quote:

ORIGINAL: windchymes

LOL, 'stroke-a-betes'! I'll have to remember that one!

quote:

ORIGINAL: Lynnxz

quote:

ORIGINAL: dollparts85

quote:

ORIGINAL: LadyConstanze

Well, get them checked and a topical cream might help, my ex neighbour had to lose weight and while they couldn't give her hormones orally, they gave her the topical cream containing oestrogen, since it's topical you need only very little, (no comparison to taking the pill) she just put it on her armpits. Her divorce made things worse, so maybe you stressing yourself also doesn't help.

I don't think I'm allowed topical either...at least my old ob/gyn wouldn't. I have really bad vaginal dryness b/c of the hormone imbalance and she said that the only thing that would really help would be estorgen cream but that she felt it was too dangerous for me to use. :(

Well clearly your only remaining option is to sit at the computer all day and mope.

You've ruled everything else out.

Seriously. Shot down everything.

Weight loss? Too hard.

Counciling? Can't afford

Applying for govt assist? Don't wanna.

Hormone test? Was bad before, best not to do it again.

How about you tell everyone what you WOULD be willing to do to help yourself, and save everyone the time.

quote:

ORIGINAL: dollparts85
I could easily go back to purging 10 times a day but I don't let myself do that...at least I have forced myself to keep it to once a day.

quote:

ORIGINAL: poise

quote:

ORIGINAL: dollparts85
I could easily go back to purging 10 times a day but I don't let myself do that...at least I have forced myself to keep it to once a day.

Hip Hip Hoooray! You get the gold medal for willpower here because you only do it once a day.
For goodness sake, YOU ONLY EAT ONCE A DAY What's there to purge?
Why are you taking comfort in such false justifications? Don't you, your family or your boyfriend deserve a better you?

quote:

ORIGINAL: poise

You really ought to change your signature. Those are certainly not words you are living by.

quote:

ORIGINAL: LafayetteLady

Your family doesn't care, your doctors don't care, I guess nobody cares.

How are you trying to lose weight? By eating only a yogurt or some cottage cheese once a day and throwing it back up?

You said they would give you outpatient only with a nutrionist. I guess you know better than she does, too, huh?

After all, you are an expert with a medical degree, right?

You need to get it through your thick head that you don't know everything, throwing up once a day and not using laxitives isn't something to be proud of, and if you never get off your ass,of course you are only going to burn 500 calories a day. Because that is your resting metobolic rate, not how much you can burn with activity.

You didn't get to be more than 300 pounds because you have a slow metabolism, are hypothyroid and ate a healthy diet and exercised but gained anyway. According to you, you ingest less than 300 calories a day and vomit some of those back up. So sleeping you still would burn more than 200 by your own statements. Now do you see while I call bullshit?

Your bones are giving out because they can't handle your weight, and because they receive no nutrients to make them strong. Get off your ass and walk around the block, hell walk up the stairs in your house, do leg lifts while you sit n the couch, continuously stand up and sit down during commercial breaks. Clean your house in 15 minute intervals. Just MOVE your body, you will burn more than 500 calories.

Of course, I'm sure you have an excuse not to, like your back hurts. I'm in pain 24 hours a day, 365 days a year. I have a friend who does the heavy work for me once a week, but I still manage to move around and my metabolism is very slow, doesn't matter what I eat or don't need, its difficult for me to lose weight. But I don't lie to my doctors about what I do, and if I were on FOUR different blood pressure medications and my BP was still high, I would confer with my doctors about changing them. But wait, your BP isn't "hospitlize you this minute" high and mine is higher than yours (a new development I will be discussing with my primary tomorrow). So all this talk about your BP being so high you get dizzy and pass out is crap.

Why don't you just admit you really don't WANT to do anything about your health issues except whine that your family and doctors don't care or you know more about your conditions than they do?

quote:

ORIGINAL: dollparts85

quote:

ORIGINAL: LafayetteLady

Your family doesn't care, your doctors don't care, I guess nobody cares.

How are you trying to lose weight? By eating only a yogurt or some cottage cheese once a day and throwing it back up?

You said they would give you outpatient only with a nutrionist. I guess you know better than she does, too, huh?

After all, you are an expert with a medical degree, right?

You need to get it through your thick head that you don't know everything, throwing up once a day and not using laxitives isn't something to be proud of, and if you never get off your ass,of course you are only going to burn 500 calories a day. Because that is your resting metobolic rate, not how much you can burn with activity.

