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RE: Got Prayers? (Or Good Wishes?) - 3/17/2013 4:44:20 AM

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Same here, Needles. I don't do it for myself (that is being self serving) but when I do it for others, the karma comes back to me 3 fold.

Prayers and candles on this end, DC.

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RE: Got Prayers? (Or Good Wishes?) - 3/17/2013 5:17:08 AM

absolutchocolat

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FR

Sending good wishes your way, DC. You are an inspiration, honey.

(in reply to ShaharThorne)

RE: Got Prayers? (Or Good Wishes?) - 3/18/2013 7:56:36 AM

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Keeping you in my prayers, dc.

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RE: Got Prayers? (Or Good Wishes?) - 3/18/2013 12:39:07 PM

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Today’s vocabulary word is “nocturia.” It’s an affliction in which one awakens repeatedly during the night, feeling the need to urinate, and I learned this morning that it’s a potential side effect of radiation. It’s also the story of the past three nights. As a result, I’m exhausted and brain-dead, and I had to take a sick day today. This is intensely frustrating, because I could really use the time to crank on work. And I’d been hoping to save my sick leave for surgery.

Fortunately, I have my weekly check-in with the radiation oncologist after this afternoon’s treatment, so I’m fervently hoping he’ll be able to help. Meantime, prayers and well wishes welcome!

_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to SassySarijane)

RE: Got Prayers? (Or Good Wishes?) - 3/18/2013 7:42:06 PM

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Okay, I'm looking at the patient information for Xeloda, my chemo drug, and it warns, "DO NOT SHARE THIS MEDICINE with others for whom it was not prescribed." Who on Earth takes chemo drugs when they don't have to?!

_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 3/19/2013 6:16:57 PM

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Now that you've all said how well I'm handling things, I just need to vent tonight.

I am so sick of my goddamn body right now.

And I'm crabby about well-meaning friends and relatives who are nagging me about things that I need to do but don't have the energy to cope with right now. I end up having to mange their anxiety about my illness!

_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 3/19/2013 6:33:37 PM

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Vent all you want DC. We won't hold it against you.

If you don't have the energy to do it, then don't do it. Whatever IT is, it will keep. Or, your well meaning friends and family that are harping on you could come do it for you.

Hope you get some quality sleep tonight. My thoughts are with you, for what it's worth.

peace
lts

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 3/19/2013 8:56:58 PM

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Try to keep your sense of humor about things. You are fighting, and you are tired. It's okay.

Vent to your heart's content. Call everyone you know every name in the book. We will cheer you on!

And yes, it sucks that usually people who are sick end up having to comfort those close to them rather than the other way around.

Don't do anything you don't want to do.

I don't know if any of the over active bladder medications might help your night peeing, but it is worth asking about.

I know that sometimes I end up sleeping on the couch just because it is so much closer to the bathroom, with no stairs, lol. Other times, I serious consider just wearing a diaper to bed so I don't have to get up to pee. Yea, I can get lazy like that, especially when I'm really tired, lol.

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 3/21/2013 8:08:24 AM

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dc,

One of the worse parts of being ill is the way other people, no matter
how well meaning, think they should take control of your life. When
you are fighting the illness you should not have to fight that too, but
it is part of the package.

Vent as much as you feel like venting. If you feel inhibited about
venting publicly then then feel free to vent to my mailbox. I am on
the other side of the country so I will never interact with any of them
and I respect privacy.

Outlier

_____________________________

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"A happy sex life may take years to achieve, but it’s worth it in the long run.
Worth the time, the thought - or rather, the thoughtfulness - and, often,
the waiting." Pete Seeger

(in reply to LafayetteLady)

RE: Got Prayers? (Or Good Wishes?) - 3/21/2013 8:12:33 AM

AthenaSurrenders

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quote:

ORIGINAL: dcnovice

Today’s vocabulary word is “nocturia.” It’s an affliction in which one awakens repeatedly during the night, feeling the need to urinate, and I learned this morning that it’s a potential side effect of radiation. It’s also the story of the past three nights. As a result, I’m exhausted and brain-dead, and I had to take a sick day today. This is intensely frustrating, because I could really use the time to crank on work. And I’d been hoping to save my sick leave for surgery.

Fortunately, I have my weekly check-in with the radiation oncologist after this afternoon’s treatment, so I’m fervently hoping he’ll be able to help. Meantime, prayers and well wishes welcome!

Goodness, you're working while having radiation. You sir, are a rock star.

Sorry to hear that people are frustrating you by nagging. Are any of the things stuff you can delegate?

_____________________________

Being your slave, what should I do but tend
Upon the hours and times of your desire?

