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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 6:41:25 PM   
angelikaJ


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Then you could see if you qualify at Columbia or if you could get a scholarship with sliding scale at a place like Rogers.

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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 6:43:49 PM   
dollparts85


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From: NY
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quote:

ORIGINAL: angelikaJ

Then you could see if you qualify at Columbia or if you could get a scholarship with sliding scale at a place like Rogers.

My understanding of Rogers is they never have big patients.

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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 7:07:45 PM   
angelikaJ


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quote:

ORIGINAL: dollparts85


quote:

ORIGINAL: angelikaJ

Then you could see if you qualify at Columbia or if you could get a scholarship with sliding scale at a place like Rogers.

My understanding of Rogers is they never have big patients.



My understanding is that no matter what I could possibly suggest, you would have a reason to find it unworkable.
It's okay.
I wish your life had been such that your coping mechanisms were not eating disorders.
I wish your life had been different so you didn't have the desperate need to self-destruct.
I wish you cared enough about yourself and the things in your life that mean something to you so that you could want to get help.

I can wish all I want.
It won't change the fact that you have an eating disorder that is destroying you and is insidiously harming those you care about as they watch you slowly die.

I can wish all I want but unless you want a different life ... .
If you want what you have never had, you must do what you have never done.

And you don't want it and won't do it.

It is very sad to me, but I can't change it.

So I wish you well, where you are at.

_____________________________

The original home of the caffeinated psychotic hair pixies.
(as deemed by He who owns me)

http://www.collarchat.com/m_3234821/tm.htm

30 fluffy points!

https://www.youtube.com/watch?v=mQjuCQd01sg

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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 7:12:36 PM   
kalikshama


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When I was very sick in 1999/2000, I found Carolyn Myss's "Why People Don't Heal and How They Can," along with other works of hers, very helpful.

My library system has it; maybe yours does too.

(I also availed myself of conventional and less conventional medicine, made a number of lifestyle changes, and continuously worked towards getting better.)

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Profile   Post #: 144
RE: Natural/OTC ways to treat severe pain? - 2/16/2014 8:49:01 PM   
dollparts85


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Joined: 10/22/2006
From: NY
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quote:

ORIGINAL: angelikaJ


quote:

ORIGINAL: dollparts85


quote:

ORIGINAL: angelikaJ

Then you could see if you qualify at Columbia or if you could get a scholarship with sliding scale at a place like Rogers.

My understanding of Rogers is they never have big patients.



My understanding is that no matter what I could possibly suggest, you would have a reason to find it unworkable.
It's okay.
I wish your life had been such that your coping mechanisms were not eating disorders.
I wish your life had been different so you didn't have the desperate need to self-destruct.
I wish you cared enough about yourself and the things in your life that mean something to you so that you could want to get help.

I can wish all I want.
It won't change the fact that you have an eating disorder that is destroying you and is insidiously harming those you care about as they watch you slowly die.

I can wish all I want but unless you want a different life ... .
If you want what you have never had, you must do what you have never done.

And you don't want it and won't do it.

It is very sad to me, but I can't change it.

So I wish you well, where you are at.

Thanks. I'm fine though. Lots better than I used to be.


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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 9:09:06 PM   
DommeinRochester


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I'm confused. Talk about small world, not only do I live in the same county as you, dollparts, I'm also on Medicaid.

This past year was just a big ol bully. I've seen more than a few specialists as well as having X-rays, ultra sounds, mris and more. For a while there I think they were just making up more tests for me. Yet through all this I never had a co pay. My only copays are with prescription drugs.

I'm also seeing a therapist, again no copayment. What company's are you being charged?

In addition to the above, I get notices from Medicaid about free wellness programs pertaining to my various conditions.

My pcp is wonderful. He doesn't hesitate referring a specialist when needed. Yes no matter what the insurance it a,ways takes time for the first visit, but once in, I have no problems being seen.



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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 9:12:53 PM   
dollparts85


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From: NY
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quote:

ORIGINAL: DommeinRochester

I'm confused. Talk about small world, not only do I live in the same county as you, dollparts, I'm also on Medicaid.

This past year was just a big ol bully. I've seen more than a few specialists as well as having X-rays, ultra sounds, mris and more. For a while there I think they were just making up more tests for me. Yet through all this I never had a co pay. My only copays are with prescription drugs.

I'm also seeing a therapist, again no copayment. What company's are you being charged?

In addition to the above, I get notices from Medicaid about free wellness programs pertaining to my various conditions.