You didn't get to be more than 300 pounds because you have a slow metabolism, are hypothyroid and ate a healthy diet and exercised but gained anyway. According to you, you ingest less than 300 calories a day and vomit some of those back up. So sleeping you still would burn more than 200 by your own statements. Now do you see while I call bullshit?

Your bones are giving out because they can't handle your weight, and because they receive no nutrients to make them strong. Get off your ass and walk around the block, hell walk up the stairs in your house, do leg lifts while you sit n the couch, continuously stand up and sit down during commercial breaks. Clean your house in 15 minute intervals. Just MOVE your body, you will burn more than 500 calories.

Of course, I'm sure you have an excuse not to, like your back hurts. I'm in pain 24 hours a day, 365 days a year. I have a friend who does the heavy work for me once a week, but I still manage to move around and my metabolism is very slow, doesn't matter what I eat or don't need, its difficult for me to lose weight. But I don't lie to my doctors about what I do, and if I were on FOUR different blood pressure medications and my BP was still high, I would confer with my doctors about changing them. But wait, your BP isn't "hospitlize you this minute" high and mine is higher than yours (a new development I will be discussing with my primary tomorrow). So all this talk about your BP being so high you get dizzy and pass out is crap.

Why don't you just admit you really don't WANT to do anything about your health issues except whine that your family and doctors don't care or you know more about your conditions than they do?

I've had my blood pressure meds changed several times in the past year...switched from losartan potassium to diovan...then doubled the dose of diovan...and then added HCTZ to the diovan...they are trying to get it under control. If yours is even higher than mine then you really need to look at what you are eating. My doctors keep mentioning how I'm at risk of having a stroke.

You have no idea what you are talking about. I have gained all my weight in short intervals of attempts of recovery. 175 lbs in two years at one point. I maintain most of the time...when I gain, it's super fast and in large amounts. You have no idea what it's like to go from 127 lbs to over 300 lbs in less than two years. I hate this body so fucking much. I would do anything to make it go away. I feel trapped inside it. I don't know what else to do. If I eat more, I'll gain. I've tried so many times...that's how I got to be this disgusting whale. I try to be as active as I possibly can. I'm exercising as much as I can despite the intense pain. I just want to give up and let myself die half the time.

quote:

ORIGINAL: dollparts85

My family doesn't care...but then again that's one reason I moved away from them. Boyfriend does deserve better...and I'm sure eventually he'll realize that.

quote:

ORIGINAL: Dvr22999874

Do you have the words 'Born whinger' in the American vocabulary ?

quote:

ORIGINAL: angelikaJ

quote:

ORIGINAL: dollparts85

quote:

ORIGINAL: LafayetteLady

Your family doesn't care, your doctors don't care, I guess nobody cares.

How are you trying to lose weight? By eating only a yogurt or some cottage cheese once a day and throwing it back up?

You said they would give you outpatient only with a nutrionist. I guess you know better than she does, too, huh?

After all, you are an expert with a medical degree, right?

You need to get it through your thick head that you don't know everything, throwing up once a day and not using laxitives isn't something to be proud of, and if you never get off your ass,of course you are only going to burn 500 calories a day. Because that is your resting metobolic rate, not how much you can burn with activity.

You didn't get to be more than 300 pounds because you have a slow metabolism, are hypothyroid and ate a healthy diet and exercised but gained anyway. According to you, you ingest less than 300 calories a day and vomit some of those back up. So sleeping you still would burn more than 200 by your own statements. Now do you see while I call bullshit?

Your bones are giving out because they can't handle your weight, and because they receive no nutrients to make them strong. Get off your ass and walk around the block, hell walk up the stairs in your house, do leg lifts while you sit n the couch, continuously stand up and sit down during commercial breaks. Clean your house in 15 minute intervals. Just MOVE your body, you will burn more than 500 calories.

Of course, I'm sure you have an excuse not to, like your back hurts. I'm in pain 24 hours a day, 365 days a year. I have a friend who does the heavy work for me once a week, but I still manage to move around and my metabolism is very slow, doesn't matter what I eat or don't need, its difficult for me to lose weight. But I don't lie to my doctors about what I do, and if I were on FOUR different blood pressure medications and my BP was still high, I would confer with my doctors about changing them. But wait, your BP isn't "hospitlize you this minute" high and mine is higher than yours (a new development I will be discussing with my primary tomorrow). So all this talk about your BP being so high you get dizzy and pass out is crap.