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 3/25/2013 10:16:18 PM

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FR

Spent the latter half of last week in Georgetown University Hospital with a bracelet like this one adorning my right wrist. Chemo-radiation appears to have shrunk my appetite. Eating and (especially) drinking less dehydrated me. That lowered my blood pressure, making me unsteady on my feet and prone to falling. Spent several days getting rehydrated, and BP has returned to normal. But alas, I'm still pretty wobbly and reliant on a cane. Ugh.

_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to AthenaSurrenders)

RE: Got Prayers? (Or Good Wishes?) - 3/26/2013 7:49:08 PM

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(((hugs))) dc.

You are in my continued thoughts and prayers.

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(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 4/4/2013 11:48:43 PM

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In my writerly, exhibitionist way, I've created an email newsletter about my medical journey. It started as a simple way to update family and friens, then took on a life of its own. Here's tonight's installment, entitled "Am I a great host or what?"

My sister, Maureen, came to town two weeks ago. We’d already done the standard sights over the years, so I found an exciting new venue to explore: Georgetown University Hospital. A thrill a minute, as you can imagine. It was kind of cool to be on campus, in a way, as the Hoyas played in the NCAA. Might have been even cooler if they didn’t lose their very first game. Sigh.

GUH proved such a successful excursion that I repeated it the next week for my brother Teddy. Being admitted on Good Friday gave a certain symmetry to a Lent that had begun there on Ash Wednesday. It also provided a context for what must be one of the more rarified moments of medical humor. (Perhaps I should send it to Reader’s Digest?)The CT tech cheerfully promised that the scan wouldn’t go a second after three hours. “Perfect!” I replied. “I’ll hold my own with Christ on the cross.” Once he stopped laughing, the tech trumped me with “But I do not want to hear you say, ‘It is finished!’” Catholic hospitals do have their advantages.

Mom and Dad arrived in Maryland this evening, and we’ll catch up tomorrow. They’ve already seen my in-patient schtick, so we’re varying the theme with MRIs tomorrow (spine) and Saturday (head). Do I know how to give folks a fun weekend, or don’t I?

Joking aside, I need to be real and raw for a minute. I’m scared. Nothing so far in this journey, not even the possibility of a colostomy and certainly not death (says Mr. Humane Euthanasia!), has driven terror into my bones (which, you may recall, cannot be numbed) quite like the thought that the dizzy spells (which have hit me tonight even while sitting) and the loss of left-hand function (for a southpaw) are permanent changes, inexplicable and incurable. I cannot describe the mix of horror and despair that welled up in a meeting this afternoon as my efforts to take notes yielded nothing but runes.

If you’re the praying or good-energy-sending or whatever-works-for-you type, I’d appreciate your keeping me in mind at 4:30 ET tomorrow (4/5) and 11:00 ET on Saturday (4/6).

Thank you.

On the off-chance you want to follow a stranger's oncology adventure, feel free to pm me with your email. I totally realize this is not most folks' idea of recreational reading!

_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to angelikaJ)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 2:43:44 AM

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From: Northern New Jersey
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That you are able to continue this journey maintaining your humor is not simply a cover for your fear, but also an example of your strength.

Honestly? I think you should turn your journey into a blog, not an email newsletter. I think a lot of people would follow you are on your journey, and it would get a whole lot more people sending you positive energy and prayers. You could even make some money!

You are in my prayers all the time. Not simply that you will come through the other side on this, but that you can maintain your strength and humor along the way.

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 5:59:34 AM

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Mom just discover (really predicted) that her aunt has leukemia. G broke her foot a few months ago and the doctors were worried where her blood was going (possible internal bleeding?) Met her once when I was helping another aunt move down to Baton Rouge.

Still lighting candles and praying for you. Now I add my great aunt to the list...

< Message edited by ShaharThorne -- 4/5/2013 6:08:20 AM >

_____________________________

Goddess of Yarn

You are making two and a half feet of irresistible, tubular sex! -Lola, Kinky Boots

Founder: Bitch with Tits

Whip me, beat me, make me feel cheap and have great sex

(in reply to LafayetteLady)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 10:00:15 AM

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Sending good wishes your way mate. I hope it goes as well as it possibly can do.

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 10:10:05 AM

Rule

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quote:

ORIGINAL: LafayetteLady
I don't know if any of the over active bladder medications might help your night peeing, but it is worth asking about.

Peeing removes the end product of metabolism from a body. I recommend to just have peace with the symptom.

_____________________________

"I tend to pay attention when Rule speaks" - Aswad

"You are sweet, kind, and ever so smart, Rule. You ALWAYS stretch my mind and make me think further than I might have on my own" - Duskypearls

Si vis pacem, para bellum.