My pcp is wonderful. He doesn't hesitate referring a specialist when needed. Yes no matter what the insurance it a,ways takes time for the first visit, but once in, I have no problems being seen.




Yeah just for meds. But I take a lot of meds and if there was an increase in my copay, I wouldn't be able to afford it.


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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 9:29:56 PM   
sexyred1


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You know, this is for the OP.

In reading this thread, you seem to refuse every bit of good advice from some very smart people, who have been patient with you.

There is no way in hell you can know everything about the medical system, drugs, etc. and taking advice to explore options is a smart thing to do.

You are having back pain, bulimia, thyroid issues, all sorts of things, which you seem to just accept as inevitable by saying people die from all sorts of things, which is a lazy, defeatist attitude.

You know you can control things like food intake, exercise, etc., right?

I just got a cancer diagnosis. If I was not smart enough to research, ASK for advice and really become educated on this, I would not have found a doctor I actually like, which is rare. I am out of work for 7 months, on COBRA, which is not a great plan, but I managed to get into treatment with the second top cancer hospital in up the US.

Why? Because only I can help myself. I cannot cure my cancer, but I can learn about every thing possible that could help.

The same as you. You are 28, you have time to stop this nonsense and really advocate for yourself.

< Message edited by sexyred1 -- 2/16/2014 9:33:36 PM >

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RE: Natural/OTC ways to treat severe pain? - 2/16/2014 10:00:37 PM   
dollparts85


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From: NY
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quote:

ORIGINAL: sexyred1

You know, this is for the OP.

In reading this thread, you seem to refuse every bit of good advice from some very smart people, who have been patient with you.

There is no way in hell you can know everything about the medical system, drugs, etc. and taking advice to explore options is a smart thing to do.

You are having back pain, bulimia, thyroid issues, all sorts of things, which you seem to just accept as inevitable by saying people die from all sorts of things, which is a lazy, defeatist attitude.

You know you can control things like food intake, exercise, etc., right?

I just got a cancer diagnosis. If I was not smart enough to research, ASK for advice and really become educated on this, I would not have found a doctor I actually like, which is rare. I am out of work for 7 months, on COBRA, which is not a great plan, but I managed to get into treatment with the second top cancer hospital in up the US.

Why? Because only I can help myself. I cannot cure my cancer, but I can learn about every thing possible that could help.

The same as you. You are 28, you have time to stop this nonsense and really advocate for yourself.

I didn't ask for advice for anything except the back issue.


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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 2:33:39 AM   
LadyConstanze


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quote:

ORIGINAL: dollparts85
I didn't ask for advice for anything except the back issue.


Dollparts, you are aware that people try to help you because they care about you? I find it sad that a bunch of virtual strangers are more interested in your well being and your health as you seem to be, there are people who think you're worth it and you are so standoffish, almost like you believe that you and your health isn't worth it. Doesn't that strike you as really weird? You're in a relationship, it's not just you, it's also your partner. If my partner would let his health go haywire and not care about the damage he does to it, I would have something to say about it, as it influences our life together.

You're a big girl, but you're quite pretty, tons of guys out there who like women with a bit more meat on their bones, you'll never be model, most of us won't be, but sod that, standing for hours in weird poses as a way to make money and an extremely short career, all the time worrying about losing your looks, who needs that anyway, right?

Tempting to just give up, but also very weak. A friend of mine had a heart transplant a few years ago, he was in his late 60's, he could have just said "lived my life, not going through the pain and the meds, the worry about rejection, the medical regime that will drive me half crazy" (and that is true, roid rages and all that), he decided it's a shot, a chance that he's been given and he went for it. I was with him for most of the journey, I'm just off the phone to him, we talk almost daily, he's fine now, about 3 years later. It was hell for both of us, it was pretty difficult for my relationship, being on another continent most of the time, didn't exactly do wonders for my career, though luckily I can work remotely, but it was worth it. If an older guy can have that much courage, you can. You're 28 now, you don't want to miss out on life after 30 (I was terrified of the magic 3, what an idiot I was), it's pretty amazing and liberating, you can do what you want then and you don't give a flying fart what other people might think, you go "Made it that far, I might as well enjoy the ride!"

Those doctors, you're not their submissive, they're there to help you, that's their job. You should definitely listen to their medical advise, but then double check with another doctor (will give you more peace of mind too) and DEMAND help, that's what they're there for, and if you're annoying enough, they will make sure that you see specialists, because you just bug them far too much.

Nobody can force you, and you can just switch the computer off, but really, what do you have to lose? Just one thing, the chance that you might feel better and be happier, and that's not a minor thing. Well, up to you!

