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RE: Parents of special needs kids - 9/24/2009 12:40:52 PM

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A great game for people with a short attention span is Croco Doc. No long setup, fast rounds, and a realistic chance at winning for all.
Croco Doc

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RE: Parents of special needs kids - 9/24/2009 2:52:49 PM

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You might try "Hungry hungry hippo.

No waiting for turns, lots of banging and noise, short timeline and no-one wins if you don't count the cherrys.
My kids loved it.

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RE: Parents of special needs kids - 9/26/2009 8:07:53 PM

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found this site while trying to find something else...

http://www.autismteachingtools.com/

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RE: Parents of special needs kids - 9/26/2009 8:50:56 PM

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What about playing trouble? Play with only two people, shorter turn cycle and with only one or two peices and maybe even shorten the circle around the board by using two homes... or he gets two colors/homes with one peice each. With the popping dice in the center it might capture his attention with the noise and such. Or what was that game... the one with the body and you had to remove things from him... does anyone know what I am talking about? Oh.. Operation... I think.

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