(in reply to LafayetteLady)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 1:24:35 PM

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quote:

ORIGINAL: Rule

quote:

ORIGINAL: LafayetteLady
I don't know if any of the over active bladder medications might help your night peeing, but it is worth asking about.

Peeing removes the end product of metabolism from a body. I recommend to just have peace with the symptom.

SURE! "have peace with the symptom." But! This is a kinky site, so in keeping with a sense of humor - - y'know, some are INTO water sports. (Seems more gay men than straight folk.)

Actually, I have a symptom (of a disease I won't go into) called "urinary urgency." NOT fun! Not over-active, you see.... just, well, (blush.)

All the medical "play" is just that, "play." When you get a reality check - or a slap aside the head - then it's not play.

Close to 4:30 ET on April 5, so I'll just concentrate as asked above.
-------------------
Quartet:
(1) Taking Xeloda
(2) Has a new tattoo on his butt
(3) Was on Jeopardy with his vast knowledge of Presidents, their wives and all that kinda stuff. (I mean, who else knows the question for the answer "Nov. 24th, 1784" in the category "Presidential Birthdays"?)
(4) Jokes about Good Friday in the Catholic Hospital
------------------
Keep up your sense of humor, man.... I often say that if I stop cracking jokes but am still breathing, never mind the breathing part. Just lay me out me on the closest dirt and throw some old leaves over me.

_____________________________

"Train 'em the right way - my way." Lance Hughes
"Advice is what we ask for when we already know the answer, but wish we didn't." Erica Jong

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(in reply to Rule)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 2:21:18 PM

Posts: 40310
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quote:

ORIGINAL: dcnovice

In my writerly, exhibitionist way, I've created an email newsletter about my medical journey. It started as a simple way to update family and friens, then took on a life of its own. Here's tonight's installment, entitled "Am I a great host or what?"

My sister, Maureen, came to town two weeks ago. We’d already done the standard sights over the years, so I found an exciting new venue to explore: Georgetown University Hospital. A thrill a minute, as you can imagine. It was kind of cool to be on campus, in a way, as the Hoyas played in the NCAA. Might have been even cooler if they didn’t lose their very first game. Sigh.

GUH proved such a successful excursion that I repeated it the next week for my brother Teddy. Being admitted on Good Friday gave a certain symmetry to a Lent that had begun there on Ash Wednesday. It also provided a context for what must be one of the more rarified moments of medical humor. (Perhaps I should send it to Reader’s Digest?)The CT tech cheerfully promised that the scan wouldn’t go a second after three hours. “Perfect!” I replied. “I’ll hold my own with Christ on the cross.” Once he stopped laughing, the tech trumped me with “But I do not want to hear you say, ‘It is finished!’” Catholic hospitals do have their advantages.

Mom and Dad arrived in Maryland this evening, and we’ll catch up tomorrow. They’ve already seen my in-patient schtick, so we’re varying the theme with MRIs tomorrow (spine) and Saturday (head). Do I know how to give folks a fun weekend, or don’t I?

Joking aside, I need to be real and raw for a minute. I’m scared. Nothing so far in this journey, not even the possibility of a colostomy and certainly not death (says Mr. Humane Euthanasia!), has driven terror into my bones (which, you may recall, cannot be numbed) quite like the thought that the dizzy spells (which have hit me tonight even while sitting) and the loss of left-hand function (for a southpaw) are permanent changes, inexplicable and incurable. I cannot describe the mix of horror and despair that welled up in a meeting this afternoon as my efforts to take notes yielded nothing but runes.

If you’re the praying or good-energy-sending or whatever-works-for-you type, I’d appreciate your keeping me in mind at 4:30 ET tomorrow (4/5) and 11:00 ET on Saturday (4/6).

Thank you.

On the off-chance you want to follow a stranger's oncology adventure, feel free to pm me with your email. I totally realize this is not most folks' idea of recreational reading!

you will have mail. sending healing huggly when needed thoughts , often.

_____________________________

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\(•_•)
( (> A NASTY
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<) )> WOMAN
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Dont Hate Love

(in reply to dcnovice)

RE: Got Prayers? (Or Good Wishes?) - 4/5/2013 3:07:05 PM

Posts: 7683
Joined: 5/2/2007
From: Northern New Jersey
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quote:

ORIGINAL: Rule

quote:

ORIGINAL: LafayetteLady
I don't know if any of the over active bladder medications might help your night peeing, but it is worth asking about.

Peeing removes the end product of metabolism from a body. I recommend to just have peace with the symptom.

Those medications don't prevent you from urinating, but rather would allow dcnovice to get much needed rest and not get up several times during the night.

(in reply to Rule)

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