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Those who do and those who don't!

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 4:31:06 AM   
angelikaJ


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quote:

ORIGINAL: dollparts85


quote:

ORIGINAL: angelikaJ


quote:

ORIGINAL: dollparts85


quote:

ORIGINAL: angelikaJ

Then you could see if you qualify at Columbia or if you could get a scholarship with sliding scale at a place like Rogers.

My understanding of Rogers is they never have big patients.



My understanding is that no matter what I could possibly suggest, you would have a reason to find it unworkable.
It's okay.
I wish your life had been such that your coping mechanisms were not eating disorders.
I wish your life had been different so you didn't have the desperate need to self-destruct.
I wish you cared enough about yourself and the things in your life that mean something to you so that you could want to get help.

I can wish all I want.
It won't change the fact that you have an eating disorder that is destroying you and is insidiously harming those you care about as they watch you slowly die.

I can wish all I want but unless you want a different life ... .
If you want what you have never had, you must do what you have never done.

And you don't want it and won't do it.

It is very sad to me, but I can't change it.

So I wish you well, where you are at.

Thanks. I'm fine though. Lots better than I used to be.



You are not "fine".

You came on here because of your issue post-op with your back.

And you kind of blamed the non-surgeon and the type of surgery you had.

Can you really tell me that you asked the guy who did your surgery: " Is this procedure going to work for me, because even though I will wear my back brace, I am bulimic and usually make myself vomit once a day til I nearly pass out?
And how will my lack of adequate nutrition impact my healing time?"

Vomiting is very hard on the body.
Vomiting that hard, more so.

And without enough of the nutrients your body needed, you probably heal much more slowly than other people.
So, in all likelyhood, you should have been wearing the brace for much longer.

You say your therapist knew you were bulimic.
And she "didn't care".
And she wanted you to have the surgery.
She never brought up the issue of your vomiting and your lack of nutrition?
I realise she is probably not a nurse but some things are so obvious you shouldn't need a degree to figure them out.

So, my advice on the back issue is to realise that while you are doing PT, to understand that without enough protein and other nutrients, your body is going to have a more difficult time healing.

A suggestion?
Print out this thread and bring it to therapy.
They need not know it is from a kink site.


edit: comma

< Message edited by angelikaJ -- 2/17/2014 4:34:31 AM >


_____________________________

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(as deemed by He who owns me)

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 4:55:38 AM   
kalikshama


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quote:

I didn't ask for advice for anything except the back issue.


It's all connected.

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 5:24:39 AM   
thishereboi


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quote:

ORIGINAL: dollparts85

There is only one inpatient treatment center that I can go to and they keep bulimic patients an average of two weeks and send them home. It's pointless to go there again. Especially since my labs are good I doubt they'd even keep me two weeks. (I take medication that causes high potassium so it keeps my potassium in the low normal range. And I've managed to get my GFR up to normal and keep it there a few years now.) I'm always honest with my mental health people...my therapists always know I'm purging. They don't really care. I went to an outpatient treatment center for many years...until about two years ago when insurance decided to stop covering it. I'm still waiting to get into the local mental health office in my new town...don't know if they will be helpful at all but I doubt it. Most normal mental health people know very little about eating disorders. I'm at the point in my life that I've just accepted that the eating disorder is always going to be there. I don't know any other way. I started restricting at 7 years old. Purging by 11-12. I'm 28 now. Sure it will probably kill me eventually...but people do lots of things that will kill them.



If you are 28 now and have been doing this since you were 11 or 12 it would seem that your body doesn't have a problem with it. You say your labs are good and from your pic I can tell you are not on the verge of wasting away so why is everyone getting all worked up.

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 5:34:42 AM   
LadyConstanze


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Very simple, because it's not the wasting away, if you are bullimic you throw up, your stomach acid can seriously cause harm (to the point of ulcers and in the most extreme case cancer), it's acid on your larynx for example, the acid ruins your teeth, it's a way of self-harming. You wouldn't tell a cutter that since they have been cutting themselves until the age of 28 it's not a big deal and they will never get an infection, or somebody who's been a smoker or a heavy drinker for 2 decades, that obviously their body can take it...

http://www.helpguide.org/mental/bulimia_signs_symptoms_causes_treatment.htm

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 6:56:51 AM   
dollparts85


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From: NY
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quote:

ORIGINAL: LadyConstanze

Very simple, because it's not the wasting away, if you are bullimic you throw up, your stomach acid can seriously cause harm (to the point of ulcers and in the most extreme case cancer), it's acid on your larynx for example, the acid ruins your teeth, it's a way of self-harming. You wouldn't tell a cutter that since they have been cutting themselves until the age of 28 it's not a big deal and they will never get an infection, or somebody who's been a smoker or a heavy drinker for 2 decades, that obviously their body can take it...

http://www.helpguide.org/mental/bulimia_signs_symptoms_causes_treatment.htm

I know the risks. I have a friend who developed esophageal cancer and a couple friends who ruptured their esophagus. And I've been really worried about that the past couple years. But even if I don't allow myself to throw up, it comes up into my mouth on it's own anyways so the damage is still being done.

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 7:09:27 AM   
dollparts85


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Joined: 10/22/2006
From: NY
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quote:

ORIGINAL: thishereboi


quote:

ORIGINAL: dollparts85

There is only one inpatient treatment center that I can go to and they keep bulimic patients an average of two weeks and send them home. It's pointless to go there again. Especially since my labs are good I doubt they'd even keep me two weeks. (I take medication that causes high potassium so it keeps my potassium in the low normal range. And I've managed to get my GFR up to normal and keep it there a few years now.) I'm always honest with my mental health people...my therapists always know I'm purging. They don't really care. I went to an outpatient treatment center for many years...until about two years ago when insurance decided to stop covering it. I'm still waiting to get into the local mental health office in my new town...don't know if they will be helpful at all but I doubt it. Most normal mental health people know very little about eating disorders. I'm at the point in my life that I've just accepted that the eating disorder is always going to be there. I don't know any other way. I started restricting at 7 years old. Purging by 11-12. I'm 28 now. Sure it will probably kill me eventually...but people do lots of things that will kill them.



If you are 28 now and have been doing this since you were 11 or 12 it would seem that your body doesn't have a problem with it. You say your labs are good and from your pic I can tell you are not on the verge of wasting away so why is everyone getting all worked up.

Yep. I had kidney involvement for a while but I managed to reverse that with proper hydration. Only real problems I have are GI related...body can't digest most foods anymore. (almost all produce, whole grains, nuts, seeds, rice...)They go straight through me undigested within an hour or two if I keep them in. And I get bowel impactions a lot despite taking miralax and colace twice a day. And then if I'm trying to keep something down I have to be really careful until it leaves my stomach b/c if I bend over, I'll puke. It's annoying.

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 12:35:57 PM   
LafayetteLady


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From: Northern New Jersey
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its a self imposed problem that you are alleging not of your medical professionals are concerned about even though they all know. That would be malpractice, so I call bullshit on that just like most else you say.

YOU don't want to stop. YOU think you know all there is to know about it so see no point in seeking treatment. YOU chose not to ask questions of the doctor who did your surgery. Its all on YOU.

You can demand your doctors "help" you, but I'm sure theyknow you aren't going to listen. Their bet bet is to release you as a patient as uncooperative, since you have said how none of them know much about your conditions.


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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 1:40:01 PM   
dollparts85


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From: NY
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quote:

ORIGINAL: LafayetteLady

its a self imposed problem that you are alleging not of your medical professionals are concerned about even though they all know. That would be malpractice, so I call bullshit on that just like most else you say.

YOU don't want to stop. YOU think you know all there is to know about it so see no point in seeking treatment. YOU chose not to ask questions of the doctor who did your surgery. Its all on YOU.

You can demand your doctors "help" you, but I'm sure theyknow you aren't going to listen. Their bet bet is to release you as a patient as uncooperative, since you have said how none of them know much about your conditions.



I'm not even purging enough to require hospitalization so I'd just be seeing a dietitian again as out patient and I know how to eat properly...and I have tried so many times in the past. That's how I got to this weight. I gained 100 lbs while in OP trying to listen that eventually my metabolism would increase...it didn't. So I could try again...and how much would I gain this time? Until I can't move? End up in a nursing home b/c I'm like 600 lbs? I seriously don't know what else to do. I take loads of supplements to replace what I'm not ingesting. When I keep things down, it's high protein stuff for my muscles.

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 2:17:08 PM   
angelikaJ


Posts: 8641
Joined: 6/22/2007
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quote:

ORIGINAL: dollparts85


quote:

ORIGINAL: LafayetteLady

its a self imposed problem that you are alleging not of your medical professionals are concerned about even though they all know. That would be malpractice, so I call bullshit on that just like most else you say.