Why don't you just admit you really don't WANT to do anything about your health issues except whine that your family and doctors don't care or you know more about your conditions than they do?

I've had my blood pressure meds changed several times in the past year...switched from losartan potassium to diovan...then doubled the dose of diovan...and then added HCTZ to the diovan...they are trying to get it under control. If yours is even higher than mine then you really need to look at what you are eating. My doctors keep mentioning how I'm at risk of having a stroke.

You have no idea what you are talking about. I have gained all my weight in short intervals of attempts of recovery. 175 lbs in two years at one point. I maintain most of the time...when I gain, it's super fast and in large amounts. You have no idea what it's like to go from 127 lbs to over 300 lbs in less than two years. I hate this body so fucking much. I would do anything to make it go away. I feel trapped inside it. I don't know what else to do. If I eat more, I'll gain. I've tried so many times...that's how I got to be this disgusting whale. I try to be as active as I possibly can. I'm exercising as much as I can despite the intense pain. I just want to give up and let myself die half the time.

So which came first: your eating disorder (which began when you were quite young) or your weight gain?

quote:

ORIGINAL: ChatteParfaitt

Thanks for that explanation. LadyC.

You know, if she's that messed up, she should be communicating with medical professionals, and not seeking advice on an online forum.

quote:

ORIGINAL: LadyConstanze

quote:

ORIGINAL: dollparts85

My family doesn't care...but then again that's one reason I moved away from them. Boyfriend does deserve better...and I'm sure eventually he'll realize that.

Do you like setting yourself up for failure? If you think you're not worth his affections, you're really really giving out signals and yes, sooner or later he will think the same way.
Why do you think he is with you? Why don't you make up a list what you have to offer and what you could offer? Build up your self-esteem a bit and have a "can do" attitude.

I'm not expecting you to change your life from today to tomorrow, but small steps.

For example, you ring up your old doctor's office and tell them that you asked for your medical records on <fill in dates>, you would like an explanation why they are still not there, you take down the name of the person you talk to, you tell her politely but firmly that you need medical attention, due to their delay you aren't getting it, in case this causes you medical problems, you will hold them responsible and you will make it public. Trust me, they don't want a law suit, and they really don't want their reputation shot because the staff was tardy.

Don't get mad, be polite and firm but refuse to be messed around again.

The weight gain you mention, it's so fast that I think it's water retention, that combined with a high BP could be problems with your heart, and in turn the kidney doesn't get enough blood, can't function properly and hence you retain all the water. Push for a check of your kidney function.

Look I'm not a doctor (not a medical one) but my thesis was in medical English and I spent 3 years in the Cardiology unit of a university clinic, translating tons of studies for international heart journals and seeing tons of patients that were obese (that's why I was ideal to be the care giver of my friend who had a heart transplant), it's very common for people who have an insufficient ejection traction to have renal failure (which could contribute to your hidradenitis suppurativa as your body is poisoning itself). That could also be part of the weight gain (you screwed up your metabolic rate pretty much by purging and hypothyroidism factors as well) but all that isn't enough to gain that much, it must be water retention.

It also explains why you feel like you can't do much and give up, that condition would sap most of your energy.

Please do me a favour and write down the weight gain, the symptoms, don't just tell you MD, have a list (ASK to have that list as part of your medical file) and ASK to have the ejection fraction of your heart checked and your kidney function.

AND PLEASE, don't even consider using leeches, you have clotting problems, your immune system is most likely fucked (to use a medical term), unless an MD says it's fine, don't even think about it, while they are harmless for a healthy person, somebody with clotting problems and an impaired immune system, no way. You might get an allergy, you might not stop bleeding for days (instead of a few hours which is normal), it would be a complete and utter gamble.

I might be really off track here, but it's worth having it looked at, and with your symptoms, I'm surprised that none of your previous doctors ever had a good look at heart and kidney function and insists on monitoring it regularly. You can do a simple test for water or fluid retention yourself, grab your calf with one hand, press your fingers into it pretty firmly, hold for 10 to 20 seconds and then check, if the indentions your fingers made stay for longer than a few seconds, your tissue is filled with fluid. It could also be that your liver and kidneys can't cope with all the medication you're taking, but it would really explain almost everyone of your problems.

You have nothing to lose by giving your MD a list with your symptoms (tell them especially about the weight gain despite you purging and restricting your calorie intake and being hypo with high BP), I'd be more than surprised if he wouldn't ask straight away when you had a kidney and heart test last, if he doesn't ask that, you want to see another doctor anyway!