YOU don't want to stop. YOU think you know all there is to know about it so see no point in seeking treatment. YOU chose not to ask questions of the doctor who did your surgery. Its all on YOU.

You can demand your doctors "help" you, but I'm sure theyknow you aren't going to listen. Their bet bet is to release you as a patient as uncooperative, since you have said how none of them know much about your conditions.



I'm not even purging enough to require hospitalization so I'd just be seeing a dietitian again as out patient and I know how to eat properly...and I have tried so many times in the past. That's how I got to this weight. I gained 100 lbs while in OP trying to listen that eventually my metabolism would increase...it didn't. So I could try again...and how much would I gain this time? Until I can't move? End up in a nursing home b/c I'm like 600 lbs? I seriously don't know what else to do. I take loads of supplements to replace what I'm not ingesting. When I keep things down, it's high protein stuff for my muscles.


You can't get enough protein doing what you do.
The minimum is 46 grams a day.

And because your digestive system is so screwed up, unless you are getting B-12 shots, you are probably deficient.

I did mention Columbia's program.
They would probably find your complexities to be fascinating.
http://columbiapsychiatry.org/eatingdisorders/

They do bariatric surgery all the time on people who weigh more than you do.
I am guessing that purging til you nearly pass out would make the post surgical recovery impossible.

You say you aren't purging enough to require hospitalisation.
And yet you did say you accept that it will probably kill you.

You don't see the incongruity in that?

You have options.
But to see them you have to want them.

edit: add relevant link




< Message edited by angelikaJ -- 2/17/2014 2:24:56 PM >


_____________________________

The original home of the caffeinated psychotic hair pixies.
(as deemed by He who owns me)

http://www.collarchat.com/m_3234821/tm.htm

30 fluffy points!

https://www.youtube.com/watch?v=mQjuCQd01sg

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RE: Natural/OTC ways to treat severe pain? - 2/17/2014 2:38:58 PM   
dollparts85


Posts: 1233
Joined: 10/22/2006
From: NY
Status: offline

quote:

ORIGINAL: angelikaJ

quote:

ORIGINAL: dollparts85


quote:

ORIGINAL: LafayetteLady

its a self imposed problem that you are alleging not of your medical professionals are concerned about even though they all know. That would be malpractice, so I call bullshit on that just like most else you say.

YOU don't want to stop. YOU think you know all there is to know about it so see no point in seeking treatment. YOU chose not to ask questions of the doctor who did your surgery. Its all on YOU.

You can demand your doctors "help" you, but I'm sure theyknow you aren't going to listen. Their bet bet is to release you as a patient as uncooperative, since you have said how none of them know much about your conditions.



I'm not even purging enough to require hospitalization so I'd just be seeing a dietitian again as out patient and I know how to eat properly...and I have tried so many times in the past. That's how I got to this weight. I gained 100 lbs while in OP trying to listen that eventually my metabolism would increase...it didn't. So I could try again...and how much would I gain this time? Until I can't move? End up in a nursing home b/c I'm like 600 lbs? I seriously don't know what else to do. I take loads of supplements to replace what I'm not ingesting. When I keep things down, it's high protein stuff for my muscles.


You can't get enough protein doing what you do.
The minimum is 46 grams a day.

And because your digestive system is so screwed up, unless you are getting B-12 shots, you are probably deficient.

I did mention Columbia's program.
They would probably find your complexities to be fascinating.
http://columbiapsychiatry.org/eatingdisorders/

They do bariatric surgery all the time on people who weigh more than you do.
I am guessing that purging til you nearly pass out would make the post surgical recovery impossible.

You say you aren't purging enough to require hospitalisation.
And yet you did say you accept that it will probably kill you.

You don't see the incongruity in that?

You have options.
But to see them you have to want them.

edit: add relevant link




I'm only purging once a day usually. They tend to not do IP unless you're doing it several times a day. When I went before I was purging 5-10 times a day. I stayed in out patient doing 1-2 times a day for like 5 years. The hospital I went to was part of Columbia.

I'm no more special than any other bulimic. I'm a lot healthier than most too. I'm not interesting. Though if they do that clinical study where they have you binge/purge and measure how many calories you get up...that would be awesome to find out haha several of my friends have done it and they all got most up...having an exact number would be great to know.

They won't do gastric bypass unless I'm purge free for a year...which I really don't see ever happening. I could lie though...which sometimes I think about...but I'm pretty sure Master would tell on me.


_____________________________

"Courage doesn't always roar. Sometimes its the quiet voice at the end of the day saying, I will try again tomorrow"

(in reply to angelikaJ)
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